well i have had 35 operations on my ears it started when i was 6 and had my last one when i was 12 . the docyors at first didn't know what it was then they finaly figured it out it was cholestiatoma i probaly spelled that wrong sorry..then they did more surgerys to figure out how to get rid of it then the antibiotics they tryed wich never were used before so i got to be there ginny pig and i had a reaction to all of them the pain the sickness and then they would desence atise me so they could try it then after all the needles and the skin graph they closed my right ear off inside and stayed in the hospital for 3 months this all happened in boston now im 22 a...but is always fear and wundering when the day is gonna come when it comes back and now theres alot of stuff on colestiatoma back then u couldnt find anything on it and the doctors are saposed to chek ur ear every year with a ct to make sure its fine but they havent done that in years they just tell u oh its fine when they cant even see inside my ear so how would they know .and i whent down there 2 years ago when i was 8 months pregnit and its a 2 hour drive for me to get to boston and they wouldnt see me cus of some bill that was from before i was 18 and they wouldn even tell me the amount that was wierd and they call the doc up and he refued to see me i was mad as ***l him and all the other ones that tryed all the new drugs on me and used me for a medical show and all the cars the doc probaly got just off my 7 hour long surgeries alone and he wouldnt see me cuz of a bill i sapoesenly have before i was 18 and i had insurance back then im still mad and i just read a story how a guy had colestiatoma and his ear ws closed off and of course he not gonna show the main signs of colest so the doc told him he was fine well the drainage had no where to go so it leaked tarwds his brain and almost cuzed brain problems and his face to paralyse that scared me and made me feel bad to most doctors we dodnt mean anything to them they look at us as a medical show for them and money thats why we should put certain doctors threw everything they put us threw and see how they feel afterwards ....please if you have a child who has cholestiatoma or anything dodnt let the doctors the medicine specalist use them for a giny pig dodnt let them try 1000 of drugs on them now after everything the one main side efects of the drugs they tryed on me was they damaged my teeth they leave them permantly weak so now i hve to keep paying every year or 2 to get my teath fixed and everytime i do it upsets me and i get mad cuz people dodnt know what happen to you so they always asume something wrong and i brush my teeth 2 a day i even floss everything but it wont matter well sorry to talk so much on i just dodnt have no one to talk about it withReply Follow This Thread Stop Following This Thread Flag this Discussion
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