Discussions By Condition: Medical Stories

Henoch-Schoenlein purpura

Posted In: Medical Stories 0 Replies
  • Posted By: Anonymous
  • October 4, 2008
  • 09:21 PM

I read several stories of people with HSP and wanted to share the oddity of my age and the symptoms and treatments I have experienced in hopes that it will help someone else. I have had this disease for at least 2 years with serious symptoms for the past 18 months. I have been unable to work much of the time and see a gradual deterioration in my overall health. Gained 30 pounds from prednisone treatments of 5 to 10 mg daily just to suppress a flare-up. Now I am receiving IV introductions of steroids sometimes once or twice a week. For the past 2 months I experience a renewed flare-up every 7-9 days. A flare up consists of itchy red skin with swelling and eventually skin necrosis inside the larger rashes which look and feel like a burn. I have a condition called MGUS in my blood and urine, blood in my urine, kidney pain, scalp skin pain, swelling feet, legs, rash on bottoms of feet, dizziness, bone pain, deformed fingernails from each flare-up and more.
Life has been difficult, full of pain, too many medications, extreme weight gain, depression and a sense that this disease is going to kill me. It is very rare for someone 59 years old to have this condition but here I am. Good luck to all of you.

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