Discussions By Condition: Medical Stories

Insomnia, DSPS, non-24

Posted In: Medical Stories 0 Replies
  • Posted By: taniaaust1
  • June 29, 2011
  • 04:20 AM

I want to share how my insomina issues are starting to get better again in case others here have this sleep issue.

In past melatonin worked good (about 3 quarters of the time) for me but I had trouble getting another script as doctor said it wasnt usually useful for insomnia and wouldnt prescribe it thou I'd been on it before and it worked.. so I was going throu ***l with worst and worst insomnia (surviving on only a few hrs sleep all up some days).

Anyway.. last week I found out that there are completely different forms of insomnia which require completely different treatments.... and found out that Im one the 7-16% of insomnics who have a circadian rhythm disorder so hence needs to be treated completely differently to the more normal kinds of insomnia most people have.

Both my psychologist and my CFS specialist who I saw as well, last week said my issue is a circadian rhythm issue and it turns out that melatonin is the actual medication for type of insomnia I have. So now Ive been prescribed it again along with trying to alter the light and dark in my house. (my psychologist is getting in touch with the sleep clinic for advice for me due to this). This is really helping me.

I have either non-24-hour sleep-wake syndrome http://en.wikipedia.org/wiki/Non-24-hour_sleep-wake_syndrome and/or delayed sleep phase disorder (DSPD) http://en.wikipedia.org/wiki/Delayed_sleep_phase_syndrome
.........

It seems that many general practioners have not a clue when it comes to this disorder which is sad as this issue causes one not to be able to function well at all due to ending up so severely sleep deprived... sad that my GP once again didnt do his job and my medical issues were left for me to beg my psychologist (and other specialists) to try help me. My life was ***l as I wasnt able to get to sleep as late as before 6.30am some times. I was so tired i was falling asleep while doing things.. I fell asleep in the sink while doing the dishes.

Try living like that when you need to then be up at 8.30am to go to specialist appointments .. try getting only 3 hrs sleep 5 nights straight. It almost drives one crazy.. and one is so so tired and brain dead. Doctors who shrug off patients who have sleep issues as bad as this shouldnt be practicing medicine!!

Sometimes I really wonder what is the point of having a GP when he never knows anything anytime I have something going wrong. please any doctors who read my post, put yourselves in your patients shoes and maybe you will understand why patients are often so stressed and desperate for answers.

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