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I can't get a diagnosis, please help!!!!!!!

Posted In: Medical Stories 11 Replies
  • Posted By: angie_don7745
  • May 24, 2007
  • 11:46 PM

Hello, I am a 29 yr old mother of 3 and I just recently had my third in October of '06. when I was in the hospital delivering, I had this tremendous PAIN in my hip bone... I never felt anything like that before!!Then the day I was suppose to go home which was the day after... I had a dizzy spell and diarhea. Then I was fine for a while, but I was PIGGING OUT!!!!! even when my littleman got up in the night for a feeding I was eating SOMETHING!! Then all of the sudden I had NO APPETITE for probably a week!! THey thought it was my BCP so I switched, Found out I was anemic... They put me on Iron tabs, didn't help made it worse. I felt hungry, but my stomach felt like it was too sore, and I wasn't really hungry for anything! They took me off the Iron pills and decided I had Post partum depression. I am now on sertraline (spelling error I'm sure) I felt good after taking them for a bit, but I still get days where I am NOT HUNGRY!! Nauseous, dizzy, I have lost weight unwillingly!!!! (I am 110lb average, now am 101) I am wrecking myself everyday wondering if I am going to pass out on my kids, gonna DIE, or what!!! I don't have any idea and noone else seems to either!!!!!! My physician is from a clinic and and she is an FNP. So I'm wondering if maybe she really doesn't know whats going on or what to be testing me for.... She has already tested me for diabetes, and gave me an upper GI... I was thinking maybe a tapeworm, bc i ate at a chinese restaurant in Atlanta, GA and got REALLY sick after!!!! maybe the food was contaminated... I JUST DON"T KNOW!!!!!! PLEASE SOMEBODY GIVE ME A CLUE!!!!!:confused:

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11 Replies:

  • DEAR ANGIE, SOUNDS' LIKE YOUR DR...HAS DONE SOME CORRECT TESTS SO FAR...I AM ON IRON PILLS FOR A HEALTH PROBLEM I HAVE...AND THAT STUFF IS ******n THE STOMACH. KEEP WORKING WITH YOUR DOCTOR ON THIS......MAYBE SERTRALINE...ISNT THE RIGHT ANTIDEPRESSANT FOR YOU?DID YOU PICK UP A VIRUS IN THE HOSPITAL WHEN YOU WERE IN FOR YOUR BIRTHING OF YOUR LAST CHILD.... I HAVE HEARD OF M.R.S.A. GOES AROUND HOSPITALS....(DON'T ASK ME WHAT EXACTLY IT IS VIRAL OR BACTERIAL....) BUT I DO KNOW IT CAUSES GASTRO PROBLEMS... BUT THE FACT YOU EAT EAT EAT...THEN DON'T EAT .....MAKES ME THINK...YOUR DR MIGHT JUST BE ON THE RIGHT TRACK OF POST PARTUM DEPRESSION.... IF SO, THIS IS NOT YOUR FAULTDEPRESSION IS A CHEMICAL IMBALANCE....OF SERETONIN IN THE BRAINAND THE FEMALE BODY GOES THROUGH HORMONAL CHANGES WHILE BEING PREGNANT....SO IT STANDS TO REASON....IT CAN DO IT AFTER DELIVERY. I TAKE SERTRALINE FOR CHRONIC DEPRESSION....AND I'M ON IT FOR LIFE....I FEEL IT IF I MISS A DOSE...NOW, MINE WASNT TRIGGERED BY HAVING A CHILD...BUT I DO HAVE DAYS WHERE I BINGE....AND OTHER DAYS ...IM NOT INTERESTED IN EATING..... HOW ARE YOU DOING WITH YOUR BREAST FEEDING.....IS IT TAKING ALOTOUT OF YOU THIS TIME? FROM WHAT I'VE LEARNED IN THE PAST...IF YOU WERE TO HAVE A TAPE WORM....YOU EAT ALL THE TIME.... KEEP SEEING YOUR DOCTOR....MEDICINE IS A PROCESS OF ELIMINATION GOD BLESS darbara1
    darbara1 2 Replies Flag this Response
  • OK, So here's a new one for ya!!! :) I went to the bathroom the other day and If I wasn't so paranoid about my stool I wouldn't have noticed, but when I was checking it out at the bottom there was what looked like to me... to be spaghetti... I did not eat that at all for a long time... no noodles nothing remotly close to being PASTA!! or stringy!!! I went to take the sample to my FNP and she had it tested... it took a WEEK to find out and she said it came back NEGATIVE and there was really nothing to worry about!!! :confused: now come on what could it have been??? Now my stool looks like GRAIN... WHite GRAIN!!! What is up with this... I mean ME!!!!! Should I get a second opinion? I mean obviously my stool is no longer available, so now what??? Oh please someone HELP!!!!!!!!!!!!!!:confused:
    angie_don7745 1 Replies Flag this Response
  • The symptoms that you mention could be methylb12 deficiency, or at least they are part of the 170 or so symptoms. The only real way to test this is to take some sublingual methylb12 of one of the more effective brands (2 out of 10 we tested). Taking a b-complex also is a good idea. For long term healing there are other cofactors but the methylb12 should let you know quickly, usually.
    Freddd 3576 Replies Flag this Response
  • The symptoms that you mention could be methylb12 deficiency, or at least they are part of the 170 or so symptoms. The only real way to test this is to take some sublingual methylb12 of one of the more effective brands (2 out of 10 we tested). Taking a b-complex also is a good idea. For long term healing there are other cofactors but the methylb12 should let you know quickly, usually. Angie, This is VERY IMPORTANT: Do NOT take any kind of B12 vitamin, methylcobalamin or cyanocobalamin or any other version, sublingual or injection until you get tested for this deficiency!!!! Sorry, Freddy! There is a nurse who wrote a book on B12 defiency that posts here. She recommends you have a few tests along with a few others to be sure. THEN: If your tests still come back in the noraml range (you must still be treated as deficient if the levels are low or if you have symptoms), you can try Freddy's suggestion. It won't hurt to have more B12. I don't know about the stool sample goof, but I know parasites can be very hard to detect in the stool. The grain thing...I'd get your stool retested, but it still may come back negative. ALSO: I think Fred suggested the B12 because YOU mentioned tape-worm. Tapeworm infestation is one of the causes of B12 deficiency. If you mentioned numbness, and neuro symptoms---this can be due to lack of B12 sometimes. B12 can also be caused by lack of "Intrinsic Factor" in the stomach, other absorption problems such as Chron's of gastric by-pass surgery, infection with h, pylori and other gastric infections. I will post the link you need to read here at WD next. I have a lot of your symptoms. Where was the hip bone pain located? Mine hurt ats the Iliac Crest of the hip. You will find the answer, possibly, if you look for similar symptoms as yours on this site. There are lots of posters like us with no answers from Doctors.
    Anonymous 42789 Replies Flag this Response
  • On the contrary V52. The longer one waits the more longterm or permanent damage can be done. If any of the tests could actually rule out b12 deficiency theyu might be useful. The AMA says that detecting b12 deficiency by testing is not cost efficient. Besides, the testing miss about 90% iof the peopkle who will have actuall improvement if they take the b12. Every research article that addressed the issue says "The ONLY DEFINITIVE test of whether b12 helps is to do a trial. I went 53 years undiagnosed by such attitudes. I was uninsurable because of the deficiency symptoms and could not afford the thousands of dollars of testing the docs wanted. I'd be dead now if I had been so foolish as to take the poor advice you are promoting. BY ALL MEANS TAKE IMMEDIATELY a methylb12 supplement and b-complex. Your response ithin hours will tell the story. Very very people have to wait months to see an effect with methylb12. For those that are truely functionally deficient the difference becomes apparant almost immediately. Methylb12 is a vitamin and has no known toxicities at any dose level. So the tests show that a person is deficient- outcome take b12tests don't show person deficient - outcome, take b12. Game theory says take the methylb12 ASAP to prevent further damage. Waiting is outright stupid. The results will speak far more loudly than thousands of dollars of non-definitive testing.
    Freddd 3576 Replies Flag this Response
  • Here is a list of related symptoms, symptoms and signs of individidual and combined methylb12, adenosylb12 and folate deficiencies. It's an interesting exercise to see how many of these a person has. While many of these symtoms have possible multiple causes, they also all have one "same cause". I was amazed to see that symptom lists for b12 deficiencies varied considerably from country to country. This is a combined list of all the symtoms from research done in many countries. There are still more to come.mouth sensitive to hot and coldsore burning tonguebeef-red tongue, possibly smoother than normalsore mouth, no infection or apparent reasonteeth sensitive to hot and coldburning bladder (no UTI)painful urgency (no UTI)burning urethra (no UTI)burning muscle painaccumulating muscle pains following exertionsore muscleslack of muscle recovery after exerciseexercise does not build muscledyspepsia - sick stomach, nausea, regurgitation, vomiting, bloating, not emptying, etcflatulencealtered bowel habits. abdominal pain loss of appetite for meat, fish, eggs and/or dairy foods, the ONLY foods containing b12 - nutrient specific anorexiaintermittent constipationintermittant diarrheairritable bowel syndromeCrohns disease (direction of causality if any not established)Celiac disease (direction of causality if any not established) - gluten sensitivityDairy sensitivity, lactose and/or proteins (direction of causality if any not established)Sores, ulcers and lesions along entire GI tract or any partreduced libido - loss of sexual desireloss of orgasmic intensity, unsatisfying orgasmsinability to orgasmloss and/or change of genital sensationunable to become arousedMENerectile disfunctionWOMENpost partum depressionpost partum psychosisFalse positive pap smearsmenstrual symptomspalenessrapid heart rateshortness of breathheart palpitationsweak pulsecongestive heart failureHypothyroid (direction of causality if any not established)psychosis, including many of the most florid psychosis seen in literature formerly known as megoblastic madnessirritabledepressionmaniadizziness - even unable to walkdeliriumdementiaparanoiadelusionshallucinationsmental slowingpersonality changeschronic malaisepoor concentrationmoodinesstirednessmood swingsmemory losslistlessnessanxiety or tensionnervousnessimpaired connection to othersmentally fuzzy, foggymild to severe fatigueeasy fatiguabilitysevere abnormal fatigue up to and including apparent paralysisweaknesssleep disordersnon restorative sleepalteration of touch all over body, can be unpleasantalterations and loss of tastealterations and loss of smellloss of smell and taste of strawberries specificallyroughening and increased raspiness of voice, can smooth in mid wordblurring of vision - can be sudden onset and sudden returndimmed vision - usually not noticed going into it because change can be very slow, or present for lifeVisual impairment can be seen; ophthalmological exam may show bilateral visual lossoptic atophycentrocecal scotomatadiminished hearing - gradual onset or present for life, sudden returntinnitus - ringing in earsalways feeling coldBrainstem or cerebellar signs or even reversible coma may occurneural tube defect not caused by folate deficiency or child with itdemyelinated areas on nervessubacute combined degenerationaxonial degeneration of spinal cordunsteadiness of gaitataxic gait, particularly in darkpositive Rombergpositive Lhermittesneuropathiesprogressive bilateral neuropathiesdemyelination of nerves - white spots on nerves on MRIsloss of details and sensual aspects of touch all over bodyparesthesias in both feet - burning, tingling, cobwebs, wet, hairs, pain, numbnessparesthesias in both legs - burning, tingling, cobwebs, wet, hairs, pain, numbnessparesthesias in both hands - burning, tingling, cobwebs, wet, hairs, pain, numbnessparesthesias in both arms - burning, tingling, cobwebs, wet, hairs, pain, numbnessLoss of position sense is the most common abnormality (or vibration sense)Loss of vibration sense is the most common abnormality (or position sense)hands feel gloved with loss of sensitivityfeet feel socked by loss of sensitivitytoes turn up instead of down in reflex to sole stimulationsudden electric like shocks/pains shooting down arms, body, legs shooting down from neck movementstanding with eyes closed, a slight nudge or bump causes loss of balancemost patients have signs of both spinal cord and peripheral nerve involvementMotor impairment may range from only mild clumsiness to a spastic paraplegiaclumsinessslowed nerve impulsesThe effect on reflexes is quite variabledecreased reflexesdifficulty swallowingbrisk reflexesdecreased deep tendon reflexPositive bilateral Babinski refleximpaired white blood cell responsepoor resistance to infectionseasy bruisingpronounced anemiamacrocytic anemiamegablastic anemiapernicious anemiadecreased blood clottinglow hematocritMCV > 94 first warning, MCV > 99 alertelevated LDHbig fat red cells (when said this way usually with happy or healthy modifying it, completely misinterpreting results)platelet disfunction, low countwhite cell changes, low countheadachesinflamed epithelial tissuesinflamed endothelial tissuesmucous becomes thick, jellied and stickydermatitis herpetiformis, chronic intensely burning itching rashfrequent infected foliculesSeborrheic dermatitisdandruffeczemadermatitisskin on face, hands, feet, turns brown, or yellow if anemia occurs.poor hair conditionpainfully tight muscles, especially legsfrequent muscle spasmsthin nailsBariatric surgeryDilantinrelative ever needing B12 shots or supplementsAS INFANT OR CHILDdelayed myelinationfailure to thrivedelayed speechdepressionfrequent toncilitis until removedfrequent strepfrequent pneumoniafrequent longlasting supposed viral illnesses that linger and linger and lingereverything goes to the lungs for months sometimesheadachesgrowing painsskin problemsdandruffallergiesasthma
    Freddd 3576 Replies Flag this Response
  • On the contrary V52. The longer one waits the more longterm or permanent damage can be done. If any of the tests could actually rule out b12 deficiency theyu might be useful. The AMA says that detecting b12 deficiency by testing is not cost efficient. Besides, the testing miss about 90% iof the peopkle who will have actuall improvement if they take the b12. Every research article that addressed the issue says "The ONLY DEFINITIVE test of whether b12 helps is to do a trial. I went 53 years undiagnosed by such attitudes. I was uninsurable because of the deficiency symptoms and could not afford the thousands of dollars of testing the docs wanted. I'd be dead now if I had been so foolish as to take the poor advice you are promoting. BY ALL MEANS TAKE IMMEDIATELY a methylb12 supplement and b-complex. Your response ithin hours will tell the story. Very very people have to wait months to see an effect with methylb12. For those that are truely functionally deficient the difference becomes apparant almost immediately. Methylb12 is a vitamin and has no known toxicities at any dose level. So the tests show that a person is deficient- outcome take b12tests don't show person deficient - outcome, take b12. Game theory says take the methylb12 ASAP to prevent further damage. Waiting is outright stupid. The results will speak far more loudly than thousands of dollars of non-definitive testing. I hear ya Freddy, loud and clear. However, health is not a "game"! I understand what you are saying, but it is quite possible ANGIE has something else of which B12 deficiency is only a PART of! Haven't you ever heard of placebo affect? Unless she has no insurance, no other options she must get tested 1st before treatment. Maybe her Folate is too high as B12 too low. Maybe she has Chron's or a gluten allergy causing a deficient B12. Maybe she has h.pylori bacteria in her stomach causing the deficiency. BTW, h. pylori has been found causal in stomach cancer! Sorry, Freddy, I understand where you are coming from, but if it is ONLY a B12 deficiency, she NEEDS THE TESTING: FOLATE, B12, HOMOCYSTEIN, and MMA! To be sure, Angie, ready Sally Polchak's threads on B12. ALSO, in many cases if you are unable to absorb B12 gastrically, then sublingual will not be enough! Injections are needed If this is the case. Angie, you could also have CFS/ME, Lyme or something else..... I am glad you posted the symptoms of deficient B12, Fredd...it will help, but I would errr on the side of caution of starting something without being tested 1st. Fredd, I understand the problem with Dr.'s and the "attitudes" you describe. You are not alone there. AND being uninsurable must be a constant worry if you have family and are their provider. Please read the threads by the RN, Sally Polchak and you will understand. So, what caused your B12 deficiency, Fredd?
    Anonymous 42789 Replies Flag this Response
  • Hi V52y boy, Let's consider the items you brought up, one at a time. First, many people have more than one thing going on at the same time, so I agree fully. As functional methylb12 deficiencies can cause more than 100 symtoms affecting every part of the body a wide spread of symtoms that may be looked at by the docs as 5-15 different disorders, until methylb12 and cofactors are actually taken for several months it is impossible to know what else is actually going on. Being deficient of methylb12 and adenosylb12 can bring more than 600 different biochemical pathways in every system of the body, to a grinding halt or force different biochemical pathways. Many of the biochemical and physiological abnormaties will change in the first 3-6 months. In 3 months many of the abnormal blood cells of many varieties will be normalized unless there is still a missing cofactor. Sleeping disorders of the kind cause by b12 deficiency will resolve. Half of the symtoms and signs may be gone completely. Deficient b12 is a limiting factor on imune system, nervous system, DNA replication for cell division. It causes abnormalities all over the place. Treating conditions with drugs that will resolve because of the methylb12 can be worse than useless. In the USA uninsured people die all the time in this country for lack of availabity of testing and treament. They are charged an average of 3 times as much for hospital services, tests and treament as insurance companies pay. Then, no matter what symtoms they have, injected b12 WON'T be paid for unless it can be justified by test results, generally. And for somebody like me who needs it daily, that is not in line with the "accepted practice" and so of course would be denied. Maybe you live in a country with a sane medical system. Back in the 50s the AMA declared that any effect felt from injecting cyanob12 was "placebo" because it tended to not be repeatable, for several reasons none of which were known then. However, methylb12 effects are repeatable over and over as long as the cofactors are given. It would be very easy to design a study that uses cyanob12 as the control placebo and the experimental group with methlb12. In fact a crossover design, double blinded, would be ideal. The results would be so clear that they would look faked. In fact the starting position could be only people that are already taking cyano or hydroxy b12 with 50-100 of the symptoms on the list above and then randomize into two initial groups and then after 6 months do the crossover. With b12 deficiency all sorts of gastro problems are caused by epithelial cell reproduction problems. It causes all sorts of inflamation and failure to heal. A month after starting the methylb12 and my gastro was healing, then it was easy to tell that dairy caused a problem. The same goes for gluten sensitivity, easily tested for dietarily if the gastro is otherwise able to function normally. As b12 deficiency also impairs immune function infections of all kinds easily result. Severe widespread b12 deficiencies causes so many symtoms that the noise level is very high obscuring other problems of other causes. Methylb12 deficiency symtoms can come on literally overnight going from lots of symtoms but funtional to complete crisis and nonfunctionality when that last critical microgram is lost from the body. When one has crossed that line going down, when methylb12 is started, things can start functioning again in minutes. In my experience and that of my children, anything like a vaccination, a cold, a physical injury, really any illness or injury ort maybe even high stress, can trigger a b12 crisis that may last months or years or decades. Methylb12 is possibly the most harmless substance known on this planet. It has no known toxicity at any level. It can be absorbed and used up to an optimim level and then the kidneys excrete any excess very quickly (serum halflife 20 to 50 minutes). The only know genuine adverse effects of methylb12, is to injections from multiuse vials and a reaction to the preservative. For hydroxyb12 and cyanob12 the same kind of injection reaction can occur, but it's not about the b12. Hydroxyb12 and cyanob12 also has a very few known allergic reactions to these non-active cobalamins. And cyanocobalamin has a special risk for those with a heriditary form of optic nerve problem as cyanide released around the optic nerve by cyanb12 kills the optic nerve. Methylb12 is used by almost all animal, bacterial and fungal life. Plants use a different set of cobalamins. Bacteria produce methylb12 which can be treated with cyanide to convert it to cyanob12. As to what caused my methylb12, adenosylb12 and methylfolate deficiencies, I would have to say "genetics" as my mother and maternal grandfather both had b12 deficiencies and received injections in the 50s. I have had a series of symtoms of b12 deficiency dating back to infancy starting with delayed myelenation and delayed speech. My children all have similar but not identical problems dating back to infancy and following the same path in their 20s. 1) I have a lack of absorbtion and reabsorbtion from bile of methylb12. It depletes to the point of deficiency symtoms starting up after 3 days off sublingual or a week off injections. There is no "buildup that should last 5-7 years". True for my children. 2) My first B12 crisis started after my first two weeks ever exposure to cyanob12. These both were discovered only in retrospect after doing a lifetime history and analysis. Whether cyanob12 actually causes me problems as compared to nothing is not certain. What is certain is that cyanob12 doesn't prevent or cure b12 deficiency symtoms in me. It would appear based on 50 years of empirical evidence that I can't convert cyanob12 to methylb12 or adenosylb12. True for my children. 3) I took methylb122 for 8 or 9 months before trying adenosylb12. It was WOW all over agin. This would not have been so if the adenosylb12 capacity had been fully recharged by methylb12. True for my children. One of the differences comes up here. I only need to take the adenosylb12 once a week or so, as long as I take methylb12, to maintain full effect, so obviously I am not loosing it at the same rate as the methylb12 or I do have some conversion for part of the need going on. One child needs it every day or she feels a difference. The other two need it about every 3 days. 4) Methylfolate makes some very noticable differences for me, and the 2 of my children who have tried it. The third one hasn't yet. So apparently we can't convert enough folic acid to methylfolate to prevent MCV of 99.6 even with ample methylb12. Also, we respond to SAM-E and trimethylglycine. This would indicate that we are part of the 50% of the population considered "low methylators". My children are currently all in process of testing l-carnitine fumarate. Since they all respond to the adenosylb12 that is used in the mito for energy production they might have further problems in that direction. While ALL of these various items were suggested by journal research in my readings, the exact variations that actually worked for me and my kids took some experimentation. Not all brands work the same. Not all variations of carnitine work the same. I've tried lots of combinations that didn't work too. And as far as sublingual absorbtion goes, it works great even for those with no gastric absorbtion. First, something like 5 to 10 % of a sublingual b12 (for certain brands only) appears to be absorbed through the mucosal surfaces in the mouth compared to the passive 1% of a person without intrinsic factor of a swallowed pill. One of the good sublingual tablets will completely outperform an injection of either cyanob12 or hydroxyb12, resulting in a higher net increase of methylb12 within minutes. A 1mg Enzymatic Therapy or Jarrow Formulas sublingual tablet will start taking effect within 5 minutes and can change a persons life in 1 hour because no conversion is needed. Since the same supplementation should be taken based on symptoms no matter what the results of serumb12, homocysteine, MMA and folate testing show, they are only needed to justify treatment to an insurance company. Any that remain abnormal after 6 months, as long as a good methylb12 was taken, methylfolate needs to be taken instead of folic acid. Sublingual is far more effective than oral. I think that the abysmal record of actually detecting and treating deficiencies with these tests speak for themselves. Most people should be taking the methylb12 20 years before any of the markers show up on testing. These are detecting only crisis level deficiencies, and only some of those. The 2% (AMA admitted figure) walking around with crisis level deficiencies are not being adequately detected by these tests much less people with no severe damage yet. After 3 weeks on methylb12 I walked into my paindoc's office. Everybody, from the person at the desk and a fileclerk, appoinments person, to my nurse and my paindoc could see a huge difference. This was more conslusive than any test could ever be. Response to methylb12 is a naked eye effect. It isn't so subtle and hidden as to need tests to indicate that something has happened. It is a blatent effect, the more severe the deficiency the more blatent the effect.
    Freddd 3576 Replies Flag this Response
  • B52 - You could have picked something a little more probable and indicative of problems than "high folate" which isn't dangerous and is merely above average. Optimum folate is going to show "high". I'm sure my b12 is off the scale high at this point. Those are meaningless results. Further with folate being lower than recommended in 80% of the population (USA) who is going to suffer form "high folate" unless that's meant as a reduction to absurdity. Taking a b-complex, A,D,E,C, zinc and sublingual methylb12 daily without testing is hardly dangerous advice. If many of these people had been doing that in the first place they would not have all these deficiencies signs and illness now. You notice that nobody here is complaining of scurvy, beri-beri, rickets (OOPS, that one is making a big comeback) or a lot of other deficiency diseases. It's gotten down to the two most subtle, folate and methylb12/adenosylb12. The folate has gotten attention because of neural tube defects. In the USA after supplementing white flour with folic acid, the neural tube defect rate dropped 27%. After a while they will find that they can drop it again like that with methylb12. After that they will find the methylfolate. Give them another 50 years. I couldn't afford to wait another 50 years for somebody else to solve my problem; 30 years of my life were flushed down the drain waiting for them to solve it in the first place. I think that was ample opportunity. I couldn't wait any longer. Not being blinded by a belief system about how cyanob12 is really the real thing I could see all the evidnece and I didn't have to convince an insurance company to let me live and heal.
    Freddd 3576 Replies Flag this Response
  • Well.....I see, Fredd.:) I would like to "chat" more about this as I do have some questions for you. I feel bad using Angie's post to do that. I'll start a new thread, if you'll please look for it. Briefly, I have a few things: 1) Rather than saying "high folate" as a problem, I meant that a high folate or increase in folate consumption can mask a b12 def. For some reason some Dr.'s erroneously only test b12 via folate(?), Yes, "high" folate is optimal. 2) You know way more about this than I do (though I will learn)! :o 3) When you originally stated "The only real way to test this is to take some sublingual methylb12" seem very biased to me and was the main focus of my 1st answer. more later on that. 4) My sister had an anencephalic baby. :( Full anencephally. So Fredd, you are the master I am the student. My apologies.
    Anonymous 42789 Replies Flag this Response
  • Dear angie, it must not have been easy on you. i don't know if everything worked out ok. but i wanted to say that it's never bad to have a second opinion, if one doctor can't give you a diagnosis, then try another just to be sure..
    luvlyme 4 Replies Flag this Response
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