Discussions By Condition: Medical Stories

I want my life back!!!!!!!!!

Posted In: Medical Stories 6 Replies
  • Posted By: grooveynan
  • June 15, 2007
  • 03:20 PM

:( My name is Hazel, I live in Scotland and have had Fibromyalgia for the past 10 years. For the last 3 years I have had groin, hip and leg pain moving into my foot, also sudden pain in buttocks then leg giving way. It is very painful to lie on my side in bed and walking is painful and difficult. I am not convinced its my Fibro and have had MRI Cat Scan various x-rays
and nerve conduction tests. No amount of pain killers ease pain and now I am going out of my head. Been told just to go and live with it. One doctor
gave the advice of; loose some weight, take plenty of exercise and relevent pain killers and I am sure you will find pain will go away. IF ONLY THAT WERE TRUE, but did what he asked and knew the outcome, NO CHAGE. Please please has any one had, or got, or know of anyone who has these symptems. If it is my Fibro how do I go on like this, I have no life?

Reply Flag this Discussion

6 Replies:

  • Hi Hazel,I would like to email you privately if thats ok.I,m Jane also from Scotland and was told i had 'fibromyalgia' 18 months ago.Its a wastebasket diagnosis and the NHS will offer nothing in the way of help.
    Anonymous 42789 Replies Flag this Response
  • dear hazel.... yes I have lived w/ this ***l for ten years as well. It did not start until I had twins and lost one and than I had to have neck surgury. the rtest is a LONG story.. I now havew severe colon problems.. parkinsons.. at 44 yrs of age and this wonderful fibro that is slowly killing me. I want tmy life back too! I can tell you if you can to swim - or atleast get into water... do massage therapy, and most of all walk everyday at a slow pace. if you sit then you just stay stiff. I do believe one day these ***n doctors are going to see we are not just crazy and there is a cause for this and we have suffered waiting for the cure.. hang in there ,,my email is sdollens@clearwire.net:( My name is Hazel, I live in Scotland and have had Fibromyalgia for the past 10 years. For the last 3 years I have had groin, hip and leg pain moving into my foot, also sudden pain in buttocks then leg giving way. It is very painful to lie on my side in bed and walking is painful and difficult. I am not convinced its my Fibro and have had MRI Cat Scan various x-raysand nerve conduction tests. No amount of pain killers ease pain and now I am going out of my head. Been told just to go and live with it. One doctorgave the advice of; loose some weight, take plenty of exercise and relevent pain killers and I am sure you will find pain will go away. IF ONLY THAT WERE TRUE, but did what he asked and knew the outcome, NO CHAGE. Please please has any one had, or got, or know of anyone who has these symptems. If it is my Fibro how do I go on like this, I have no life?
    Anonymous 42789 Replies Flag this Response
  • Hi Hazel, I had (past tense, really) severe basket case fibromyalgia for 16 years. Then one day I tried methlcobalamin. The fatigue started reducing within 5 minutes. Within weeks the burning muscle pain was gone, the tight muscles and spasms started reducing as did the knots and the 18 sore points. The sleep disorder was gone in a few days. I still wasn't able to grow new muscle until I started adenosylcobalamin 8 months later. I have writen up more of my experience on the long b12 thread and a new one with amazing b12 story in title. Good luck.
    Freddd 3576 Replies Flag this Response
  • :( My name is Hazel, I live in Scotland and have had Fibromyalgia for the past 10 years. For the last 3 years I have had groin, hip and leg pain moving into my foot, also sudden pain in buttocks then leg giving way. It is very painful to lie on my side in bed and walking is painful and difficult. I am not convinced its my Fibro and have had MRI Cat Scan various x-raysand nerve conduction tests. No amount of pain killers ease pain and now I am going out of my head. Been told just to go and live with it. One doctorgave the advice of; loose some weight, take plenty of exercise and relevent pain killers and I am sure you will find pain will go away. IF ONLY THAT WERE TRUE, but did what he asked and knew the outcome, NO CHAGE. Please please has any one had, or got, or know of anyone who has these symptems. If it is my Fibro how do I go on like this, I have no life?Jane from Scotland, yes please e-mail me from grooveynan.
    Anonymous 42789 Replies Flag this Response
  • hazel, did you try anything? so how are things going? i sure hope everything turn alright.
    luvlyme 4 Replies Flag this Response
  • please post a reply i have a relative with the same symptoms i would like to help him as well. i hope you sont mind replying
    medical 2933 1 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.