Discussions By Condition: Medical Stories

Hep C & Digestive problems...

Posted In: Medical Stories 0 Replies
  • Posted By: Mad Datta
  • June 18, 2007
  • 11:37 PM

Hi all, I'm new here...

This is my first post. Advice or comments should be forwarded to funkingdave@atcjet.net because I am new here and don't know how to use this site.

My medical "story" is long. I will try to keep it short.

I am a 46 year old male diagnosed with hepititus C. I was diagnosed about 16 years ago. The last biopsy of my liver showed me to be in final stage of each of all three levels of liver failure. I am not on any liver donor program nor will I get on one. Personal reasons are the reason for that (I do not support the mixing of human genes). I have been a drug addict and alcoholic. I have been completly drug free over 13 years. I still drink but more on that later.

My history...
I had spinal meningitus at age 4 that almost took me. I survived with nerve damage that effected my balance, hearing on one side & speech. Beginning at around age 8 I began to experience abdominal discomfort. After eating I would pass gas with cramps and weakness or tiredness. As I entered puberty I began to get skin rashes too, Tenea versicola whas what I thought it was. In my life I went into drug abuse and alcohol abuse. That led the full medical community to place the blame for all of my problems on my lifestyle & choices in life. I agreed with them...

Six years ago my right leg swelled up from knee down, after it I became ill to the point of constant diarhhea and vomiting. I lost 20 poinds in about ten days. I tried everything to hold food down. I ate pasta (elbow macaroni) one night for high energy but threw it up 36 hours later clean and undigested. My doctor after hearing this put me on digestive enzymes. They seemed to help for only a few weeks but then I got even more ill all at once. Now the doctor thought "celiac desease" I have been living on a celiac diet since then but continue to get even sicker to the point that almost anything I eat makes me ill. I spend now six to 8 hours a day excreeting bile from my anus. This pile I believe to be entering my bloodstream during exit from my body because it gives me feaver, heat flashes and dizziness that lasts for an hour or so. If I eat peas, beans, or most vegitables I'm on toilet with in minutes because they pass undigested. Oranges and apples almost put me into shock and I vomit them up but I keep vomiting for sometimes 16 to 20 hours to purge from them. As I said my food problems began long before my drug abuse or alcohol use.

I have a 7 year old daughter with same digestive problems & I think it's not celiac. I know I abused my body and will die from liver failure because of my decisions. I'm ok with that but what I don't know is what's been overlooked. I hear now it might be mastocytosis as her doctors say she has possibly worst case of it they have ever heard of & my symptoms fit it too...

That is short version, advice would be helpful...

BTW, I still drink but it's only to calm bowel pain. Not to party.

Thanx in advance and anyone wanna mock me that's ok too....
David Rice

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