Discussions By Condition: Medical Stories

Going on 6 years and I am losing my sanity

Posted In: Medical Stories 0 Replies
  • Posted By: kgarcia27
  • May 3, 2011
  • 00:18 AM

Ok. I am 23 years old, going to be 24 in September. Symptoms started when I was 18 years old. I was 18 at 200 lbs. heavy. I was diagnosed with PCOD or PCOS and was told that it would be difficult for me to have kids and that I would have to lose weight inorder for it to go away or get better. I had very abnormal periods, sometimes I wouldnt have one for 4 months and than get a period for 3 days and than go 2 months without one, etc. I then went back to the doctor and found out that I had abnormal cells in my cervix and they wanted to cut out the abnormal cells. they did. After that, I went back 6 months later and the abnormal cells had come back so they cut out more of my cervix. They cut out so much that I dont have one anymore. No cervix. This is where it gets bad. I start to have unbelievable, horrendous pain in my pelvic area when my period would come. I would be on the floor in a fetal position screaming and crying for it to stop. It lasts for about 6 to 7 hours or until my period decides to come. During this pain, there was no period coming out, not one drop. The pain was greatly reduced after some period came out. I went back to the doctor and was told that it was normal. Well, needless to say, the pain came back the next month. It stopped me from going to work and school. Tylenol with codine was no help at all. I decided to go to a different gyno. During this time, i got shingles on my belly. (I dont know if that had anything to do with it but it happened) Went to a different gyno and had an ultrasound done. Found out that scartissue from my cervix being cut out had built up and was preventing any mentrastion from coming out which was why I was having pain. My doctor compared the pain to labor pains. The pains came whenever my period decided to come. To make this a little shorter, doctors have tried to make a hole for my period to come out. Didnt stop the pain. My doctors have tried to drain me but I cant keep going back to the doctors everytime I have a period. I had a procedure done where a balloon was placed in my uterus to try to make the hole bigger. Worked but didnt last past the first menstral cycle. Im on my 6th doctor now and the pain is still as severe. My doctor is now trying to insert kelp into the hole so that the opening would expand. When they tried to do this in the doctors office, they gave me 6 shots of numbing medicine down where my cervix used to be and I felt everything. I was screaming and crying because it hurt and burned badly. I am on my 6th doctor going on my 6th year and they are still trying to solve this. I am running out of patience and sanity. I dont know what to do, where to go or who to talk to. Im desperate. Im about to get married and seeing the pain in my fiances eyes because there is nothing anyone can do when I am in the fetal position crying is really wearing me thin. Help please.

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