Discussions By Condition: Medical Stories

I feel like I am going to die. Please help me

Posted In: Medical Stories 12 Replies
  • Posted By: Ballad7
  • February 26, 2010
  • 09:32 AM

Hi everyone.

I am new to this forum in regards to registering but I have read over it for months. I am 27, male.

I have been diagnosed with Fibromyalgia as of about a year ago. I do not agree with this disagnosis and sometimes it is so scary I feel like I am going to die (quite literally).

I have dealt with a lot of pain in my life. I know it can be unbearable and make you feel like you want to jump from a bridge but this is not the type of thing I am feeling.

Its like I am getting so weak, that I get this weird extreme pain inside of my bones, and it feels like my body is going to collapse and I am just going to die.

I am so nervous right now because I have my good weeks and my bad weeks, and this just happens to be a terrible week. I really am more or less trying to reach out to somebody and to find out if they have heard anything common or simliar. Even to write this, its like its draining every last bit of my soul, and I do not even have the energy to keep on typing these words. I feel so weak, and frail, and almost like i have a 110F degree fever (which I checked my tempature and its 98.7) but I dont. I am hopeless. I have told my doctors of this, and they keep on trying me on different medications (Cymbalta, Elavil, Lyrica and now the newest Toporal). None of these medications have helped, infact it feels like they make it worse.

I honestly feel like any second I am going to collapse. I get out of bed, I cannot think clearly. I can barely move, I am so stiff, it is unbearable. I feel like I have been hit by train every day, and I should be in a body cast. Not only that - I honestly just feel like I am running a 110F fever and I am just going to collapse. Its like I am forcing myself to stay up during the day, and the whole time my body is pushing itself down.

I cannot go on another day like this. I dont know what to do, or where to start for help. I have been tested for everything from head to toe and all my tests come up normal, thus being Fibromyalgia. Well if this is supposedly Fibro why in the **** are NONE of these medications helping me. Do people with this condition really suffer like me?

I know this entire post probably makes no sense from beginning to end, but if someone could please reach out and help me or talk to me and let me know if this is common with fibro or other possiblities of what it could be, I would be more than greatful. Thanks

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12 Replies:

  • II have been diagnosed with chronic fatigue and fibromyalgia for 15 years and have just recently been made aware it might be due to low b12. Get tested. They will probably say 200 and above is good.Apparently this is not true. check out the sites on b12. Also you need to be checked for problems with the thyroid and adrenal gland hormones. Also ferritin levels. Complete blood count with differential. Also, of course, a complete metabolic panel. Find out what has been done and what hasn't.If your doctor wonn't do what needs to be done, switch doctors. I know this is easier said than done. Just keep at it as best you can because no one else is probably going to do it for you, or make it easy. This is terrible, I know, but you have to keep trying.
    Anonymous 42789 Replies
    • February 28, 2010
    • 03:49 AM
    • 0
    Flag this Response
  • Hi everyone. I am new to this forum in regards to registering but I have read over it for months. I am 27, male. I have been diagnosed with Fibromyalgia as of about a year ago. I do not agree with this disagnosis and sometimes it is so scary I feel like I am going to die (quite literally). I have dealt with a lot of pain in my life. I know it can be unbearable and make you feel like you want to jump from a bridge but this is not the type of thing I am feeling. Its like I am getting so weak, that I get this weird extreme pain inside of my bones, and it feels like my body is going to collapse and I am just going to die. I am so nervous right now because I have my good weeks and my bad weeks, and this just happens to be a terrible week. I really am more or less trying to reach out to somebody and to find out if they have heard anything common or simliar. Even to write this, its like its draining every last bit of my soul, and I do not even have the energy to keep on typing these words. I feel so weak, and frail, and almost like i have a 110F degree fever (which I checked my tempature and its 98.7) but I dont. I am hopeless. I have told my doctors of this, and they keep on trying me on different medications (Cymbalta, Elavil, Lyrica and now the newest Toporal). None of these medications have helped, infact it feels like they make it worse. I honestly feel like any second I am going to collapse. I get out of bed, I cannot think clearly. I can barely move, I am so stiff, it is unbearable. I feel like I have been hit by train every day, and I should be in a body cast. Not only that - I honestly just feel like I am running a 110F fever and I am just going to collapse. Its like I am forcing myself to stay up during the day, and the whole time my body is pushing itself down. I cannot go on another day like this. I dont know what to do, or where to start for help. I have been tested for everything from head to toe and all my tests come up normal, thus being Fibromyalgia. Well if this is supposedly Fibro why in the **** are NONE of these medications helping me. Do people with this condition really suffer like me? I know this entire post probably makes no sense from beginning to end, but if someone could please reach out and help me or talk to me and let me know if this is common with fibro or other possiblities of what it could be, I would be more than greatful. Thanks Hi Balad, It could very possibly be active b12 deficiencies. Fibromyalgia gives every appearance of being a stealth b12 deficiency disease. I used to have it and am cured now. Read the first link first and them over to the second link to discuss it. http://forums.wrongdiagnosis.com/showthread.php?p=219517#post219517 http://forums.wrongdiagnosis.com/showthread.php?p=219519#post219519
    Freddd 3576 Replies Flag this Response
  • Hi I was trying to see if I could get some advice from Fredd.I have had gastritis for around 7 months now and have been on a very limited diet (cannot digest any meat, dairy etc) Lately I have developed constant vertigo and now pins and needles, numbness, clumsiness, depression etc. I have had an mri, ct which showed nothing (no MS).I know that these are all the symptoms of B12 deficiency so I took 1000mcg b12 (cyno). I started to feel really sick - I felt like me system was on overdrive and really fast. I couldn't sleep , felt really nauseaus, confused and really fatigued and clumsy. I have hashimotos thyroiditis but my levels are alway normal.I am confused why B12 would have caused this reaction. Does this mean that I do not have b12 deficiency? My doctor will not test for it - so I will have to find a new one.Just wondering if you could shed some light on this?
    Anonymous 42789 Replies Flag this Response
  • Hi I was trying to see if I could get some advice from Fredd. I have had gastritis for around 7 months now and have been on a very limited diet (cannot digest any meat, dairy etc) Lately I have developed constant vertigo and now pins and needles, numbness, clumsiness, depression etc. I have had an mri, ct which showed nothing (no MS). I know that these are all the symptoms of B12 deficiency so I took 1000mcg b12 (cyno). I started to feel really sick - I felt like me system was on overdrive and really fast. I couldn't sleep , felt really nauseaus, confused and really fatigued and clumsy. I have hashimotos thyroiditis but my levels are alway normal. I am confused why B12 would have caused this reaction. Does this mean that I do not have b12 deficiency? My doctor will not test for it - so I will have to find a new one. Just wondering if you could shed some light on this? Hi Unregistered, You ought to register and read the threads I linked to. The second one read from the back end because the front end is 3 years old and out of date. It's hard to tell with cyanob12 what is going on. Some people react to cyanob12 because they can convert it and have a reaction to the active b12s that indicates deficiency. On the other hand cyanob12 will make some people sick because it is CYANOb12. It is the worst possible type of b12 to take for b12 deficiency, With the overdrive effect it may very well have converted to a tiny amount of active b12. That would mean you are extremely deficient. In which case you will have startup symptoms like that for any kind of b12. That also means that in order to heal you will have to go through a period of startup reponses like that while b12 builds up in your system. As you need other factors as well as b12 to do this effectivley and safely, read http://forums.wrongdiagnosis.com/sho...517#post219517 and come over to http://forums.wrongdiagnosis.com/sho...519#post219519 to post questions and discuss. If it is b12 deficiency in a few months you will start feeling a lot better.
    Freddd 3576 Replies Flag this Response
  • Hi everyone.
    septemberangel17 2 Replies Flag this Response
  • Hi everyone.BALLAD 7 YOU NEED TO CALL ME AT 702 277 2766. I am ecxactly like you. I am too weak to type. JUST CALL
    septemberangel17 2 Replies Flag this Response
  • Hi, I had several of the same symptoms. After consulting several specialists, I was told that I had liver infection - which causes a bunch of body malfunction, including memory, disiness, headacks, low to no energy (to walk or speak was almost impossible, trying to explain the symptoms to a Dr are next to impossible). In order to solve and increase my energy - I am taking the following: 5-htp; bee propolis; adrenal; black radish; B-12, Zinc and vitamine C. I also take every opportuniy to take in the sun -vit D. After hearing from my Dr., what do you want me to do, and thinking that I would not live to the following week, I consulted a naturopathe. It's been 6 weeks - I can think and write to you today. In addition, I have gotten an acupuncture treatment this week. The same evening I felt 10 years younger. A year ago, I was not taking any vitamins, nor was I a beliver in natural /soft medicine (after all I did do my first year of pre-med in University). I am 39 yrs old women, who is not seeing light at the end of the tunnel.All the best,
    Anonymous 42789 Replies Flag this Response
  • Hi, I had several of the same symptoms. After consulting several specialists, I was told that I had liver infection - which causes a bunch of body malfunction, including memory, disiness, headacks, low to no energy (to walk or speak was almost impossible, trying to explain the symptoms to a Dr are next to impossible). In order to solve and increase my energy - I am taking the following: 5-htp; bee propolis; adrenal; black radish; B-12, Zinc and vitamine C. I also take every opportuniy to take in the sun -vit D. After hearing from my Dr., what do you want me to do, and thinking that I would not live to the following week, I consulted a naturopathe. It's been 6 weeks - I can think and write to you today. In addition, I have gotten an acupuncture treatment this week. The same evening I felt 10 years younger. A year ago, I was not taking any vitamins, nor was I a beliver in natural /soft medicine (after all I did do my first year of pre-med in University). I am 39 yrs old women, who is not seeing light at the end of the tunnel. All the best, Hi Lookingtobehealthy, There are two brands of methyb12 that are far superior to any of the other tested brands of mb12. Also these 5 star methylb12 sublinguals are 100 to 10,000 times as effective as cyanocoblamin or hydroxycobalamin. Further their effectiveness is enhanced considerably by taking Metafolin (an active folate unlike folic acid) and certain other cofactors. A 5 star mb12 and 5 star adb12 can knock your socks off with greater effectiveness and promotes rapid healing and improved immune function for many people. Register and get a name and come over to http://forums.wrongdiagnosis.com/showthread.php?p=232901&posted=1#post232901 for more information and discussion of natural active b12s and cofactors.
    Freddd 3576 Replies Flag this Response
  • My friend you don't have to be disappointed because there is treatment available for every diseases you have to consult the doctor ...
    Anonymous 42789 Replies Flag this Response
  • I deeply sympathize with you. I'm 29 years old. Just after my 22nd birthday I came down with a severe flu. I collapsed that day & had to go to the ER. Ever since then I have been weak, dizzy, feeling like I'm going to faint, constantly exhausted, & constantly sick. The first year I was basically in bed. I now struggle every day just to do every day things. I can't exercise at all. I have been diagnosed with chronic fatigue, however, I do not accept this diagosis either.
    Anonymous 42789 Replies Flag this Response
  • First - PRAY! I have heard some about fibromyalgia because my mom was diagnosed with it. I have been too - just can not afford to go to the Dr. My mom has tried Lyrica and Elavil. They both have helped. Everyone is different - you probably need a different type of medicine. These medicines may be what is making you feel tired and sleepy. Have you tried a chiropractor? They are of great help also. My prayer is that you will feel better soon. Read as much as you can on this illness. Knowing about it should make you feel in better control. God bless!Hi everyone. I am new to this forum in regards to registering but I have read over it for months. I am 27, male. I have been diagnosed with Fibromyalgia as of about a year ago. I do not agree with this disagnosis and sometimes it is so scary I feel like I am going to die (quite literally). I have dealt with a lot of pain in my life. I know it can be unbearable and make you feel like you want to jump from a bridge but this is not the type of thing I am feeling. Its like I am getting so weak, that I get this weird extreme pain inside of my bones, and it feels like my body is going to collapse and I am just going to die. I am so nervous right now because I have my good weeks and my bad weeks, and this just happens to be a terrible week. I really am more or less trying to reach out to somebody and to find out if they have heard anything common or simliar. Even to write this, its like its draining every last bit of my soul, and I do not even have the energy to keep on typing these words. I feel so weak, and frail, and almost like i have a 110F degree fever (which I checked my tempature and its 98.7) but I dont. I am hopeless. I have told my doctors of this, and they keep on trying me on different medications (Cymbalta, Elavil, Lyrica and now the newest Toporal). None of these medications have helped, infact it feels like they make it worse. I honestly feel like any second I am going to collapse. I get out of bed, I cannot think clearly. I can barely move, I am so stiff, it is unbearable. I feel like I have been hit by train every day, and I should be in a body cast. Not only that - I honestly just feel like I am running a 110F fever and I am just going to collapse. Its like I am forcing myself to stay up during the day, and the whole time my body is pushing itself down. I cannot go on another day like this. I dont know what to do, or where to start for help. I have been tested for everything from head to toe and all my tests come up normal, thus being Fibromyalgia. Well if this is supposedly Fibro why in the **** are NONE of these medications helping me. Do people with this condition really suffer like me? I know this entire post probably makes no sense from beginning to end, but if someone could please reach out and help me or talk to me and let me know if this is common with fibro or other possiblities of what it could be, I would be more than greatful. Thanks
    Anonymous 42789 Replies
    • October 22, 2010
    • 01:59 AM
    • 0
    Flag this Response
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  • I deeply sympathize with you. I'm 29 years old. Just after my 22nd birthday I came down with a severe flu. I collapsed that day & had to go to the ER. Ever since then I have been weak, dizzy, feeling like I'm going to faint, constantly exhausted, & constantly sick. The first year I was basically in bed. I now struggle every day just to do every day things. I can't exercise at all. I have been diagnosed with chronic fatigue, however, I do not accept this diagosis either. It could very possibly be active b12 deficiencies. Fibromyalgia and chronic fatigue gives every appearance of being a stealth b12 deficiency disease. I used to have it and am cured now. I have fully recovered from both. I used to be where you are at. No longer.Read the first link first and them over to the second link to discuss it.http://forums.wrongdiagnosis.com/sho...517#post219517http://forums.wrongdiagnosis.com/sho...519#post219519 It could very possibly be active b12 deficiencies. Fibromyalgia gives every appearance of being a stealth b12 deficiency disease. I used to have it and am cured now.Read the first link first and them over to the second link to discuss it.http://forums.wrongdiagnosis.com/sho...517#post219517http://forums.wrongdiagnosis.com/sho...519#post219519 Read more at http://forums.wrongdiagnosis.com/showthread.php?t=70850&ktrack=kcplink
    Freddd 3576 Replies
    • October 22, 2010
    • 06:49 PM
    • 0
    Flag this Response
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