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How can I find a Doctor who will manage nerve pain medication in pregnancy?

Posted In: Medical Stories 0 Replies
  • Posted By: NervePainMom
  • April 16, 2013
  • 01:37 PM

I am a 32 year old woman who is currently 15 weeks pregnant with my 3rd child. I have nerve pain in my epigastric area (any and all GI tests/scopes have been performed and nothing was ever found, save a hiatal hernia) which stems from a laproscopic cholysectomy I had done two years ago. My pain was managed completely on 600 mg of Lyrica prior to becoming pregnant. The lowest dose that I have still felt the pain well enough controlled on while I was being tapered down and off the Lyrica, was 300 mg (100 mg/3x daily). Since I have become pregnant, no one will treat the pain appropriately because they are fearful of possible side effects of the medication on the baby. Primary Dr's and Ob's keep throwing me back and forth between each other and the ER in an effort to put the "liability" on someone other than themselves and it is grossly unfair to me and my baby. I realize there may be a risk involved, but at this point I feel that the benefit clearly outweighs the risk because I am losing weight at the rate of several pounds a week because I am unable to eat or sleep because of the severity of my pain. The only thing I am being given is opiate narcotics, which quite honestly do nothing at all for my pain. Please, someone help me! I live in Broome County, NY, but would travel anywhere in the state to get this resolved!

To back up and tell a bit more of my story: I had a miscarriage (blighted ovum) in late April of 2011. The miscarriage passed on its own, naturally, and I did not require a DNC.Two weeks after the miscarriage, I had severe gallbladder attacks, and ended up having a laproscopic cholysectomy at that time. About a month after my surgery, I began to notice severe epigastric pain. It is right in the center of my chest, just beneath my breast bone. I have had numerous GI scopes and tests (CT with and without contrast, MRCP, upper and lower endoscopes-- 6 in total in the last two years--, GI series with Barium swallow, stool samples, biopsies...you name it). The only real finding of all of this was that I have a hiatal hernia, which numerous Dr's say could NOT be causing my pain. I also had a laproscopic appendectomy done eight months later, and the Dr did an exploratory at the same time and ruled out adhesions from previous surgery. I even had an MRCP done which definitively ruled out residual stones or sludge as well. At any rate, fast forward to today...most of the past 2 years have had Dr's put me on a fairly high dose of opiate narcotics (Oxycodone 7.5/325- 2 every 6 hrs), which, even at higher doses, still wasn't adequate for pain control. Over the last 6 months or so, I was put on Lyrica, which has proven to be my "miracle" drug. I can eat, sleep and function well enough to have a job. My pain is so severe, I even had to quit my job because I cannot function normally. Now that I am 15 weeks pregnant, Dr's do not know what to do with me. They have tried lower doses of Oxycodone (7.5/325 1 every 6 hrs) which does nothing for this pain whatsoever.I was never sent to a neurologist (which I do finally have an appointment with at the end of this month), so I do not have an "official" diagnosis at this point. Because of this, all of the high risk OB programs I have looked into, both locally and, up to this point, as far as Syracuse, NY, will not take me. They tell my primary to refer me (who I have since fired because she is not helping to resolve this whatsoever and will not change my medication or anything) back to an OB and neurologist. I truly am getting quite ill now and am so incredibly stressed out that I sought help from a surgeon to ask his opinion. He suggested doing a ziphoidecomy because he felt it could be causing the pain. I decided against it, as many Dr's were advising against having the procedure done in pregnancy, and because if it is NOT the problem, it could make my pain far worse than it already is. I have even tried to get into a pain management center in Rochester, NY, because they are the only one anyone around here knows of, that will deal with abdominal wall pain.I am still awaiting their response. I am sick, I am tired, I am weak, and I honestly don't know what to do anymore. If anyone can shed some light on this for me, on what I can do or who I should call next, please, PLEASE help me!

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