Discussions By Condition: Medical Stories

higgy/RMSF

Posted In: Medical Stories 2 Replies
  • Posted By: Anonymous
  • March 28, 2009
  • 07:10 PM

I am a 40 year old father of two young boys 9 and 6.I am constantly searching for answers regarding long term effects of RMSF.Like most of you on this forum, I visited my family physician numerous times before finally ending up in the hospital July 4th weekend last summer. After every test you can think of Stress test,ct scans,chest xrays and many visits to the lab and numerous doses of antibiotics, the only abnormalities was a positive reading of RMSF and Epstein Barr. My infectious disease physician insist that because of the levels of RMSF detected,that this could have happened when I was a kid. My IGM level was 4.5 and the IGG Levels was negative.Does anyone have any thoughts on this?I never recall developing a rash, the only thing I can remember is that my spouse pulled off a couple ticks after Youth Turkey season (April 08)that were embedded in my upper back and I havent felt right since.I constantly battle fatique,panic attacks,forgetfullness,joint pain,swelling in my fingers.I have always been a very active father,but these last 12 months have been a struggle.Any advice from anyone would be greatly appreciated

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2 Replies:

  • Thanks for the information. I have been tested for Lyme disease,but all test were negative.I will look into the information you posted.Thanks again, HIGGY
    Anonymous 42789 Replies Flag this Response
  • Lyme disease tests can be unreliable and you can get false negatives.However Lyme is not RMSF as you know but have you thought about Ehrlichiosis which resembles rashless RSMF as only 20% of patients infected with this get a rash but 90% of RSMF patients get a rash. BUT that means that 10% do not and you could be in the 10%.There are a lot of tick bourne diseases. You were bitten by two ticks and dont feel well so the possibility of a Rickettsia type disease is quite high..Ask you doc if a complement fixation test or direct immunoflourescence has been done.Hope you feel better soon:cool:
    chrismia 159 Replies Flag this Response
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