Discussions By Condition: Medical Stories

husband says "snap out of it"

Posted In: Medical Stories 8 Replies
  • Posted By: mimih1
  • April 6, 2008
  • 08:24 PM

I wish I could; I wish it were that simple. I've always been a positive person with lots of energy. That sure has changed! Things have been getting steadily worse over the past few months. All I want to do is sleep...I can't begin to explain the fatigue. Most of the time I feel like I have cement blocks tied to my arms and feet. I'm also having trouble with balance (no dizziness--my legs just "give out" on me). Other symptoms include: blurred vision, headaches, weight gain, chronic hives, numbness and tingling sensations in bottom of feet, muscle cramps (mostly at night), muscle stiffness...I think I'll stop here. I might get slightly depressed reading my own symptoms if I'm not careful! HA! I've already been diagnosed with a thyroid condition and Sjogren's. Local drs did an MRI last month to check for MS but no lesions were evident. Have an appointment with rheumatologist in Atlanta next month. I'm thinking fibromyalgia. I'm to the point where I just want to know.

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  • Are you taking your thyroid medicine? You need to get checked for diabetes, too. You need a "snappy" retort for your rude husband. Can't think of one right now.
    Monsterlove 2921 Replies Flag this Response
  • I wish I could; I wish it were that simple. I've always been a positive person with lots of energy. That sure has changed! Things have been getting steadily worse over the past few months. All I want to do is sleep...I can't begin to explain the fatigue. Most of the time I feel like I have cement blocks tied to my arms and feet. I'm also having trouble with balance (no dizziness--my legs just "give out" on me). Other symptoms include: blurred vision, headaches, weight gain, chronic hives, numbness and tingling sensations in bottom of feet, muscle cramps (mostly at night), muscle stiffness...I think I'll stop here. I might get slightly depressed reading my own symptoms if I'm not careful! HA! I've already been diagnosed with a thyroid condition and Sjogren's. Local drs did an MRI last month to check for MS but no lesions were evident. Have an appointment with rheumatologist in Atlanta next month. I'm thinking fibromyalgia. I'm to the point where I just want to know.I know its not easy to cope with all this. One thing that can really help you is Yoga, believe me it will help you in almost all your symptoms. Dont go to any classes and stuff. Yoga in western countries is not the original form of yoga. You need PRANAYAM ,,, THAT IS CURING YOURSELF WITH THE SOURCE OF LIFE- OXYGEN. Try googling "RAMDEV YOGA FROM INDIA" God Bless!
    Anonymous 42789 Replies Flag this Response
  • Hi mimih1, Please look at the forum on this site about B12 deficiency. A lot of your symptoms, blurred vision, tingling feet, cramps and stiffness are similar to my own. Having started taking supplements according to the advice of the very well-informed members of the forum I am, a couple of months in, starting to feel a great deal better. I've seen Sjogren's mentioned as having a possible link with B12 - perhaps because the symptoms of B12 are extremely varied and can mimic other conditions. All the best, jan
    janetah 134 Replies Flag this Response
  • Hi I know its not really the same but I'm 16 I have Type one Diabetes,stiff neck,headaches and i keep seeing things that arent there and hearing voices. I am really worried but scared if I say anything my nan wont take me seriously and my dad will say snap out of it and man up.
    Anonymous 42789 Replies Flag this Response
  • Hi I know its not really the same but I'm 16 I have Type one Diabetes,stiff neck,headaches and i keep seeing things that arent there and hearing voices. I am really worried but scared if I say anything my nan wont take me seriously and my dad will say snap out of it and man up. I think your diabetes is not under control causing you more problems. Watch your diet very carefully and tell dad your meds aren't working and you need to see a doctor for the diabetes. Talk with the doctor privately and tell him you are getting complications from the diabetes and you ask for a thyroid test. I wouldn't admit to hearing voices or they will drug you.You might be psychic and use the experiences in a positive way--write down what the voices are saying...keep a journal. Stay clean--no drugs or booze. Stiff neck could be a virus passing through or tension/stress...or something else. You can tell the doctor you have a stiff neck. The doc should run some blood work on you to check for infections and thyroid and your blood sugar--
    Monsterlove 2921 Replies Flag this Response
  • I wish I could; I wish it were that simple. I've always been a positive person with lots of energy. That sure has changed! Things have been getting steadily worse over the past few months. All I want to do is sleep...I can't begin to explain the fatigue. Most of the time I feel like I have cement blocks tied to my arms and feet. I'm also having trouble with balance (no dizziness--my legs just "give out" on me). Other symptoms include: blurred vision, headaches, weight gain, chronic hives, numbness and tingling sensations in bottom of feet, muscle cramps (mostly at night), muscle stiffness...I think I'll stop here. I might get slightly depressed reading my own symptoms if I'm not careful! HA! I've already been diagnosed with a thyroid condition and Sjogren's. Local drs did an MRI last month to check for MS but no lesions were evident. Have an appointment with rheumatologist in Atlanta next month. I'm thinking fibromyalgia. I'm to the point where I just want to know. Hi Mimih1, http://forums.wrongdiagnosis.com/showthread.php?p=92360#post92360 I suspect your answers might lurk on the b12 thread. We have a complete list of symptoms and you look like you fit nearly 100%. Come tell your story over there and compare notes.
    Freddd 3576 Replies Flag this Response
  • I wish I could; I wish it were that simple. I've always been a positive person with lots of energy. That sure has changed! Things have been getting steadily worse over the past few months. All I want to do is sleep...I can't begin to explain the fatigue. Most of the time I feel like I have cement blocks tied to my arms and feet. I'm also having trouble with balance (no dizziness--my legs just "give out" on me). Other symptoms include: blurred vision, headaches, weight gain, chronic hives, numbness and tingling sensations in bottom of feet, muscle cramps (mostly at night), muscle stiffness...I think I'll stop here. I might get slightly depressed reading my own symptoms if I'm not careful! HA! I've already been diagnosed with a thyroid condition and Sjogren's. Local drs did an MRI last month to check for MS but no lesions were evident. Have an appointment with rheumatologist in Atlanta next month. I'm thinking fibromyalgia. I'm to the point where I just want to know. Dear mimih1, I'll add my opinion to that of janetah and Freddd. This sounds very much like the effects of chronic B12 Deficiency. This is a common condition which few doctors understand, and even fewer know how to treat; and that is a pity, because it can be treated easily (you can do it yourself), and - left alone - it can be fatal. B12 is a leading player in over 600 metabolic processes - that is why there are over 200 signs/symptoms of its deficiency. It is also surprisingly easy to become B12 Deficient. For instance, some estimates consider that up to 40% of Americans diagnosed with incurable Alzheimer's are actually just B12 Deficient. Freddd has posted an up-to-date list of B12 Deficiency's signs/symptoms at posting #1958 of this page of the B12 Forum: http://forums.wrongdiagnosis.com/showthread.php?t=9948&page=196I would urge you most strongly to read it; then, if you think your problem is B12, to come across and talk to us. We are really quite good at fixing it.
    kevinmillhill 1889 Replies Flag this Response
  • I'm going to ignore your husband's comment, and hope that you will, too...I had symptoms very similar to yours that went on for 8 years and prompted numerous work-ups for MS and other neuro diseases. Eventually, I was diagnosed with a rare complication of autoimmune thyroiditis called Hashimoto's Encephalopathy. I had not been diagnosed with the thyroiditis until the encephalopathy was found by my 8th neurologist...According to Chaudhuri et al (Current Medicinal Chemistry, 2003, 10, 1945-1953), the two most common symptoms of HE are central fatigue (that's the same fatigue seen in MS), and migraine-like headaches. It can also cause ataxia (problems with balance and coordination). It made me want to sleep during the day, and I had a lot of your other things too. Each case of HE is different and you can have only a few of the symptoms. It's diagnosed by thyroid antibodies and has little to do with hormone levels- in fact, most HE patients have normal hormone levels.One thing they looked for in my MS work-up was Sjogren's disease. I don't have it, but I do know it can cause neuro problems.Since you have both Sjogren's and thyroiditis, it might be worthwhile asking a neurologist if you might possibly have an autoimmune encephalopathy. Be aware that most doctors have never heard of HE. Neurologists tend to be the ones aware of it, but like I said above, it took me 8 doctors (and 8 years) to get it figured out. Your rheumatologist may not have heard of it... my neurologist had warned me that other doctors would not know about it yet or be skeptical. Hopefully your rheumatologist will rule out other rheumatological diseases.HE is treated with steroids. I still have some low-level fatigue, but the really bad fatigue improved with some prednisone, and I also stopped using my cane (for balance) after treatment.Not sure if any of this is helpful or applies to you.I hope you start getting some kind of answer soon.Best Wishes
    Anonymous 42789 Replies Flag this Response
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