Discussions By Condition: Medical Stories

hi everyone heres my story

Posted In: Medical Stories 0 Replies
  • Posted By: jfrey925
  • October 25, 2007
  • 05:31 AM

hi my names jessica im 15 i live in western ny
im 15 years old and i live with the stresses of an uncommon illness. In October 1998 i was diagnosed with a condition called Eisenmenger's Syndrome also referred to as Secondary Pulmonary Hypertension with a 9mm Congenital Heart Defect known as a VSD (Ventricular Septal Defect or hole between the two lower chambers of my heart.) The damage to my lungs cannot be reversed but can be treated to slow the progression of the illness. Part of this treatment is a continuous infusion of a medicine called remodulin is a cathertor place in the tussue of my stomach . The purpose of this medicine is to postpone the need for Double Lung Transplant and repair of the VSD for as long as possible.Because of the decreased ability of her body to properly carry oxygen i am very limited on the amount of normal childhood activity i am allowed, some normal day to day activities such as walking are enough to cause my body to need additional oxygen. my favorite things to do are listening to country music,riding a motorcycle with her Dad, and playing on the computer. i have also managed to meet and get autographs from some her favorite singers including all the members of Alabama,Billy Gilman,Ashley Gearing,Jessica Andrews,Tammy Cochrane, Pat Green,John Berry,Steve Azar,and Tracy Byrd. heres my email
jfrey925@rochester.rr.com
my web page
http://www.angelfire.com/ny3/littleladybug7/
and my myspace
www.myspace.com/jfrey925
and my aim
jfrey925


thanks for reading :)

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