Two and a half years ago my wife started complaining of pain in her bladder and the need to urinate all the time. We went to our doctor and he suspected interstitial cystitus (Sp.?) They gave her medicine for that and told her there was no cure and that she'd learn to live with it. Then pain started to spread to the tubes on her right side that go from the kidney to the bladder. After an ultrasound they diagnosed mild hydronephrosis which is caused by a blockage in the tube keeping the urine from passing properly EXCEPT there was no blockage...so they removed her ovary hoping that that would solve the problem. Nope, not at all, as a matter of fact it simply added hot flashes and chills that couldn't be controlled. Six months, many doctor visits and tests later she was diagnosed with moderate to severe hydronephrosis on both sides, but no blockage. Shortly after that, after passing out when taking my daughter to the doctor, an ER doctor checked her gall bladder and thought there might be stones. She had her gall bladder removed and the stones were found to be cancerous, but they were found early enough that she is deemed cancer free. This very rare type of cancer was only found because of all the other crap going on. She can't sleep without Ambien, she's taking Vicodin, Lyrica, Tramadol (not all at the same time.) but the pain is horrible. This week another doctor tried putting stents in to help her kidneys drain EVEN THOUGH THEY WERE DRAINING FINE. When they did the Cystoscopy, the doctor saw no hydronephrosis, but put the stents in anyway because my wife wanted SOMETHING done. Now she's in agony, it's been four days since the surgery and my wife is still urinating blood, she's urinating every hour and taking pain pills whenever possible. She's convinced her life is over as it's been getting worse and worse for over two years. It's affecting our family, our marriage and, as she put it, if she were a dog, they would put her to sleep. She is depressed, understandably, and I don't know what else to do.
We can't figure out A. How to treat the interstitial cystitis. B. Why she has so much pain in her kidneys when there doesn't seem to be a reason for it. C. Why, during all of this, a very rare gall bladder cancer would develop? I need someone to look at the whole picture, not just the symptoms which is all anybody wants to treat.
Please help us.
Thank you so much