Is there any connection to all these symptoms and diagnosis? I am in my mid 30's and looking to have back surgery within the next 2-3 months. When I was having a myelogram recently, the radiologist asked me if I had a syndrome. I had been diagnosed with a hemivertebrae a few years ago, but never asked this before. I began thinking and wonder if there is any connection with a multitude of symptoms that I have had during my life. I am english and german descent and when born, I was kept in the infant unit for a few extra days under a lamp for what was then called, "yellow meningitis". As I started to develop in pre-adolescence, I began to develop male breast. These were later removed via bilateral mysectomy at 13 years old. When I was 11, I was diagnosed with scoliosis and was told I would grow out of it (Guess not!). My eye site has always been bad and was in glasses by 2nd grade. In my 20's, the eye site got to be, "able to see chart from 6 feet". I could not even see the E on top. Lasix surgery was done in the late 90's when the procedure first started, but 8 years post, I was back in glasses and contacts. Gas and abdominal pain has always been problem and was diagnosed with gastroparesis, hiatal hernia and irritable bowel syndrome. My joints have always popped and cracked when in use or by manipulation. I was never morbid obese, but have always had a significant belly and a love for food, especially sweets and peanut butter. Body acne started in puberty and has never fully ended, and of course the obsessive picking at the bumbs don't help. I have had addiction problems in the past, and like Judy Garland, Madonna, Barbara Steisand, and Cher (Do you see the sexual orientation?). Psychologically, I have depression with mild paranoid personality disorder, which existed long before any recreational chemicals were used. About two years ago, my hands started to hurt during my sleep and was waking up about every two hours. It was diagnosed with Carpal Tunnel Syndrome. I continue to wear splints on my wrist at night. Shortly after, my back started hurting worse than usual. I have always had a certain amount of dull backache along with neck stiffness, but not like this one. Then my left hip and left leg hurt as well. At times, it begins with the feeling of hot wax or ice cold water being poured on my calves. This then turns into stabbing pain. The scoliosis that I was suppose to grow out of was identified as a hemivertebrae. I went to chiropractors, massage therapists and physical therapy for several years. I have had mutilple steroid injections in the back that last about 1-2 weeks, use lots of ice and often a TENS unit. Like I said in the beginning, I am hopefully have surgery soon for the scoliosis and hemivertebrae, and wonder if there is a connection to everything. If you have had similar experiences or have thoughts on direction, please let me know. I have researched all the popular congenital syndromes with no luck. I can't help but to wonder if possibly there is an autoimmune aspect to everything. There is a distant family history (great-granparent) of rheumatoid arthritis, but all the lab tests so far are all neg or within normal limits. Diabetes and skin cancers are the only thing family related, and even then they are with grandparents. Any help and/or direction is appreciated.Reply Follow This Thread Stop Following This Thread Flag this Discussion
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