Discussions By Condition: Medical Stories

Frustrated Can't Help My Little Boy

Posted In: Medical Stories 0 Replies
  • Posted By: SherryT5
  • November 26, 2008
  • 02:46 PM

I have a little boy that for the past 5yrs has dealt with an undiagnosed ailment. We were playing soccer outside during the summer and he fell to the ground with chest pains. Doctors put him on Singulair & Rhinocort. A year later they decided to pull him off since it didn't seem to help. He seemed fine. Two years later it came back during the summer. He wanted to play flag football. He would have up to 4 episodes a practice where he would turn pale with dark circles under his eyes, he would than have severe chest pain because his heart was racing. The pain would be so intense that he would start hyperventilating. We worked for a year seeing specialist including gastroenterologist, pulmonologist, cardiologist, allergist and finally a neurologist. Neurologist diagnosed him with a form of pallid breath hold. Said there is a glitch in his brain, it misfires. His blood pressure will drop causing his heart rate to go up. He turned pale due to the drop in blood pressure. They said to give him 2 litres of Gatorade a day and as much salt as he could handle and said he would outgrow it. He has yet to outgrow this and the Gatorade worked until this past summer. He wanted to try playing football again but he only made it to the third practice. Shortly into practice the episodes began and it took almost two weeks before he could return to normal activity. The episode took so much out of him all he could do was lay around. It is now November and we still don't have this under control. My son now finds that he gets headaches as well. The new neurologist has diagnosed him with migraine headaches and anxiety disorder. He met with us for about 15 minutes and although I'm not really sure about the migraines he is so far from being anxious I can't even begin to speak. The neurologist put him on Propanolol and for the past month he has only had a handful of good days. When he isn't feeling well it is the difference between him getting an A at school or getting an E. He has given up on so many activities he loves because whenever he tries to be active these attacks come on. I hope someone can help me.

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