Discussions By Condition: Medical Stories

Help! can't get diagnosis

Posted In: Medical Stories 2 Replies
  • Posted By: sheosheila
  • October 9, 2008
  • 02:49 PM

Please help! My Mother in law is living with us because she has chronic pain and no one can diagnose her.

Her symptoms are:
constant pain and tingling in the extrimities
constant pain, tingling and pressure in the head
constant gastro burning whether she eats or not
constant nausea
disorientation, dizziness, trembling inside?

She's taking:
plavix, inderal, lotrel (blood pressure)
Vitamin B-12
cymbalta (pain & anxiety)
trazedone (sleep & anxiety)
darvacet (pain)
xanax (anxiety)
reglin (gastro)
suppositories for nausea
neurontin (neuropathy & headaches)

Her Doctors include:
Neuro Optomologist
Infectious disease
she's even been to UVA where she says they only did EMGs

Tests she's had:
CT scan of head
MRI of head
blood tests
xrays of upper back
tested for siliacs
tested for diabetes
tested for shingles

I was convinced that the overwhelming mold in her house was making her sick. (similar symptoms to neuropathy) The infectious disease Dr. said no invasive mold in her body. We moved her in with us just to be safe, but it's been a month and no real change.

Pain killers don't even touch the pain, and the family Dr. doesn't want to give her any more pain meds because he can't justify it.

She had a cataract surgery on both eyes which was done incorrectly and caused bleeding and swelling behind the eyes. She goes today to see if they swelling is down enough to correct the surgery. They clamped off blood vessels to stop the bleeding.

She has a history of mini-strokes, but it's been several years.

She had cervical cancer thirty years ago which was completely gone after a hysterectomy.

The only thing they have diagnosed her with is peripheral neuropathy, but they say that doesn't explain the issues with her head.

Sorry this is so long, but we're out of Doctors and feel like we're running out of time! She looks so beaten down by the pain. She weighs 99lbs.
ANY advice at all would be so appreciated!

Thank you

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2 Replies:

  • Dear sheosheila, What you could be describing there are some of the consequences of Vitamin B12 Deficiency. It is surprisingly common, and it can be age related (one estimate suggests that up to 40% of US citizens diagnosed as having Alzheimer's Dementia are actually "just" B12 deficient). I am aware that your mother-in-law is taking a B12 supplement, but she's probably taking very little, and probably taking it orally (in which case her metabolism will see only about 1-3% of the "active" content). It's probably cyanocobalamin as well. B12 Deficiency is a hidden western epidemic for a number of reasons. To save myself a lot of typing, can I suggest that you follow this link and read my explanatory postings to Gary Neegan at #4863 and #4864: http://forums.wrongdiagnosis.com/showthread.php?t=9948&page=487 If you feel that that is putting you on the right track, jump to this page which (at posting #4588) gives a comprehensive list of the possible signs, symptoms, and predisposing factors relevant to the condition. If you've read and understood my postings to Gary, you'll also understand why there are so many: http://forums.wrongdiagnosis.com/showthread.php?t=9948&page=459 If you think that my guess is right, and that we can help, come and join us in the forum.
    kevinmillhill 1889 Replies
    • October 13, 2008
    • 08:06 AM
    • 0
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  • Wow, I wish I would have checked back on this forum after Novemeber because the answer was here lol! I came back to let everyone know that she was (finally) diagnosed! Wish LYME DISEASE!!!! Thank you Blaze for all the great information. And what a great forum. Sheila
    sheosheila 1 Replies Flag this Response
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