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I FEEL LIKE I'M DYING! CRONIC FATIGUE & HEADACHES Only diagnosis been Hypothyroidism?

Posted In: Medical Stories 3 Replies
  • Posted By: sharni07
  • February 25, 2009
  • 04:20 AM

I am soooo tired, my whole body aches, the headaches are constant and even getting up to fetch a drink or go to the shops is a HUGE task for me and totally wipes me out! :mad:

I was diagnosed hypothyroid in Spet 2008 with a TH of 5.2 and was put on 25mg of levothyroxine. I had all symptoms most cronic being extreme fatigue, headaches, nausea, cramps and depression.
I was also put on 20mg citalipram which is gr8 and lifted the depression within weeks, although I still get down it has helped loads. After a few months the cramps and headaches and other symptoms got better too all except the fatigue that is. My last blood test was in December and my TH has gone down to 2.5 now but since January I have suddenly become much worse, the fatigue is unbearable, I am having dizzy spells and headaches suddenly returned and are daily and can last hours, I just know something is not right, I feel like I am dying and I don't know what to do? I have other symptoms too, constant bouts of backache, tummyache and an ear infection in my right ear which I have had now 18months and flares up when I am feeling my worst, the only relief from this is my Bensol ear drops which I have been on since the first occurence.
It was hard enough getting my GP to even diagnose my thyroid problems and when I explain how awful I feel I just get told to excercise more or it is implied I am lazy which is so not true, I would LOVE to be able to do more and am dying to go back to work but with no energy and the headaches there is no chance.

WHAT IS WRONG WITH ME?? :mad::confused:

I am always falling asleep which has got me into trouble, nothing wakes me once I derop off, I sleep if not through tiredness but because it's the only way to eliviate the headaches which are dibilitating at times! I feel so alone and like there is something much bigger going on than just an underactive thyroid!
I have been ill 18months, on treatment 6 months but the last 8 weeks I feel worse than I have ever felt in my life and the fatigue has never gone, it's getting worse now by the day, so much so I can hardly function!
Yet my TH level has gone down, I just don't get it, why have I no energy at all? Why the constant pain and headaches?
Please if anyone can help or has any idea's I would be so so grateful for some advice please?
I am lost as to what else I can do.

Thanks in advance.

Sarah x :confused:

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  • Hi Sarah, I was in your shoes about 4 years ago. Although I had intestinal issues as well. The symptoms of hypothyroidism varies greatly. Some people will feel great with a TSH of 5.5 and some (like me and you) will feel awful. My symptoms started when my TSH was only 2. At the time I didn't understand that my symptoms were caused by my thyroid, nor did my doctor. I felt awful for the next 9 months, because that is how long it took for my TSH to reach my labs the upper limit of 4,3. As soon as I had crossed the border, my doctor put me on meds. I felt a little better, but far from normal. On meds your TSH should be around +/- 1, so I think you should talk to your doctor about it. You might need to up your meds. You don't mention if you have antibodies. I know that antibodies can cause very sharp swings in your TSH levels, so if you do have them, you are going to need to be tested often until things slow down. If your TSH goes to low that you would get dizzy, have nausea and headaches. If your thyroid problems are autoimmune (caused by antibodies) then it could also be that your symptoms are related to another autoimmune condition. Some people often have more then one autoimmune disease. I also had my vitamin D tested. It turned out that I was very low (18 or so, with 25 as the lower limit). I was told to eat fat fish and eggs and that it would be fine. Anyhow, I decided to start taking vit. D and calcium (since calcium aids the bodys uptake of vit d.) And about a month into it I noticed my depression and horrible mood swings were gone with the wind. I now take my vit. d all year round, but less during the summer months and I always make sure I am tested around the end of June to make sure I am not getting to much. Also.. if you are not getting the help you need from your GP then you need to find a new one that has your best intrest at heart. Kiera You mention nausea and cramps as a symptoms as well. I had both and they were gone as soon as my TSH levels were back to normal.
    Anonymous 42789 Replies
    • February 25, 2009
    • 07:11 AM
    • 0
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  • Thank you Kiera for taking the time to write back to me, it's nice to know I am not going crazy nor am I alone as you feel so issolated with this condition. I hope I can get well soon, I have 3 kids to look after and have to admit I am doing an awful job these days as I have so little energy to do the most basic things with them, it breaks my heart, I am only 31 and should be full of energy but I feel more like a 90yr old. :rolleyes: I shall take what you say on board and tell my GP, not that she will listen but I can hope. Thanks again. xx
    sharni07 1 Replies
    • February 25, 2009
    • 08:54 AM
    • 0
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  • Have you ever seen someone who specializes in Chronic Fatigue Syndrome, or even a specialist in Thyroid problems. Personal experience for me anyway has shown you have to see Doctors who specialize in certain areas not just general GP's.I hope you find the causexx Samantha http://www.undiagnosedillness.org
    Anonymous 42789 Replies
    • February 26, 2009
    • 01:02 AM
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