I timed out and lost everything written in the first version of this message. My balance is bad, my legs give out and I'm getting pressure behind my eyes almost everyday now. I'm not one to get headaches until recently.
Since I don't want to time out and lose all this again, I'll try to be short.
It started with a slight loss of balance, progressed to jerking backward as if I lost my balance, to my legs collapsing without warning. My neuro has sent me to various specialists and I think I've had almost every procedure which can be done. MRIs showed spurring in my neck, a pinced nerve, compression fractures, (surgeon said Schmores (sp) node because of soft bones from osteopenia. I, also, have arthritis in my lower back, asthma, trouble with a fuzzy, round spot in both eyes at times, obstructive sleep apnea and hyperreflexia. I had a nervous breakdown over 10 years ago, and cut for a few months but haven't in about 9 years.
It's gone to sometimes violent spasms now, fortunately they're more frequent with the pressure behind my eyes and leaves completely when the pressure does.
I'm using a cane or walker or the wheelchair to get around, depending on the day and the spasms are bad enough they're occuring when I drive so I've had to stop that. I'm afraid I'm not going to be able to stay alone while my husband works before long.
The strange thing about all this, I get intervals of a few days to a few weeks, where I have almost no symptoms at all. Unfortunately, when they return, they're worse.
Any thoughts? I can answer any other questions you have about what's going on.
My frustration level, after 5 years of tests and still no diagnosis, is high. I would like to walk to the post office again and ride my bike.
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