Discussions By Condition: Medical Stories

i need to know what is wrong

Posted In: Medical Stories 5 Replies
  • Posted By: jane yunana
  • June 17, 2008
  • 01:00 PM

i have lived with my legs swelling up everyday for like 12 yrs. they reduced when i lie down but start to swell up anytime i stand or sit. they can swell really bad, as big as my laps sometimes. they tend to swell less in cold weathers. i have gone to different hospitals and due to all the test i have done, there is nothing wrong. one doctor told me it was lymphedema but the thing is based on what i have read on it, there is no part that says the swollen part reduces and swells again contantly. my legs goes really down in the mornings but by noon it is already swollen badly again. im 18 now and im sick of seeing my legs swell for no reason like that. the legs makes me stressed out sometimes and i tired of it. i really need to know what is wrong.

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5 Replies:

  • Any difference between the legs?
    Felsen 510 Replies Flag this Response
  • yes. the left leg swells more than the right.
    jane yunana 2 Replies Flag this Response
  • The heart can be a cause to swelling in legs, but you are so young and also if the heart causes it, both legs are usually the same. Nevertheless have your heart been properly examined?If the heart has been ruled out, your blood circulation must be evaluated. Has it been done? They usually make an ultrasound of your legs and can’t find anything wrong. There is a condition called May-Thurner syndrome. It is when the right iliac artery compresses the left iliac vein against the spine. This causes the blood to congest in the left leg because it can not normally pass the compression on its way back to the heart. It deos not necessarily result in the pain at the compression site (if it does it gives a lower back pain), most often it causes pain or swelling or both, in the left leg, sometimes in both legs, but then always worst in the left. This condition is vastly underdiagnosed. It is impossible to discover with ultrasound and even difficult to discover with venography (phlebography). The only sure way to discover it is by means of intravascular ultrasound (IVUS) where the probe is inside the vein. The best research has been done by Neglén and Raju in Jackson, Miss. The treatment is to put a stent inside the vein at the site of the compression. The typical patient is a young – middle-aged woman, previously healthy where the doctors have not found other explanation for the symptoms. Are you in US? Could this possibly help? Best of luck, Jane!
    Felsen 510 Replies Flag this Response
  • i haven't heard of the syndrome before. im a nigerian in nigeria. thanks for the information. i will see what i can do. regards felsen
    jane yunana 2 Replies Flag this Response
  • Most of the doctors have never heard of it either. Good luck Jane!
    Felsen 510 Replies Flag this Response
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