Discussions By Condition: Medical Stories

Hep C or Lupus

Posted In: Medical Stories 2 Replies
  • Posted By: Anonymous
  • February 5, 2007
  • 03:14 PM

In 1996 I was finally diagnosed with Lupus erythematosus, and It took years to diagnose it. I did have a second opinion from a prominent doctor in NYC. The medications I was taking got me so sick. the last and worse was Methotrexate. I gave myself a FDA pharmacy medication break and actually I felt better for a little while.
Five years ago my lab work said I had Hep C. Since then I have had many blood test and a couple of major surgeries. Hep C was gone from the diagnosis and the Lupus diagnosis was back. Two years ago I had to have four vertebrae fused. I have degenative disk disease. I walk with a cane and I'm usually in pain. I accept what I have and just deal with. I always had jobs that required physical strength and stamina. I'm not angry but occasionally sad that I cant do the things that I enjoyed.
I recently divorced and relocated with my children. I'm under a lot of stress. I have not been feeling well. I have sudden flare ups, my skin, joints and muscles are exploding in pain, my vision is sometimes blurred, I have ringing in my ears, my hair is thinning a lot, my fingers on my right hand is tingling and I have an uncommon skin rash lately even for Lupus. I have a new symptom my head is shaking. So...I started with a new rhumatologist. A full Blood test (non fasting) was immediately taken and Hep C came up as positive but Lupus was gone. The doctor feels definitively that I have Hep C and nothing else!. He told me that depression and stress cause pain. I know they exasperate pain, but I'm not a hypochondriac nor am I hysterical woman. I am going for another blood test tomorrow to confirm the Hep C result. This doctor does not have the best personality but I will finish with the testing he requested.
Could it be possible that Hep C masked itself and gave false / positive reading? If so, why was I treated by the other rhumatologist with methotrexate for so many years? Can anyone shed some light on this situation?

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  • Hi, Sorry you are going through all this. I don't know anthing abt hep c, but the Lyme bacteria can change themselves, hide and come out again. Do you live near NYC??? The east coast is crawling with undx'd cases of Lyme. Lupus never "goes away". I think its more like the markers, were missed. Alot of what you discribe, sounds like I did, except for 20 yrs, I was undx'd. 6 yrs ago, I had so much pain and weakness, it was thought I had MS. But no brain leasions for that. I was then tagged with Fibro, on meds for that until 6 mos ago. Mostly lots of antidepressants. I have lots of back and joint problems too. Your new "stange rash" caught my attention. Could you have undx'd Lyme diease?? You could have been bitten, but not had a rash.....I was bitten 20 yrs ago and had a purple bruise, that the doc ingnored saying it was just a bruise... Never tested, and all was forgotten. LAst May I was bitten behind the knee and had a softball size lump that was purple. It triggered my memory of the other bruise. The Gp, I don't have much faith in, but hes good with the referrals. I had the rheummy do a Lyme test{ western blott} and the results were way too high, for some one who had "just been bitten" . I stopped all the meds and have been on antiboitics for 5 months and haven't felt this good in a long time...No cure mind you, but can function better. Lupus, MS, Fibro and much more is being tied into Lyme and its co infections. The co infs cause more problems and weird spots and rashes. Lyme dosen't always show up in blood tests, cause its in the whole body, not just the blood.It depends on what infection you do have, the bacteria takes on different forms. The docs can dx on the symptoms too, the problem is finding that right doc. Do some google searches and see if it sounds more like your case. www.lymnet.org is a great place, lots of info and help there. Hope you can get your answers soon and get the right treatment to feel better soon....~~ A Jersey girl
    Anonymous 42,789 Replies
    • February 8, 2007
    • 02:01 PM
    • 0
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  • As far as I know, if you have Hep C, you have it. period. Have they been checking your liver enzyme levels? Do you know what they are? You should, it's important. Ask for a copy of your blood work. Methotrexate is a HORRIBLE drug. It can cause permanent damage. I am sorry it looked like you took this awhile. How awful. I have been successfully treating Hep C for several years now, with acupuncture and Chinese medicinals. It is somehow the only thing that seems to really offer my patients relief. I highly recommend you find an acupuncturist who also is a specialist in Chinese herbal medicine. There is a DOM named Misha Cohen who teaches a protocol for hep C. It is possible you could have several co-infections like Jersey girl said. i would still recommend acupuncture in that case as well. It really helps. Best wishes to you.DOM
    acuann 3,080 Replies
    • February 8, 2007
    • 10:58 PM
    • 0
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