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Head injury / Traumatic Brain injury Pakistani patients Jawad Pasha 26

Posted In: Medical Stories 16 Replies
  • Posted By: Anwer Pasha
  • August 3, 2008
  • 11:10 PM

Head injury / Traumatic Brain injury Pakistani patients Jawad Pasha 26 Closed head injury or open head injury both trauma are result of mishaps and Pakistan is now at world highest road accident rate and due to other circumstances Pakistan is facing highest average of Trauma.Very less medical facilities and death toll in head injury is very high,Survivors with brain injury have no place for them anywhere in Pakistan.Benazir Bhutto twice premier of Pakistan was recent victim of head injury who expired in result of a suicidal bomb blast on 27th December 2007, Another famous person was Zahid Khaqan Abbasi who was son of Khaqan Abbasi a minster and senior army general and brother of Shahid Khaqan Abbasi now a minister and former PIA chief who survived after a brain injury in 1988 but could not improve and died almost after 14 years, I am sending you my story, It is a sad story but we need special assistance because we are doing our best and there is success in this hard and normally no cure case,I have mailed you before but now I feel that we are near some success,My son perhaps in persistent vegetative state We have given him a medicine named Amantadine 500 mg for lost 2 months he was already improving ,now he is improving little fast.After stop giving medicine he is moving his hands and a foot better than before,Hopefully we shall break this lock with our effort we were looking for some support specially from U.S.A or U.K, but it looks that we could not get it, Now this is Story of a father of a Pakistani patients Jawad Pasha 26 with traumatic brain injury . I am not good at computer and not good in English so i am sorry if you found it weak. I am father of 3 sons and a daughter. One of my son is working with me rest 2 were studying in university.One named Jawad Pasha when he was 23 found injured at one hospital with some unknown accident on 13th September 2004 and since than he is totally disable like locked in syndrome. It was a very severe head injury and doctors told us that survival is near to impossible and even when he was out of some danger doctors were in opinion that he could not improve. We are helpless here even you can find no website here on the subject of traumatic brain injury. he was under treatment since than at the 2 top hospitals here and visited almost all famous hospitals here at Pakistan, brought him twice to Singapore SGH but only loss because they have no specialty regarding T B I. my son is fully wise smiles and laughs when listen such talks tries to move a little his hand or foot , identify and remember people and voices working hard since than without guidance. He is with good heath till now. Now after a long time a Pakistani doctor at USA is helping and guiding me, but having other tragedies meanwhile. My youngest son Ubaid Pasha who was 23 was kidnapped for ransom on 5th March2007,the same day on which he completed his computer degree and kidnappers received the ransom but they killed him and his body was found after arrest of the kidnappers and one of killers was the person who supplied medical equipment for my son Jawad. My son was a Hope for me and his elder disable brother ,and me going old now,Meanwhile Land mafia power full here found these events fit to capture my business they torched threatened me and my family and beaten my son working with me, what to do? It is 4th year of whole night awakening with my son.I don't know why god selected me for this all but thanks to god he gave me courage to fight. Anwer Kamal Pasha; (Father) .Now new Improvements;I am very happy to tell you that a group of doctors inspeted Jawad Pasha on 19th July 2008 at Shafa International Hospital Islamabad Pakistan and told that he is with a diffuse axonal injury and he is apersistent vegetative state and not lockrd in syndrome. Now i feel that we are going to see some imrovements and it is going to be happen without any proper guidance,treatment or advise only by grace of god and support by family and friends of the patient my son Jawad Pasha and friends of my murdered son Ubaid Pasha.There are visible signs of effort of the patient to regain his command on different body parts and a visible improvement.We still need support in different fields as Exercise machines for such patients, wheel chair of special description, Speech therapy guidance,Swallowing technology guidance,Bowl and Urine control guidance,Physiotherapy guidance because physiotherapist here are total unaware about such patients,etc. We shall be happy to join such a work done their for such patients.We can afford traveling and some other expenses in this regard. We can also stay for a long anywhere for rehab or treatment.No one can image how much hard the life is.But we are struggling.We have no way to know what we can do now.

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  • Head injury / Traumatic Brain injury Pakistani patients Jawad Pasha 26 Closed head injury or open head injury both trauma are result of mishaps and Pakistan is now at world highest road accident rate and due to other circumstances Pakistan is facing highest average of Trauma.Very less medical facilities and death toll in head injury is very high,Survivors with brain injury have no place for them anywhere in Pakistan.Benazir Bhutto twice premier of Pakistan was recent victim of head injury who expired in result of a suicidal bomb blast on 27th December 2007, Another famous person was Zahid Khaqan Abbasi who was son of Khaqan Abbasi a minster and senior army general and brother of Shahid Khaqan Abbasi now a minister and former PIA chief who survived after a brain injury in 1988 but could not improve and died almost after 14 years, I am sending you my story, It is a sad story but we need special assistance because we are doing our best and there is success in this hard and normally no cure case,I have mailed you before but now I feel that we are near some success,My son perhaps in persistent vegetative state We have given him a medicine named Amantadine 500 mg for lost 2 months he was already improving ,now he is improving little fast.After stop giving medicine he is moving his hands and a foot better than before,Hopefully we shall break this lock with our effort we were looking for some support specially from U.S.A or U.K, but it looks that we could not get it, Now this is Story of a father of a Pakistani patients Jawad Pasha 26 with traumatic brain injury . I am not good at computer and not good in English so i am sorry if you found it weak. I am father of 3 sons and a daughter. One of my son is working with me rest 2 were studying in university.One named Jawad Pasha when he was 23 found injured at one hospital with some unknown accident on 13th September 2004 and since than he is totally disable like locked in syndrome. It was a very severe head injury and doctors told us that survival is near to impossible and even when he was out of some danger doctors were in opinion that he could not improve. We are helpless here even you can find no website here on the subject of traumatic brain injury. he was under treatment since than at the 2 top hospitals here and visited almost all famous hospitals here at Pakistan, brought him twice to Singapore SGH but only loss because they have no specialty regarding T B I. my son is fully wise smiles and laughs when listen such talks tries to move a little his hand or foot , identify and remember people and voices working hard since than without guidance. He is with good heath till now. Now after a long time a Pakistani doctor at USA is helping and guiding me, but having other tragedies meanwhile. My youngest son Ubaid Pasha who was 23 was kidnapped for ransom on 5th March2007,the same day on which he completed his computer degree and kidnappers received the ransom but they killed him and his body was found after arrest of the kidnappers and one of killers was the person who supplied medical equipment for my son Jawad. My son was a Hope for me and his elder disable brother ,and me going old now,Meanwhile Land mafia power full here found these events fit to capture my business they torched threatened me and my family and beaten my son working with me, what to do? It is 4th year of whole night awakening with my son.I don't know why god selected me for this all but thanks to god he gave me courage to fight. Anwer Kamal Pasha; (Father) .Now new Improvements;I am very happy to tell you that a group of doctors inspeted Jawad Pasha on 19th July 2008 at Shafa International Hospital Islamabad Pakistan and told that he is with a diffuse axonal injury and he is apersistent vegetative state and not lockrd in syndrome. Now i feel that we are going to see some imrovements and it is going to be happen without any proper guidance,treatment or advise only by grace of god and support by family and friends of the patient my son Jawad Pasha and friends of my murdered son Ubaid Pasha.There are visible signs of effort of the patient to regain his command on different body parts and a visible improvement.We still need support in different fields as Exercise machines for such patients, wheel chair of special description, Speech therapy guidance,Swallowing technology guidance,Bowl and Urine control guidance,Physiotherapy guidance because physiotherapist here are total unaware about such patients,etc. We shall be happy to join such a work done their for such patients.We can afford traveling and some other expenses in this regard. We can also stay for a long anywhere for rehab or treatment.No one can image how much hard the life is.But we are struggling.We have no way to know what we can do now. Diagnoses in brain injury is often very difficult even for doctors.In case of Jawad Pasha for the years we persumed it locked in syndrome because there was no communication exept some times blinking eyes in yes, even upto now. Later smiling and laughing was added so we could know he is happy.We are still unsure about his diagnoses and every time we consult a new doctor we hear a different term.
    Anwer Pasha 17 Replies
    • August 14, 2008
    • 04:45 AM
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  • Diagnoses in brain injury is often very difficult even for doctors.In case of Jawad Pasha for the years we persumed it locked in syndrome because there was no communication exept some times blinking eyes in yes, even upto now. Later smiling and laughing was added so we could know he is happy.We are still unsure about his diagnoses and every time we consult a new doctor we hear a different term. Jawad Pasha is a wonderful patient now,still having no command or contol on his body but otherwise fully aware with good heath.We use 80% home food through feeding tube like soup,fresh fruit juices,boiled vegetables and some time boiled wheat blended with water and oats with milk.We try to move him as much as opossible and some physiotherapy.One way comunication since 4 years to see him smiling and sometime hear him laughing.Only a little Apiwal to control his fits otherwise no medicine normaly given to him.Very much in need of a Physiotherapy specialist like one Dr Carina Eksteen of Peritoria who guided us when she came Pakistan to help earth quake victoms.
    Anwer Pasha 17 Replies
    • August 26, 2008
    • 10:26 PM
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  • Jawad Pasha is a wonderful patient now,still having no command or contol on his body but otherwise fully aware with good heath.We use 80% home food through feeding tube like soup,fresh fruit juices,boiled vegetables and some time boiled wheat blended with water and oats with milk.We try to move him as much as opossible and some physiotherapy.One way comunication since 4 years to see him smiling and sometime hear him laughing.Only a little Apiwal to control his fits otherwise no medicine normaly given to him.Very much in need of a Physiotherapy specialist like one Dr Carina Eksteen of Peritoria who guided us when she came Pakistan to help earth quake victoms. What to do now?Jawad Pasha is improving,He is still smiling and even laughing sometimes. We are trying our best in the all worst circumstances mentioned but nobody to guide us what to do? .We know their are thousands PVS patients in USA but this can even show that much spending USA is not well in improvement of these patients. But there is knoweldge ,sources and equipments which we need.Please come farword to support.
    Anwer Pasha 17 Replies
    • September 3, 2008
    • 05:09 PM
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  • What to do now?Jawad Pasha is improving,He is still smiling and even laughing sometimes. We are trying our best in the all worst circumstances mentioned but nobody to guide us what to do? .We know their are thousands PVS patients in USA but this can even show that much spending USA is not well in improvement of these patients. But there is knowledge ,sources and equipments which we need.Please come forward to support.I have been visiting many webs and have gone to many doctors,they says" No person has ever come out of apersistent vegetative state " but we are here very sure that Jawad Pasha is coming out.At the night of accident when I reached the doctor said," I am really very sorry but I have to tell you that the injury is very severe and there is no chance of survival", But the God is great,he survived.Now for the years I am listening and because it is first year for me using computer and if i have read before all which is published in different webs about persistent vegetative state and locked in syndrome I may have much disappointed and it may have a loss in our efforts for our son.I request all not to say like this,give every one a hope and ask them to work hard,God is great and any thing can happen.
    Anwer Pasha 17 Replies
    • September 23, 2008
    • 10:35 PM
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  • You can always try "tapping": http://www.emofree.com/ http://www.gloriaarenson.com/learn_eft_emotional_freedom_technique.html with little children, they suggest a "tapping bear" and you tap the spots on the teddy bear or you can tap on yourself while saying the appropriate positive phrase or get a group of friends to rotate tappers on him physically stating: "Even though I have this problem, I completely accept myself.".......good luck.
    Monsterlove 2921 Replies
    • September 24, 2008
    • 00:47 AM
    • 0
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  • You can always try "tapping": http://www.emofree.com/ http://www.gloriaarenson.com/learn_eft_emotional_freedom_technique.html with little children, they suggest a "tapping bear" and you tap the spots on the teddy bear or you can tap on yourself while saying the appropriate positive phrase or get a group of friends to rotate tappers on him physically stating: "Even though I have this problem, I completely accept myself.".......good luck.Thank you very much, i eill try to learn ahd do that ,pray for us, God bless you.
    Anwer Pasha 17 Replies
    • September 24, 2008
    • 09:46 PM
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  • I have been visiting many webs and have gone to many doctors,they says" No person has ever come out of apersistent vegetative state " but we are here very sure that Jawad Pasha is coming out.At the night of accident when I reached the doctor said," I am really very sorry but I have to tell you that the injury is very severe and there is no chance of survival", But the God is great,he survived.Now for the years I am listening and because it is first year for me using computer and if i have read before all which is published in different webs about persistent vegetative state and locked in syndrome I may have much disappointed and it may have a loss in our efforts for our son.I request all not to say like this,give every one a hope and ask them to work hard,God is great and any thing can happen. He is a Persistent vegetative state but i am not satisfied with these diagnosis.He has a history of Epilepsy meanwhile.After abut sixmonths of injury we saw first visible Seizure to him.It was for abouthalf an hour.He was crying,moving his legs and arms and looked in greatpain.After another seven months there was another attack,which tookabout 50 minutes but it was less than first. After another 8 months wefaced another.It was more than one hour but further less than before.In2007 after killing of his younger brother Ubaid Pasha he was victim of3 more attacks almost every month.here I have to mention that afterattack he looked some conscious during fits.I have to tell you that weunderstand that he was facing low type Seizures all these year but ashe can not tell anything we could not know exactly.This year January hefaced a very serious attack,till he became unconscious in result ofinjections by doctors.This was very serious,looked very painful to himand it reverted him like he was soon after accident.Here I have tomention one thing important in my view but doctors not consider it.Hisleft side is more stiff than right and therefore a little more active.Right arm and leg temperature always looked cooler than left butafter these great Seizures attack it became equal. he faces 3 fits attack.one last month but only for 2-3 minutes very minor that day he was with somediet trouble,(pait main dard).Same happened this week, he was verymuch tired (We brought him Lahore).But 2 days ago he faced a very long4 hours (approx) attack.but he did not look in much trouble as before ,in past when Fits occurred 2-3 days before visible attack he startedsome things like mouth water( Jhag nikalna )and some tears from eyesperhaps due to pain and at the time of fits his nose was turned. Butthese times nothing of the sort happened,In the long attack he waslooking in trouble but trying to talk all the time some time smilingand tried even to laugh. An important issue is this that these all Seizures wre at a proper time,between 5 to 7 in morning.I have a question.Can Seizures be helpful to someone like him?
    Anwer Pasha 17 Replies
    • September 27, 2008
    • 10:04 PM
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  • He is a Persistent vegetative state but i am not satisfied with these diagnosis.He has a history of Epilepsy meanwhile.After abut sixmonths of injury we saw first visible Seizure to him.It was for abouthalf an hour.He was crying,moving his legs and arms and looked in greatpain.After another seven months there was another attack,which tookabout 50 minutes but it was less than first. After another 8 months wefaced another.It was more than one hour but further less than before.In2007 after killing of his younger brother Ubaid Pasha he was victim of3 more attacks almost every month.here I have to mention that afterattack he looked some conscious during fits.I have to tell you that weunderstand that he was facing low type Seizures all these year but ashe can not tell anything we could not know exactly.This year January hefaced a very serious attack,till he became unconscious in result ofinjections by doctors.This was very serious,looked very painful to himand it reverted him like he was soon after accident.Here I have tomention one thing important in my view but doctors not consider it.Hisleft side is more stiff than right and therefore a little more active.Right arm and leg temperature always looked cooler than left butafter these great Seizures attack it became equal. he faces 3 fits attack.one last month but only for 2-3 minutes very minor that day he was with somediet trouble,(pait main dard).Same happened this week, he was verymuch tired (We brought him Lahore).But 2 days ago he faced a very long4 hours (approx) attack.but he did not look in much trouble as before ,in past when Fits occurred 2-3 days before visible attack he startedsome things like mouth water( Jhag nikalna )and some tears from eyesperhaps due to pain and at the time of fits his nose was turned. Butthese times nothing of the sort happened,In the long attack he waslooking in trouble but trying to talk all the time some time smilingand tried even to laugh. An important issue is this that these all Seizures wre at a proper time,between 5 to 7 in morning.I have a question.Can Seizures be helpful to someone like him?Now the new reports regarding differences between Persistent vegetative state and Minimally Conscious state are being published which establish that patients of traumatic brain injury were wrong diagnosed since decades and consept regarding dealing with brain injury is still not clear and if one could only assess on my report time to time he can learn more.It is very necessary to conclude results of recovery and old cases should be studied again to find a way out for thouands looking for a therapy.It is also time to study about natural healing of brain injury.
    Anwer Pasha 17 Replies
    • October 28, 2008
    • 10:00 PM
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  • Now the new reports regarding differences between Persistent vegetative state and Minimally Conscious state are being published which establish that patients of traumatic brain injury were wrong diagnosed since decades and concept regarding dealing with brain injury is still not clear and if one could only assess on my report time to time he can learn more.It is very necessary to conclude results of recovery and old cases should be studied again to find a way out for thousands looking for a therapy.It is also time to study about natural healing of brain injury.We were thinking to bring Jawad Pasha to USA for treatment but now knowing about more than 30,000 patients in Persistent Vegetative and Minimally Conscious state are still looking for some treatment I understand that there is no way to help any brain damaged person has been found.I just want to point out that perhaps due to better health facilities their lives could be saved there.The figure about such patients is very surprising and if is not only highest in the world but perhaps it is more than all in the rest of the world.Still we are in need of other technics and equipment available there for enhancing the improvement of Jawad Pasha.
    Anwer Pasha 17 Replies
    • November 5, 2008
    • 01:46 AM
    • 0
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  • I just wanted to say that your story touches my heart! Although the doctors in your country seem to be saying to you "Let him go" - I feel the determination in you to stand next to your boy and do whatever it takes to make him as well as he can be! Especially this time of year, that is something we all need to remember to do for our loved ones! So, I'm sorry I have no advice to give or suggestions for you, but I do want you to know that I will keep you and your family in my prayers and hope for all the best for you! Good luck!
    Anonymous 42789 Replies
    • December 19, 2008
    • 05:56 AM
    • 0
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  • It seems to me that he is not going to respond to any type of standard medical care, wherever he is. Ask yourself "What would he really choose for himself?" Would he want to continue like this if he had a choice. I think he is staying in his body just for the family. Your reaching out to save him allows him the extra time for you to adjust to his changing state. I think there is a profound spiritual connection and many of God's servants surround this person. If your family can gather around and visualize the person as whole and happy, sending him white light and rays from God, there may be a release of his present state. Life is a mysterious, magical place with much sadness, but our faith allows us the realization that the ultimate journey is into perfection and great joy beyond our imagination.
    Monsterlove 2921 Replies
    • December 20, 2008
    • 06:17 PM
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  • Jawad Pasha is now with exelent health and seems to be fully conscious but he is still without motor function.
    Anwer Pasha 17 Replies Flag this Response
  • If there is anything in the world that can help him it is classical homeopathic medicine.I would love to speak with you.Though I don't have enough info to diagnose his case, it brings to my mind the remedy Helleborus as the need for this remedy for cases o=whewre the muscles don't respond to the will.Homeopathy has been well proven for 200 years and is fantastic.Don't give up hope!
    Anonymous 42789 Replies
    • January 11, 2010
    • 05:14 AM
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  • If there is anything in the world that can help him it is classical homeopathic medicine.I would love to speak with you.Though I don't have enough info to diagnose his case, it brings to my mind the remedy Helleborus as the need for this remedy for cases o=whewre the muscles don't respond to the will.Homeopathy has been well proven for 200 years and is fantastic.Don't give up hope!Thank you very much. I believe on this and I have a whole life experience of miracle results of classical homeopathic medicine and I have tried but a very little with Jawad Pasha but I am afraid that perhaps attention is not given to this class of patients.
    Anwer Pasha 17 Replies
    • January 12, 2010
    • 00:42 AM
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  • Thank you very much. I believe on this and I have a whole life experience of miracle results of classical homeopathic medicine and I have tried but a very little with Jawad Pasha but I am afraid that perhaps attention is not given to this class of patients.Hello,My husband is in a MCS here in the US. I can tell you that finding medical help here is difficult at best. Though I have learned quite a bit about treating him here at home. I wanted to send you a private message but do not seem to be able to do so at this point (maybe because I am new).I would love touching base with you. I have learned some things that may be able to help, and maybe you have learned things that could help me. One voice can change things. You keep on fighting, give your Jawad Pasha my love and prayers.Hope to hear from you.Stephanie
    pricklyrose 1 Replies
    • January 27, 2010
    • 11:32 AM
    • 0
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  • Hello,My husband is in a MCS here in the US. I can tell you that finding medical help here is difficult at best. Though I have learned quite a bit about treating him here at home. I wanted to send you a private message but do not seem to be able to do so at this point (maybe because I am new).I would love touching base with you. I have learned some things that may be able to help, and maybe you have learned things that could help me. One voice can change things. You keep on fighting, give your Jawad Pasha my love and prayers.Hope to hear from you.StephanieThank you, We both are on same position. You can mail me at pashaanw@yahoo.com. You can also write at a site braindiseases.wordpress.com/.../persistent-vegetative-state-and-minimally-conscious-state/ -
    Anwer Pasha 17 Replies
    • January 28, 2010
    • 02:53 PM
    • 0
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