Discussions By Condition: Medical Stories

Innner Ear (Vestibular) Symptoms Misdiagnosed

Posted In: Medical Stories 0 Replies
  • Posted By: jujujoyseeker
  • August 11, 2008
  • 10:54 PM

Hello!
My son was dizzy, had poor balance, vomited at odd times, could not jump or do sports, and appeared disorientated. He was misdiagnosed repeatedly by high level neurologists and other specialists for years--and told he was depressed and anxious and otherwise okay. We had him in physical therapy but he never improved.

I continued with online research until a symptom cluster pulled up the possiblilty of an inner ear disorder. I took him to a Balance and Hearing Specialist who gave him several days of specific testing on his inner ears. Bingo! They found that his left was normal-but his right inner ear was bulging with fluid that constantly fluctuated with diet, atmospheric changes of weather and humidity, movements, and visual fields. He has vestibular hydrops-which is quite debiliatating to this day.

His specialist suggested special exercises that have not seemed to help-but a low carb diet keeps him from vomiting most days. There is no cure yet for this--but at least we have a diagnosis.

The problem is that most people--even many medical specialists --do not understand what it is and how debilitating it is. It would be similar to having the flu every day and having to function with the rest of the world.
If you know someone with these symptoms--please--give them a break and help them get into a vestibular specialist! :o

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