Discussions By Condition: Medical Stories

fibromyalgia or multiple sclerosis?

Posted In: Medical Stories 6 Replies
  • Posted By: susan marie
  • July 14, 2011
  • 01:43 PM

:( I have suffered a varying degree of symptoms over several yrs or more.
head aches being the most disabling of them, fatigue , all over aches and pains, electric shock type pains, foot cramps, poor memory, pins and needles numbness and balance, I have stumbled many times and felt quite drunk, I don,t drink alcohol, for some unknown reason I am alcohol intolerant, 1 glass of wine and I feel ill,
this as been going on for about 5 yrs or more, 1 doctor says that I have fibro, however due to moving home 3 yrs ago, my new gp just decided it was time for an mri scan, i had that in june, I am due to return to the neurosurgeon on 8th sept for the result,
I am left feeling somewhat bewildered, I know they are checking for ms, fingers crossed it isn,t , but where does this leave me?. :confused:
as anyone else been going through this who as had a diagnosis ? :o

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6 Replies:

  • Maybe it's nothing. Have you checked your vitamin levels? I know sometimes vitamin B deficiencies can cause nerve problems.
    Anonymous 42789 Replies Flag this Response
  • :( I have suffered a varying degree of symptoms over several yrs or more.head aches being the most disabling of them, fatigue , all over aches and pains, electric shock type pains, foot cramps, poor memory, pins and needles numbness and balance, I have stumbled many times and felt quite drunk, I don,t drink alcohol, for some unknown reason I am alcohol intolerant, 1 glass of wine and I feel ill, this as been going on for about 5 yrs or more, 1 doctor says that I have fibro, however due to moving home 3 yrs ago, my new gp just decided it was time for an mri scan, i had that in june, I am due to return to the neurosurgeon on 8th sept for the result, I am left feeling somewhat bewildered, I know they are checking for ms, fingers crossed it isn,t , but where does this leave me?. :confused:as anyone else been going through this who as had a diagnosis ? :oI would advise you to read up on b12 deficiency because MS, fibro etc can all be down to b12 deficiency.The following links will help you:http://forums.wrongdiagnosis.com/showthread.php?t=62327http://forums.wrongdiagnosis.com/showthread.php?t=9948&goto=newposthttp://b12d.org/
    aprilk1869 126 Replies Flag this Response
  • I would advise you to read up on b12 deficiency because MS, fibro etc can all be down to b12 deficiency. The following links will help you: http://forums.wrongdiagnosis.com/showthread.php?t=62327http://forums.wrongdiagnosis.com/showthread.php?t=9948&goto=newposthttp://b12d.org/ hello there, thank you for your reply. fortunately i have had a clear brain scan result, so it appears to be fibromyalgia, i did have a b12 blood test and that came bk normal as did all other blood tests :o.
    susan marie 3 Replies Flag this Response
  • i did have a b12 blood test and that came bk normal as did all other blood tests :o.This is debatable. Blood tests are next to useless. When my dad started to develop peripheral neuropathy he tested as 364 and was told this was normal. His symptoms got a whole lot worse and they only cleared up with Freddd's protocol. Freddd used to have Fibro along with CFS and other neurological problems and now he's fit and healthy.I strongly suggest you try the protocol to see for yourself before you get any worse.
    aprilk1869 126 Replies Flag this Response
  • Hi, Im with what the other poster has said, B12 tests arent always good at showing up B12 issues. There is much controversy over B12, different countries even have completely different levels in which they will diagnose deficiency. Many also get B12 deficiency symptoms when they are in the lower ranges of normal ... and on top of that it is possible to have something going wrong in which there is an intercellular deficiency of B12 or a deficiency of B12 in the brain (the normal blood tests dont check how much is getting into the cells). (note: some people dont convert certain forms of B well). I myself found B12 injections very helpful thou deficiency doesnt show up......... Im curious if you have other symptoms you didnt mention in your post? . 25% of those with FM develop or actually have ME/CFS (CFIDS) and the FM is only a part of that illness. http://wwcoco.com/cfids/bernesx.html FM alone can have quite a few of the ME/CFS symptoms thou so you need someone knowledgable in both these things if you are carrying a lot of symptoms to distinguish if you only have FM or if you have FM due to having ME/CFS. (approx 75% of ME/CFS patients have FM) The one symptom you've mentioned which Im unsure if is a FM one or not.. is the alcohol intollerance. Most ME/CFS patients thou have alcohol intollerance (up to 75% of them).. hence why Im asking if you have more symptoms then you've said as some symptoms help to separate having ME from just having FM. (headaches, tingling, memory issues, balance problems can be caused by both FM and ME/CFS so cant be used to tell if you have ME or not). If alcohol intollerance happens in just FM maybe that is all you have (if you have no other symptoms). Another clue to distinguish between the two or if one is predominantly FM is exercise can often make FM better.. while exercise can often make ME patients symptoms feel worst (the worsening of symptoms may be noticed immediately after exercise or not uptil 1-2 days later).
    taniaaust1 2267 Replies Flag this Response
  • I myself found B12 injections very helpful thou deficiency doesnt show upI think you and I have been down the same path of research lol.To the OPB12 has really made my life better in a few ways. I do bi-weekly injections and when I forget to, I know it! The lab ranges used in testing are just that "ranges". You may be on the high end and I on the low but our bodies react differently. Meaning just because it is in range doesn't mean it is optimal. Have you had a hormone panel screening done? I belong to a peri/menopause group and can't begin to tell you how many women with hormone issues think they have MS because their symptoms match up. Including me! Know two that had the testing done recently for MS and were fine. Many who have been told they have FM as well. If you haven't had a good work up done, do ask just in case you can be treated for hormone imbalance. Magnesium w/calcium and fish oil are some very good things to take for some of your symptoms as well as the B12. Have they checked your D levels too? Good luck, hope you get answers and feel well soon!
    davinci817 3 Replies Flag this Response
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