Discussions By Condition: Medical Stories

Help! Need ideas......

Posted In: Medical Stories 11 Replies
  • Posted By: Anonymous
  • May 16, 2008
  • 05:26 PM

Hi Guys. Am new to the board. I am fed up with feeling like, well awful. I have just had tests for Lupus, but the bloods came back OK. I have joint pains, tiredeness like I have never felt, headaches, abdo pain, nausea, dizziness, and have been treated for depression for the last 3 years, a diagnosis I have fought long and hard against. I also have a low platelet count (83). I have felt really bad for a year now.Just now I feel like I have been run over by a bus. The GP I saw yesterday said it was a virus - bless her! My own GP is very tolerant and does the blood work when I whinge sufficiently, but I feel he is now getting fed up with me moaning about how bad I feel. My poor husband is like "tired again huh?" and the kids have forgotten what a fun mum they used to have. I just want someone to say OK Pea, this is the problem and this is how we are going to fix it - or am I asking too much and I should jutput up and shut up??

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11 Replies:

  • Hi Pea, Sorry that I can't tell you what is going on with you, but I just wanted you to know that I understand what you are going through. I am in the same situation myself. Joint pain, fatigue, pain upper right quadrant, dry eyes, dry mouth, lower back pain, numbness in my toes, edema and more.. I have high blood pressure and hypothyroidism as well. This has been going on for about 2 years now and I still have no clue to what is causing it. A while back I read the spoon theory that was written by a girl with lupus.(http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf ) I find it a good way to explain how my day is now compaired to before. It helped me alot! Hope you are able to get to the bottom of your problems real soon... Hugs from Kiera
    Anonymous 42789 Replies Flag this Response
  • Please consider finding a good naturopathic or Oriental Medical doc to help get you back on track. Can be very, very helpful! DOM
    acuann 3080 Replies Flag this Response
  • Hi guys, thanks for your reply. Kiera, I too have the dry eyes, mouth ! What a pain! I have thought about alternative therapies..... thought about a lot really. I will certainly look at the spoon theory!! You just have to keep plodding on. I work full time and have a father, husband and 2 very active children to care for and it just gets really hard sometimes to keep positive. Thank goodness for a fab husband and a great sense of humour. I hope you get sorted soon Kiera. xx
    Anonymous 42789 Replies Flag this Response
  • http://arthritis.about.com/od/sjogrens/Sjogrens_Syndrome_Cause_Diagnosis_Symptoms_Treatment.htm
    Monsterlove 2921 Replies Flag this Response
  • Thanks Blaze, for your input. I had looked at Lyme Disease, but have never had the rash, or been bitten for years. I am looking into electrical sensitivity. I don't live near a phone pylon or anything similar. I do work in an office with loads of computers, but then isn't that almost all the population these days?? A good way of getting the boss to let me work from home though...LOLI have always had "odd" blood results, really low platelets and white cells - really confused a poor junior doctor when I was in hospital last year. She couldn't understand how I obviously had a riproaring chest infection and UTI and normal white count!! So, the reason for my rambling about the bloods, is that it does make me wonder whether my normal levels are not the same normal levels as the next person.... I know grasping at straws.....Have to just keep plodding on.....xx
    Anonymous 42789 Replies Flag this Response
  • Have just got back from my GP who tells me that all my tests came back Ok. which is good news, I don't have lupus. He tells me I am 44 fat and depressed and that is why I am feeling so crap. Great. Have not stopped crying all day.
    Anonymous 42789 Replies Flag this Response
  • Now I know my GP hates me and thinks I am a hypochondriac. Have just tried to order my repeat prescription and he has taken me off everything except the bloody antidepressants.........and not told me.
    Anonymous 42789 Replies Flag this Response
  • Keep your chin up, relax or cry (whatever makes you come out stronger) and then go find yourself a new GP. Don't ever worry about what your GP or anyone else might think. If your tests come back normal, be glad about it, but don't ever doubt yourself. If your body is telling you something is wrong, then something is wrong no matter what blood tests or doctors say. You just need to keep on testing and marching right back into the doctors office. Nobody knows you better then YOU! Welcome to my world! Hold on tight, because you actually need to be well to be sick! Kiera
    Anonymous 42789 Replies Flag this Response
  • Oh Kiera, thank you!! I have had loads of problems in the past and thought that this GP was brill, he was so non judgemental. He has put my dizzy spell down to panic attacks. I fall down I am so dizzy. I fell at a meeting at work last week, dead embarrasing, but I have dizzy spells when I am just sitting. I do feel I am banging my head against brick. I know, you are lol saying been there got the t-shirt. Yes, I am very pleased I don't have lupus. I thank God everyday that the tests came back negative, but, and this is a huge but, I have always been fat. I was a fat kid, a fat teenager and a fat adult. I haven't always felt like this. I have a history of suicidal tendancies, which I have fought for almost a year now. When I got back from the GPs I felt that if I was going to feel like this everyday there is no point in continuing. Luckily (?) my husband came home from work early and thwarted my plans - he guessed what I would be like after ringing me earlier. I am scared what I may do, and because I do have huge hang ups with the medical profession, I find it really hard to tell someone when I am making plans. Said GP says I have a little knowledge and am thinking myself ill..... I am a nurse, but that doesn't make me a hypochondriac surely??? sorry ranting on like this but I am sooooo bloody frustrated. But, get this he has still referred me to a general physician at the hospital as he hasn't a clue what is going on with my platelets, and there is still the colitis theory... aaaaaggggghhh screams of utter frustration! Thank God I have a lovely family and fantastic sense of humour. from what you say Kiera, I am going to need it. Thank you for your support - it is great to know that somebody is listening and not saying it is all in your head woman!!!xx
    Anonymous 42789 Replies Flag this Response
  • Kiera, thank you for your support. It is nice to know SOMEONE believes me! I used to have so much faith in my GP, he was never judgemental and took all my little insecurities seriously. I have a huge problem with anyone medical and it had taken 3 years to build up a trust with this man. I have a history of suicidal attempts, but with his help haven't had any plans for over a year now. But all that went out the window on Friday. I just thought I can't live like this everyday. Luckily (?) my husband was so worried when he spoke to me on the phone he came home early, and interrupted my plans. People then try to tell me to think positivitely and look at what I have ie nice house, lovely kids, fantastic hubby, great job, but they don't wake up everymorning feeling as though they have just done 8 rounds with Mike Tyson. My GP says the dizziness is panic attacks, but how can I be having a panic attack whilst sitting reading or chatting. It was so bad last week I kept falling over, once in the middle of a really important meeting at work. The hard thing is I am a nurse, so my GP thinks that I know what to say, how to feel, but actually that couldn't be further from the truth. I am so grateful the test results came back negative, and thank God each day that I don't have lupus. But I am so tired of fighting. And I know that is a symptom of depression, but come on... 14 months of feeling like crp when I was diagnosed with depression 4 years ago - shortly after my mum died. Said GP has referred to general physician at the hospital as he says he doesn't know what is going on with my platelets. Finally after 10 years a referral.......... Good job I have a sense of humour.....Kiera, you are probably saying got the tee shirt at this stage!!! It does help knowing there are people like you out there! thanks.
    Anonymous 42789 Replies Flag this Response
  • have not posted for ages. have lost 2 stone, still feel bullied into losing weight, don't feel any better, but a little more positive. GP has apologised for being a complete a hole. Had hospital appointment with lovely consultant who said that he doesn't always go with blood tests and hasn't ruled our Lupus. Am now being investigated for a whole load of other things. Fab.......Thanks to all of you who don't always feel well, but are always there to give support to people who don't have anywhere else to turn.xxx
    Anonymous 42789 Replies Flag this Response
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