Discussions By Condition: Medical Stories

I have chronic pains over 40 years!

Posted In: Medical Stories 7 Replies
  • Posted By: yelena234
  • September 27, 2007
  • 10:29 AM

I have chronic pains over 40 years!


Hello to all,

I have got with 16 years sinusitis maxill. (in the face) inflammation. It was second year, I went to the school by train. My fault was also, that I have walked on the rain without umbrella.
In that time I had no idea, that there is something more, than just sinusitis. With 25 years I was in abroad and went first time to one Neurologist. He didn't talk to much, he has seen on my face (strange swollen, totally different from my normal face) what is here going about. He gave me one injection on the place between neck and shoulder. My pains were over in 20 minutes. All pressure in the eyes and cheekbones disappeared. I felt, as some stone was away from my face. Also my look totally changed (I am studying all kind of pains, but something like that have never seen or heard). As I remember, diagnosis was:
TRIGEMINAL NEURALGIA.
For five years I was good. I came back to my country, forgot what Neurologist has told me. My pains came slowly back. I went again to ORL doctors. They wrote simple diagnosis: Rhinitis vasomotoria. I took many drops and pills. Each day was worse.
Twenty years ago I was in the ORL hospital and have got 5 diagnosis:

1. Sinusitis maxill.chr. cath.
2. Rhinitis chr.hypertr.et sicca anter
3. Pharyngolaryngitis chr. cath.
4. Cath. tub.chr.bilat.
5. Septi nasi deviatio (operated 1990, more pains after)

I have sent all those diagnosis to abroad, where are very good doctors. I have got answer, to find the cause.
1989 I have started with searching.

During all years, I have got more diagnosis:

1. Hypotireosis (1989)
2. Spondylarthrosis (both of them were not the cause) (1993)
3. Rhinosinusitis vasomotoria
4. Neuralgia Trigeminal, 1. 2. (3. and 4. wrote ORL doctor) (1994)
5. Atrophy, Head CT (1994)
5. Neuralgia Suprascapularis(1996)
6. Neuralgia Occipital (1998)
7. Enthesopatia levator scapula (1998), muscle should be injured!
8. Neuralgia Trigeminal, 1, 2. (2001 first time from the Neurologist)
9. 3 cm great areal sclerosis on the right Occipital, Head CT. Ganglion
Gasseri was ok. That means, my TN was atypical (nobody knows the
cause). Again Head Atrophy. (2001)
10. Benign tumour on the right shoulder joint (X-rays) (2004)
11. Vein, 10x11mm on the right side of the head, MRI (2006)

All those diagnosis didn't help to find the cause.
In-between time, from 1996 - 2002 I was by Chiropractors (Russian Neurologists and Orthopaedists). Neurologist was the best: he told me 1998, that muscle makes pressure on the nerve that is going into Sinusitis, and from Sinusitis I have Trigeminal Neuralgia.
He was here only two years. He did help me with injection on the same place, as Neurologist in abroad. This time only for 6 months.
Orthopaedists told me, I have Trigger Points on 6 places and they send pains all over head, neck, face and shoulder.

I have tried all possible kinds of therapies, also Alternative medicine. Most of them (also medical doctors) told me, all is from the neck muscles.

The last visit was strange: the man doing special kind of treatment told me, my Hypophyse is not good. There is nerve coming out and is the cause for the muscle and all else. My pains come behind right ear one part goes to the right eye and other part down to the shoulder. On that place is muscle always swollen. I am swollen in the face, as also bellow my chin (water in the lymph’s).
I have steady eyes (all, more right side), face and neck, back head, shoulder and top head pains. On the top of the head have feeling, as there is snake, also all around the head.
From 1998 until December 2000 there was help from two drugs: Sirdalud, 4mg and Tramal, 500mg. After that nothing: no drugs, no therapy and I had to leave my job, May 2001.
I have tried suicide more times. Was in different hospitals more times. Nobody did help me. I am very tired, sleepy and have to go to the bed at 8:30 pm.
In the morning take one drug for Thyroid.
During the day, since 2 years, drug from UK twice a day, with Hydrochloride (for decongestion of the mucous membrane).
In the evening: 1 x drug for sleeping, 1 x for Muscle spasm (Rivotril) and 1 x Naproxen.

Now, I don't know what to do? That way, I can't live.
Is anybody there with the same problems? Please, write to me.

Yelena







Forum: Tell us your medical story. Post New Thread

Reply Flag this Discussion

7 Replies:

  • I have chronic pains over 40 years! I have chronic pains over 40 years! Hello to all, I have got with 16 years sinusitis maxill. (in the face) inflammation. It was second year, I went to the school by train. My fault was also, that I have walked on the rain without umbrella. In that time I had no idea, that there is something more, than just sinusitis. With 25 years I was in abroad and went first time to one Neurologist. He didn't talk to much, he has seen on my face (strange swollen, totally different from my normal face) what is here going about. He gave me one injection on the place between neck and shoulder. My pains were over in 20 minutes. All pressure in the eyes and cheekbones disappeared. I felt, as some stone was away from my face. Also my look totally changed (I am studying all kind of pains, but something like that have never seen or heard). As I remember, diagnosis was: TRIGEMINAL NEURALGIA.For five years I was good. I came back to my country, forgot what Neurologist has told me. My pains came slowly back. I went again to ORL doctors. They wrote simple diagnosis: Rhinitis vasomotoria. I took many drops and pills. Each day was worse.Twenty years ago I was in the ORL hospital and have got 5 diagnosis: 1. Sinusitis maxill.chr. cath.2. Rhinitis chr.hypertr.et sicca anter3. Pharyngolaryngitis chr. cath.4. Cath. tub.chr.bilat.5. Septi nasi deviatio (operated 1990, more pains after) I have sent all those diagnosis to abroad, where are very good doctors. I have got answer, to find the cause.1989 I have started with searching. During all years, I have got more diagnosis: 1. Hypotireosis (1989)2. Spondylarthrosis (both of them were not the cause) (1993)3. Rhinosinusitis vasomotoria 4. Neuralgia Trigeminal, 1. 2. (3. and 4. wrote ORL doctor) (1994)5. Atrophy, Head CT (1994)5. Neuralgia Suprascapularis(1996)6. Neuralgia Occipital (1998)7. Enthesopatia levator scapula (1998), muscle should be injured!8. Neuralgia Trigeminal, 1, 2. (2001 first time from the Neurologist)9. 3 cm great areal sclerosis on the right Occipital, Head CT. GanglionGasseri was ok. That means, my TN was atypical (nobody knows the cause). Again Head Atrophy. (2001)10. Benign tumour on the right shoulder joint (X-rays) (2004)11. Vein, 10x11mm on the right side of the head, MRI (2006) All those diagnosis didn't help to find the cause. In-between time, from 1996 - 2002 I was by Chiropractors (Russian Neurologists and Orthopaedists). Neurologist was the best: he told me 1998, that muscle makes pressure on the nerve that is going into Sinusitis, and from Sinusitis I have Trigeminal Neuralgia. He was here only two years. He did help me with injection on the same place, as Neurologist in abroad. This time only for 6 months.Orthopaedists told me, I have Trigger Points on 6 places and they send pains all over head, neck, face and shoulder. I have tried all possible kinds of therapies, also Alternative medicine. Most of them (also medical doctors) told me, all is from the neck muscles. The last visit was strange: the man doing special kind of treatment told me, my Hypophyse is not good. There is nerve coming out and is the cause for the muscle and all else. My pains come behind right ear one part goes to the right eye and other part down to the shoulder. On that place is muscle always swollen. I am swollen in the face, as also bellow my chin (water in the lymph’s). I have steady eyes (all, more right side), face and neck, back head, shoulder and top head pains. On the top of the head have feeling, as there is snake, also all around the head.From 1998 until December 2000 there was help from two drugs: Sirdalud, 4mg and Tramal, 500mg. After that nothing: no drugs, no therapy and I had to leave my job, May 2001.I have tried suicide more times. Was in different hospitals more times. Nobody did help me. I am very tired, sleepy and have to go to the bed at 8:30 pm. In the morning take one drug for Thyroid. During the day, since 2 years, drug from UK twice a day, with Hydrochloride (for decongestion of the mucous membrane). In the evening: 1 x drug for sleeping, 1 x for Muscle spasm (Rivotril) and 1 x Naproxen. Now, I don't know what to do? That way, I can't live. Is anybody there with the same problems? Please, write to me. Yelena Forum: Tell us your medical story. Post New Thread http://forums.wrongdiagnosis.com/images/buttons/reply.gif
    yelena234 5 Replies
    • October 4, 2007
    • 11:22 AM
    • 0
    Flag this Response
  • Sorry, my reply has disappeared. I want to explain, that my pains look like drilled pain, like a top of the knife behind right ear. From there is one branch going to the right eye, another one down to the scapula (muscle). Why is that, there could be four reasons: 1. On the occipital right, I have end of the muscle: levator scapula?2. There is areal sclerosis, 3 cm (Head CT)?3. There is also Vein, 10x11 mm (Head MRI)?4. I was told last month, that there is the first neck nerve or nerve coming from Hypophyse? Something from those four things makes compression on the nerve, going to the right eye and scapula. It is very painful. When I feel pain in the eye, at the same time my face becomes swollen (my look changes). Yelena
    yelena234 5 Replies
    • October 4, 2007
    • 11:33 AM
    • 0
    Flag this Response
  • You don't give your age and onset of age.There are two conditions which can also cause these symptoms. They usually appear together. Giant Cell Arteritis and Polymyalgia Rheumatica. GCA usually affects the elderly but can occur at a younger age.Do some research and see if the GCA might fit the bill.
    Anonymous 42789 Replies
    • October 7, 2007
    • 03:28 AM
    • 0
    Flag this Response
  • Hello, Thank you for reply. If you count, that I was five years OK, plus all this, then you come to my age.The only plus is, that I look much younger, than I am on the paper. Of course then, when I have no pains. I am trying to find somebody, who has the same, because only such a person can understand me. Doctors didn't have something like that, so I am big Enigma for all. I should go to some Research Labour, maybe they could find something new and is good for them to know, that even somebody like me, exists.I will try to do that, you recommend to me. Kind regards,Yelena
    yelena234 5 Replies
    • October 8, 2007
    • 07:50 AM
    • 0
    Flag this Response
  • Hello,Thank you for reply. If you count, that I was five years OK, plus all this, then you come to my age.The only plus is, that I look much younger, than I am on the paper. Of course then, when I have no pains.I am trying to find somebody, who has the same, because only such a person can understand me. Doctors didn't have something like that, so I am big Enigma for all. I should go to some Research Labour, maybe they could find something new and is good for them to know, that even somebody like me, exists.I will try to do that, you recommend to me.Kind regards,YelenaSorry, i hope there is nothing wrong if i answer her in our language. I assume i have the same disease and treating it well. Just wanna be helpful. thx.Yelena, predvidevam da imam isto vrsto neuralgije. Traja leto in pol, vendar jo dokaj uspešno zdravim zadnjih 8 mesecev. Trikrat sem bila na nekih manjših operacijah v Avstriji (nekatere pri nas ne delajo, na druge je treba čakati, cena je zelo ugodna). Odvisno od bolnika in stopnje bolezni je nekih 7 vrst zdravljenja; jaz sem trenutno pri četrtem koraku in predvidevam, da bo potreben še peti - stvar je v tem, da ni priporočljivo preskakovati. Kakorkoli, zdravje in kvaliteta življenja se mi je bistveno izboljšala po posegih. Kakršnakoli zdravila pri meni skoraj niso delovala (Sirdalud in Tramal), edino kar je omogočilo relativno znosnost so bile injekcije (v povprečju dvakrat na teden). Na srečo sem našla izjemnega dohtarja na Ptuju, ki je edini že kar takoj ugotovil kaj je narobe in mi uspešno predpisuje zdravljenje (prej bila pri kakih 10 specialistih na Kliničnem, v Celju, privat, tudi neke manualne pizdarije, vendar se nobenemu ni niti sanjalo kako pomagati, niti nikoli ni bilo bolje.Svoje telefonske številke na forum raje ne dajem, svetujem ti da se obrneš na dr. Vrabl-a na Ptuju (preveri na internet straneh) - če kdo, potem ti bo on pomagal pri tvoji bolezni. Mojo telefonsko številko lahko dobiš pri njemu oz sama pusti svojo ali svoj email tu. Upam, da boš problem rešila, jaz sem na dobri poti. lp.sasa
    Anonymous 42789 Replies
    • October 20, 2007
    • 06:02 PM
    • 0
    Flag this Response
  • Halo Sasa, Oprosti, da nisem prej odgovorila. Zdaj zapiram ta moj email naslov, ker mi je prinesel dosti nesrece. Glede nevralgije jaz moram zdraviti misico takoj desno ob vratni hrbtenici, katera pritiska na zivec ki gre v sinuse. Od tega me boli zivec trigeminus. Za razliko od ostalih, mene vedno boli.Ce ves kaj je Levator Scapula misica in kje je? Lep pozdrav in hvala ti za nasvet. Yelena
    yelena234 5 Replies Flag this Response
  • Hello blaze, I have blocked neck muscles, there is just on the right side down right one muscle, levator scapula that is always swollen and very hard. Many people, doctors als also alternative (one man - alternative) told me already 1985 that I have wrong muscles. When he gave me therapy on both shoulder blade muscles (magnet therapy) the right was after half a hour totally black and left was red. The question is from where is that muscle so hard and swollen? Now I am busy with muscles and neuralgias, before with sinusitis. I am too tired. Thank you for care,Yelena
    yelena234 5 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.