My name is Cynthia and I was diagnosed with Lupus in late 2000. I was sick for eight months with flu-like symptoms: headaches, muscle aches, nausea, and was extremely tired. I began to lose a lot of weight. This went on for weeks and weeks at a time. I was going back and forth to doctors three and four times a week. They gave me antibiotics and sent me home; the antibiotics did not work so they did more blood test and gave me other antibiotics. In addition, after taking this antibiotic, I was on the phone with my children's grandmother and she told me that I do not sound right. I told her that I just took a new antibiotic that the doctor gave me, she told me to call my doctor and tell her what is going on. Therefore, I did! I told the doctor that I was hoarse and in that moment, I began to get hives. Then I was told to go back to the pharmacy where I got the medication. So, I got my children and drove there. On my way, I began to get short of breath, wheezing and hives all over my body and I could only whisper. I got to the pharmacy and told the pharmacists what I taking so she could give me something to counteract the medication. I passed out! The paramedics were called and I was transported to the hospital. To make a long story short I had to stay in hospital. I also, found out that I am allergic to sulfa drugs. In addition, on my next doctor's appointment, my doctor told me that she did not know what was wrong with me. However, she thinks that I have a Connective Tissue Disease, and she is going to run a couple of test and consult with her colleagues. Out of countless amounts of tests that were performed, it was the bone marrow biopsy that the Lupus was confirmed. It took a long horrible eight months to find out what was wrong with me; I was in the hospital. I never heard of Lupus! However, I was on numerous amounts of medicine and told what Lupus is, that there was no cure and to take all the precautions that must be taken to live with Lupus. I was scared and in disbelief. On the third day of being in hospital, I had enough with this whole Lupus ordeal and took that IV needle out of my arm, called for someone to come get me. I left and went home. I was so weak and in so much pain, I had to go back to the hospital and just trust everyone that was trying to help get me better. After about 2 weeks, I was home and feeling a lot better. Then I continued being in and out of the hospital for years. At one point, I began planning my funeral. I really thought I was going to die. Therefore, I wanted my children to be well taken care of and all together. Choosing who were going to take care of my babies, where they are going to live, that their father and someone on my side of the family to share custody of the ones I love more than anything or anyone. Thank God I did not die! I decided that I was going to fight with all I had to live and cope with this condition. Finally, I got much better with the help of all the doctors working together and getting the right medicine and dosage. Three years went by with mild complications. I thought all my rough days with this illness were over. I was sadly disappointed. That was just wishful thinking on my part. However, I will not give up! I Am Fighting to Live and Living To Fight, and that is a promise I made to myself. Today I am also fighting with Fibromayalia, Raynauds Phenomenon, Anemia, Rheumatoid Arthritis, and Sinus Tachycardia. I would also like to bring awareness to the additional diseases that wreak havoc on many initials that fight with Lupus. The road has not been easy. I have had many procedures and biopsies on different parts of by body. In addition, numerous different medicines. Lupus is an autoimmune disorder for which there is no cure. The majority of patients with lupus are women, but the disease does affect young children and men. Unfortunately, thousands of people die from lupus each year. To date no one knows what causes lupus but research is making progress. Lupus occurs when the immune system becomes too sensitive and begins to falsely attack the individual's healthy body tissue causing damage and inflammation. The symptoms of lupus usually begin as vague flu-like aches, fevers, fatigue, rashes and joint pain, mimicking other diseases that make diagnosing lupus difficult at times. Unfortunately, lupus can cause kidney failure, central nervous system complications like seizures and strokes, blood clots, miscarriages, lung failure, heart disease, high blood pressure, vascular problems and ultimately death.
Thank you for reading my story on this journey of battling this disease. If you are battling with Lupus or any illness, I wish you the best. Please do not be discouraged but encouraged and know that you are not alone. In addition, remember to Never Give Up! If you have any questions or advice feel free to contact me. Please help me in anyway that you can with a donation of any sort or just words of encouragement. And continue to Fight to Live and Live to Fight!
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