Discussions By Condition: Medical Stories

High CRP level, severe pain, all other blood tests NORMAL??

Posted In: Medical Stories 2 Replies
  • Posted By: hdh517sdh
  • August 13, 2009
  • 07:21 PM

Hi. I'm a 31 yr. old female. I started having pain in my feet after rising 3 years ago. Then my thumb joint closest to the palm just stopped working and is always sore. I have pain in my T1 area, with muscle aches equal and bilateral. I can't sit for long due to pain in my tailbone.

On really bad days, my entire body (joints and muscles) feel like I've been in an accident. This usually happens for 2-4 days in a row, then not for several weeks.

On not so bad days, only the above seem to bother me. Over the past 3 years, I've experienced a large increase in migraines, especially in the left eye. 6 months ago I was diagnosed with ocular migraines, as I will temporarily lose sight in my left eye prior to the onset of the headache pain.

I recently went to the rheumatologist and had blood work done. All tests were normal, except for the C-Reactive Protein, which was extremely elevated at 24.9.

I was given a preliminary diagnosis of Polyndromic RA or Spondyloarthritis. After reading online, I'm not sure I fit these diagnoses. Does anyone have any ideas?

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  • Hi. I'm a 31 yr. old female. I started having pain in my feet after rising 3 years ago. Then my thumb joint closest to the palm just stopped working and is always sore. I have pain in my T1 area, with muscle aches equal and bilateral. I can't sit for long due to pain in my tailbone. On really bad days, my entire body (joints and muscles) feel like I've been in an accident. This usually happens for 2-4 days in a row, then not for several weeks. On not so bad days, only the above seem to bother me. Over the past 3 years, I've experienced a large increase in migraines, especially in the left eye. 6 months ago I was diagnosed with ocular migraines, as I will temporarily lose sight in my left eye prior to the onset of the headache pain. I recently went to the rheumatologist and had blood work done. All tests were normal, except for the C-Reactive Protein, which was extremely elevated at 24.9. I was given a preliminary diagnosis of Polyndromic RA or Spondyloarthritis. After reading online, I'm not sure I fit these diagnoses. Does anyone have any ideas? Hi hdh517sdh, It could be a specific b12 deficiency. Check out the symptoms list at http://forums.wrongdiagnosis.com/showthread.php?t=62327 and come over to http://forums.wrongdiagnosis.com/showthread.php?t=9948&page=241 for discussion of it. Generally CRP will come down to <=1 on the b12 therapy as inflammation disappears if it is at all related to such deficiency. As it takes very specific b12s so just buying any old b12 the odds would be more than 1000 to 1 against you hitting on it by chance.
    Freddd 3576 Replies
    • August 17, 2009
    • 06:02 PM
    • 0
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  • Hi I am thirty two years old with the same exact pain. I have been trying to get an answer and subsequent treatment for years and at some point a doctor told me to lose weight and go on a sugar free diet. Now I was not overweight at 5'6" and 143 pounds, I have no heart disease and my cholesterol i s picture perfect. Recently I had a bunch of routine tests, unimpressive with the exception of the c reactive protein at 26 and some anemia with a hemoglobin level of 9. I had follow up titers of ANA and other antibody tests which all came back normal. My GP told me that I have hypermobile joint syndrome and tried to send me to a rheumatologist but the receptionist told me that the rheumatologist would not see me for that diagnosis. So I am SOL as of right now, I hurt so bad, every single day, when I wake up and when I go to bed and the entire time in between. I still work and go to school, can't take a day off when the pain is every day. I thought it was really funny in a very morbid sense when I was doing my clinicals (respiratory therapy),a patient had come in on a code and knowing I could not do the chest compressions coz of my back pain, I immediately grabbed the bag and started giving breaths. Unfortunately the patient did not make it and about five minutes into it we were asked to stop, and I could not open my hands. They were spasming in that position, I thought, I can't even bag a pt how am I supposed to keep people alive??? Anyways it sucks that you feel bad, I know that but its good to just read someone else's account because sometimes I think I have got to be crazy!!! Hope your get to feeling better soon.
    Anonymous 42789 Replies
    • October 29, 2010
    • 10:58 PM
    • 0
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