Discussions By Condition: Medical Stories

Intestinal Malrotation

Posted In: Medical Stories 0 Replies
  • Posted By: italianirishj
  • March 17, 2008
  • 08:27 PM

This is the story of my daughter. She was born by c-section, 4 weeks early, and was 5lbs. 13oz. and "healthy." We were sent home on day two and everything was going great. Her demeanor, eating, sleeping, we were in love.

Suddenly, when she was 6 days old, without any crying or wincing, she would calmly vomit up all her formula/breast milk, and it was green. After two feedings like this, I called the after hours line at the pediatrician's office. The Doctor that called me back said it sounded like acid reflux and asked when my next appointment was. I said "tomorrow at 4pm" She said to keep the appointment and bring the situation up with the doctor.

Well, in the morning it continued happening and I just felt that something was wrong. I called the Dr.'s office again and they said they could see her right away, it was now 10am. We rushed over and the doctor said it could be pyloric stenosis but he wanted to get an x-ray to be sure. They weighed her and she had dropped to 4lbs. 10oz. We rushed to the hospital and almost as soon as they took the x-ray, in walked the surgeon. He quickly explained that we had no time to spare and had to rush to emergency. He said if this had continued for an hour or two longer she probably would not have made it (and we were supposed to wait to see the doctor until 4pm!)

He quickly explained that while her intestines were developing they took a wrong turn which caused them to twist after she was born. Her bowels were suffocating and she could end up not making it through the surgery. If she did, she may have to have a colostomy bag or be in the NICU for many days. The anesthesiologist greeted us and said it was amazing to see her because most parents don't catch the babies in time and they don't make it.

We waited in the waiting room and clung to our family members while we prayed. After 2 hours (they estimated 4) the surgeon came out and shared the good news. She was doing great, no bowel death, no colostomy bag, no NICU, just a couple days for observation.

I write this to all the parents out there, to trust your intuition, sometimes it is better than a degree. Sometimes we err on the side of caution but that is an error I'm willing to risk. Not my children's health and safety.

Thank you for letting me share my story.

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