I am going to give a list of symptoms I have driven doctors nuts for since 1980. I was finally diagnosed accurately in 2006. A medicine to help was only created and approved as of May 2005, wasn't I lucky? My diagnosis has no cure but is explained. At the end will show why it is not Fibromyalgia or many of the single disorders themselves. Sometimes we have to go deeper than what our doctors are familar with and are taught to deal with. It is not their fault. It is what they have been taught. I started medical courses in the 70's. I remember. That is partially what kept me pushing.
Here are my symptoms. Care to diagnose me?
At birth, seemed to have problems with milk. Doctors told mom was allergies. She would fix sugar water or powdered milk with water. I seemed to do better. I still threw up a lot. Was born in USA AF hospital in England. Exposed to Royal Nurses that later involved in the issues with what US calls Fibromyalgia.
Throughout young life always was throwing up. Doctors said I had very bad sinus drainage. Yes I did. Seemed would vomit more in morning than other times. Doctor finally wrote note to school saying it was okay for me to vomit after meals. It was sinus drainage and food allergies.
I had some normal and not so normal childhood illnesses: mumps, measles 3 times, chicken pox, ringworm (fungal), empitiago, staph infections evertime I fell and scraped skin, continuous strep throat and sinus infections; pseudomonas of the throat; rheumatic fever, rheumatoid arthritis flare ups during teen years.
Had tonsils and adnoids out because they blocked my airways. Never breathed through nose til age 7. Everytime I played outside I would become overheated. Would have to stop playing. Father had same problem as child. I was tired a lot, slept a lot.
Fast forward to my twenties, by this time I am pain. Muslces hurt most of the time. When they don't the joints do. Can't go to sleep. Have trouble sleeping. Have restless legs. Because of brain activity am not reaching REM, stage 4. Because of all this have severe fatigue, brain fog, hard to stay awake. (Later diagnosed with Sleep Apnea)
Have bruxism. Crushed four of my molars. TMJ severe pain. Finally have splint built by one of best docs in city. that helped some.
Constipation, diarrhea, abd pain. abd gas (lots), nausea. Acid reflux.
Severe recurrent headaches everyday. Multiple headaches a day. Migraine, tension, cluster and other. Neurologist was having a field day.
Premenstrual problems getting worse and worse. After married. Had 8 miscarriages., finally could not walk anymore pain radiating from middle of back down legs front and back. Had to have hestorectomy, oophrodectomy. Had very extreme case of endometreosis all over inside of ABD and had many Tumors and cycsts, precancer cells. And had adenomyosis.
I had a salad bag of symptoms that fit nothing sometimes: chest pains but not heart, morning stiffness, cognitive or memory loss, numbness and tingling sensations, muscle twitching, irratable bladder, a felling like I was swollen all over, skin was sensitive, dry eyes and mouth, dizzy, impaired coordination (broke my toes so many times, quit counting).
No longer could tolerate heat. House and work had to be cool or I would faint. Changes in weather made me sick. Yeah depression set in.
The onslaught continued. My body did start swelling. I could no longer exercise. I use to run 4 miles a day and swim 2. I could not walk one.
Stress intolerance. Had tendency to fall apart or roar and bite someone's head off.
My skin had rashes, sores, was motle. Had odd bumps on my foot and ankles. Started having odd scaley brown places show up. Rocecea on my face.
I broke bones in my feet, ankles and legs, tore up both knees, and shoulders --rotator cuff or cup what ever. Was always falling. Could not remember why.
Started having full blown seizures. Eyes rolled to back of head. Slurred like a drunk, walked like a drunk, would loose memory, lost a whole day--considered amnesia. Had a seizure, went into a coma. Called in family to tell me gd'by. I came back.
I continued to vomit after eating meals. It would feel like bricks were forming in my stomach. Food would come up. Sometimes food would come up next morning not even processed. Spent thousands exploring food allergies and other reasons for the causes. was not slow gut.
Had hives, welts (have you ever seen strip welts?), itching, insane lots of itching for days or weeks at a time. Doctor would give me shots to stop.
Became gluten intolerant --was quite evident. Would change my personality. Had genetic test. Not celiac. But because of final diagnosis, I do have to stay gluten free, it helps.
My urine can have abnormal odors. So can my body.
I have deafness --comprehension even though not physically deaf. I have ringing in the ears constantly.
I have hypothyroidism. And yes to make some happy, I have had low B12, magnesium, calcium, manganese, ATP, glutathione, cortisols, problems with pituitary but these are all only symptoms of the root cause that broke them. Now I sweat profusely.
I have osteopenia as well as osteoporosis, arthritis, and herniated discs in spine.
I have eye problems, pain behind eyes, eye aches, gray veils, sparkles, blurry vision, I see golden rings, color flashes, and see letters falling like down a computer screen.
I have barretts disease.
As of last year I had the really bad seizure with coma. I now have cognitive problems. Including word choice, memory loss, word meaning, reading and writing issues, I can't see misspelled words or can't remember how to spell; personality disorders of anger or apathy --don't play well with others. Absolutely hard headed, don't realize I may have made a mistake --my brain is telling me I did it right but I really did not. Like reciting numbers etc.
I can go days with seizures, jerks and twitches. I sleep a lot too. Could be related to the depression or root cause. Who cares. Not really important. At this point I will not be president of the US.
What do I have? Am I chronic Fatigue, Tick plagued, Microwaved all that and more? Seriously It took from age 21 until age 49 to become fully disabled. All of the problems became worse and worse. I will say that I was using this site in its OLD format and combining my symptoms lead me to a possible diagnosis. I searched and found some medical cases like mine. Women ten years older than me. They were autopsy cases. That university has since then closed backdoor access to their computer system. Because I had their diagnosis, I took that to doctors to finally get my diagnosis.
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