Discussions By Condition: Medical Stories

Is is ADD/ADHD or Other??

Posted In: Medical Stories 6 Replies
  • Posted By: Anonymous
  • April 26, 2008
  • 11:22 PM

I just want to inform those who have children and have been diagnosed with ADD or ADHD. My daughter was diagnosed back in 3rd grade with ADHD and put on medication. It wasn't until my daughter's high school counselor expressed concern when my daughter was in 10th grade. Her counselor said that my daughter seemed bored at school, she seemed like she didn't want to be there, and that her grades were declining. She suggested that my daughter see a psychologist that she knew (one of very high standing) to see if there was something else going on. Our daughter was put through three days of extensive 4 hour testing, both on her meds and off. She did better when she was off her meds. She was rediagnosed with Central Auditory Processing Disorder and taken off her meds. This is a disorder that is not well-known, even the high school counselor hadn't heard of it and we were asked to supply her with all the reports from our daughter's testing. Needless to say, because this disorder isn't well-know there are probably MANY more kids out there that have been misdiagnosed and should not be taking drugs. After our daughter was diagnosed and taken off her meds, her new prescription was in CD form - she listened to special music CDs that were made up of various octives that tricked the ears and brain to work together. Central Auditory Processing Disorder is a disorder where whatever your child is hearing in school goes in the ears, but gets lost and doesn't process in the brain. So, all of the lectures given in school do not enter the brain/memory so the child may not even attend class. Because this disorder wasn't too well-known, I had to appeal my insurance company to cover the bills - they really didn't know too much about it. And at the time of the CD prescriptions, the insurance company didn't cover them, but the agent I talked to said that sometime down the road they probably would be covered (maybe you'll be lucky). I just wish that I would have found out about this disorder a long time ago because our daughter fell way behind in school, and we spent about $11,000 at Huntington Learning Center for tutoring, which had a lot of "audio" teaching (which with CAPD, a child cannot comprehend any of it) - we wasted a lot of money!! Need more info, please let me know.

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6 Replies:

  • If your daughter's school did not provide special education services under the category of Other Health Impaired, you may be eligible for a payment for some of that $11,000 you spent on tutoring. Yes, I agree that doctors are too quick to rush in with the meds. They need to be looking at the total package. I also think a thorough hormonal study would help the ADHD kids, along with diet controls. There is another homeopathic doctor who is working with harmonic therapy. But the school had a obligation to provide services from the time of her original diagnosis either in a 504 plan or Special Education; since she was behind, most likely special educaiton. If she is at grade level now, she would still qualify for 504 services which allow for accommodations during state testing.
    Monsterlove 2921 Replies Flag this Response
  • My daughter did qualify as an IEP student through the State and did get special help throughout her school years. We just paid for on-the-side tutor sessions to help her. We were unaware of a different disorder than what she was originally diagnosed with because no one was really familiar with CAPD. That is why I now try to "advertise" my new knowledge when I hear someone talk about their child being diagnosed with ADD/ADHD. I am just pleased to know that the school district we live in was unlike many who simply shuffle the kids through school just so they pass and move on. Ours, they brought it to the table and suggested help so our daughter could actually get the help she needed to get the education and graduate with the knowledge she truly learned and retained.
    Anonymous 42789 Replies Flag this Response
  • My daughter did qualify as an IEP student through the State and did get special help throughout her school years. We just paid for on-the-side tutor sessions to help her. We were unaware of a different disorder than what she was originally diagnosed with because no one was really familiar with CAPD. That is why I now try to "advertise" my new knowledge when I hear someone talk about their child being diagnosed with ADD/ADHD. I am just pleased to know that the school district we live in was unlike many who simply shuffle the kids through school just so they pass and move on. Ours, they brought it to the table and suggested help so our daughter could actually get the help she needed to get the education and graduate with the knowledge she truly learned and retained. I really appreciate your post. I have a 3 year old who is going in for some testing, and I feel like there is something going on with her "like" ADD, but not exactly that. I will keep this in mind should she need further testing. Thanks, and yes, Monster Love is right - ADD is terribly overdiagnosed, a "quick fix" with meds and it does such a disservice to our kids! Homeopathy, NAET, naturopathy and nutritional therapies can all help. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • It sounds like the district did the best they could with the information they had at hand. Best of luck; sounds like she can overcome a lot of her disability.
    Monsterlove 2921 Replies Flag this Response
  • I have been taking Dexedrine now for close to 15 years. Started on Ritalin and moved to Dexedrine. For the most part 30mg worked really great for me. The past three years or so Dexedrine has not been that effective. I increased dosage to 40mg and now 45mg a day. I don't know if it is the medicine but all textbook ADHD symptoms are back more than ever. Brain fog, lost word, can't speak, thinking is shot, double reading, lost thoughts and concentration, and a 2 min attention span. I seem to be traveling in the opposite direction from where Dexedrine use to take me. I don't know if this is due to the long term effects of taking a strong stimulant. Read all studies on the ADHD/ADD medications, and check the longterm effects. In my life I had other things wrong with me. At the age of 12 it started out just being attention, concentration, mood and my grades and relationships which got better after taking stimulant medication. When I didn't take the medication I would notice all symptoms. Years later I started getting; popping joints; muscle tremors all over; eye lid muscle spasms; dry skin; flaky skin around and under eye lid; muscle soreness; weight gain; acne at 27 years old; memory problems worse than ever; heart palpitations; dandruff. I should be at my prime. I started researching symptoms and found out that my family has thyroid problems which they take medication for. ADD/ADHD is sometimes misdiagnosed with thyroid problems. I had blood work done two days ago and I am waiting for the news. I understand my parents didn't know what to do with me when I was a kid. What if this whole time my body just was not receiving the proper chemicals and that is why I have all these problems and ADD/ADHD symptoms. Do the research before children take this medication. In the begining they might seem to improve as such as I did. These medications might effect there brain on many levels that can be long lasting. I had to deal with so many things because of my malfunctioning brain. Life was hard for me. I have been in college now for 7 years and I am still working on my BA. All I can think is what if my parents did more research and I had the proper medicine for my health issue. My life could of been so better. I am not a doctor, only a 15 year user of Dexedrine. Research parents perspective, case studies, medication effects, substances that interact with the drug, health perspective, get blood work done to find out if heavy metals and allergies play a role, look at family health history, and get doctors opinions so you can have a better understanding of the negitive or positive effects of dexedrine and other ADD/HD medications. Your child might perform better if the proper diagnosis and treatment is given. Don't give up the answers are out there, and always love and encourage your child to do the best even when they are being difficult.Longterm user of Dexedrine
    Anonymous 42789 Replies
    • November 15, 2009
    • 03:51 PM
    • 0
    Flag this Response
  • Hi there,I'm a parent of an a 11yr old boy who has been diagnosed with ADHD. Life was hard for us his first five years of life but worse on him. My husband and I didn't believe in ADHD but came around when he was 5 1/2. We resisted medications because all doctors and teachers wanted a quick fix. I tried everything under the sun from, organic diets, natural supplements, any kind of "ADHD" natural product at the health food stores. He has other symptoms like anxiety and agressive behavior. We found that behavioral management has helped him a little but us tremendously. We understand so much about him, us and just plain old human behaivor. The common thing that EVERYONE including his psychologist has stated about my son is that he's so inconsistant and doesn't fit the typical ADHD diagnoses even though he does have several characteristics. We all understand that inconistancy is a major part of ADHD but I kept believing there was some more. When he turned 9 we finally decided to try the meds and he was given adderal XR20 mg. There was no arguing the fact that it made a tremendous improvement in him in all aspects of his life. Unfortunately, about the last 6 months he's regressing and starting to struggle in school, much like you've described. I was recently diagnosed with hypothyroid and in my research ran across a thyroid website with someone stating they had been mis-diagnosed with ADHD. I started googling and found your statement. Many of your symptoms are very much inline with thyroid issues. I truly feel bad that you had such a struggling childhood. As a parent I can say it's hard to hear and my heart hurts for you, but I want you to continue with posting since you may be the light at the end of the tunnel for so many. I scheduled a doctors appointment for my son next week to get tested for hyperthyroid. There are a few questions I was wondering if you could help me with.1-Was there a particular test or series of tests you requested? 2-Have you found any really helpful websites on ADHD?3-Can you tell me more about your mood swings? What helped?4-My son is extremely negative and always seems to be in a bad mood? Any thoughts on this?5-Is there any advice you can express to me to help me deal with the negativity/anger?6-My son is definitely affected by certain foods. What about you?7-I was on to something at one point with a bunch of supplements I researched but quit them after his disposition stayed consistantly angry for about a week and a half. Later I found out that a lot of times when a child gets on certain meds they actually get worse before they get better. Have you ever tried this?Please keep me updated and your results. I wish you the best of luck and pray for you. Any information you can give me is much appreciated.Thanks!!I have been taking Dexedrine now for close to 15 years. Started on Ritalin and moved to Dexedrine. For the most part 30mg worked really great for me. The past three years or so Dexedrine has not been that effective. I increased dosage to 40mg and now 45mg a day. I don't know if it is the medicine but all textbook ADHD symptoms are back more than ever. Brain fog, lost word, can't speak, thinking is shot, double reading, lost thoughts and concentration, and a 2 min attention span. I seem to be traveling in the opposite direction from where Dexedrine use to take me. I don't know if this is due to the long term effects of taking a strong stimulant. Read all studies on the ADHD/ADD medications, and check the longterm effects. In my life I had other things wrong with me. At the age of 12 it started out just being attention, concentration, mood and my grades and relationships which got better after taking stimulant medication. When I didn't take the medication I would notice all symptoms. Years later I started getting; popping joints; muscle tremors all over; eye lid muscle spasms; dry skin; flaky skin around and under eye lid; muscle soreness; weight gain; acne at 27 years old; memory problems worse than ever; heart palpitations; dandruff. I should be at my prime. I started researching symptoms and found out that my family has thyroid problems which they take medication for. ADD/ADHD is sometimes misdiagnosed with thyroid problems. I had blood work done two days ago and I am waiting for the news. I understand my parents didn't know what to do with me when I was a kid. What if this whole time my body just was not receiving the proper chemicals and that is why I have all these problems and ADD/ADHD symptoms. Do the research before children take this medication. In the begining they might seem to improve as such as I did. These medications might effect there brain on many levels that can be long lasting. I had to deal with so many things because of my malfunctioning brain. Life was hard for me. I have been in college now for 7 years and I am still working on my BA. All I can think is what if my parents did more research and I had the proper medicine for my health issue. My life could of been so better. I am not a doctor, only a 15 year user of Dexedrine. Research parents perspective, case studies, medication effects, substances that interact with the drug, health perspective, get blood work done to find out if heavy metals and allergies play a role, look at family health history, and get doctors opinions so you can have a better understanding of the negitive or positive effects of dexedrine and other ADD/HD medications. Your child might perform better if the proper diagnosis and treatment is given. Don't give up the answers are out there, and always love and encourage your child to do the best even when they are being difficult.Longterm user of Dexedrine
    Anonymous 42789 Replies
    • December 3, 2009
    • 09:01 AM
    • 0
    Flag this Response
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