Discussions By Condition: Medical Stories

Frustrated with doctors

Posted In: Medical Stories 0 Replies
  • Posted By: Anonymous
  • April 4, 2009
  • 05:30 PM

I am 15 years almost 16 years old and a have had excruciating pain for the past 2 almost 3 years. I have been in and out of the hospital about 6 times. About 3 years ago I was perfectly healthy, ran everyday, no abdominal pain or anything. All of a sudden I had horrible constipation. I didnt go for a month, was on many laxatives ect. and nothing helped. From then on my pain has gotten much worse. My symptoms include:
SEVERE ABDOMINAL PAIN, constant nausea, constipation, tingling in my legs, arms , feet, and hands, which a lot of the time goes numb. I have had chronic sinus infections every 3 months ever since I was two years old, vomiting, sensitivity to heat (vomit), very easily stressed, depressed from the pain, pain in back, neck, chest, muscle weakness, extreme fatigue, urine retention, pain when urinating, hallucinations, poor pulse but when found very rapid, confusion and panic attacks. I have been to so many doctors saying all I have is IBS and I am fine and it will all get better. It has'nt. It has gotten worse everyday. I am extremely frustrated. I ahve recently become familiar wiith the rare disease porphyria. I understand it is extremely hard to diagnose and I was wondering if anyone thinks I may have this disease or any suggestions for similiar diseases or conditions? and also if anyone knows if since porphyria is hard to diagnose, if the doctor could inject heme to see if it helps? Could that diagnose it or create more problems if not yet diagnosed with it? Please help me. I am so sick of dealing with this, I have not been able to run in along time as a result of the pain. Thank you.

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