Discussions By Condition: Medical Stories

Falling Asleep & Forgetfullness

Posted In: Medical Stories 8 Replies
  • Posted By: Sleepy1969
  • March 8, 2008
  • 02:31 PM

:) Hi can anyone help. I am age 38 and for the last 17 months I have been suffering with falling asleep. My GP thought I had Epilepsy and referred me to a nurologist. Who thought I had Nacarlepsy and sent me for tests which I was then told I have Primary Hypersomnia. I was already on Citralopram 20mg. This all started about 6 weeks after taking it but my GP says it cannot be the Citralopram! I momenteraly fell asleep whilst talking to someone and then again 5 months later whilst driving. So my licence has had to be sent back! I can feel this coming on I get a hot sensation rises up and my vision starts to narrow and I feel really sleepy and then I jump awake then I feel really hot and worn out and obviously have an adrenalin rush. I was put on Modafnil 100mg then went up to 200mg 3 months later they are not working again so I have gone up to 300mg which has not worked at all after taken them for 3 weeks twice a day. I want to go to sleep all the time. I never feel refreshed on waking. I sleep well. I forget what I am talking about half way through a conversation. When I am talking to someone I feel like the left side of my head wants to turn away. It is really hard to consentrate. The only way I can describe it is like being out of body or being the hard plastic shell in a Kinder egg. I visited my GP yesterday and he still thinks I might be epileptic. Any Ideas :D

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8 Replies:

  • :) Hi Blaze, I did as you said and looked it up on Google. I do have a Microwave which I rarely use. Yes I also have a Mobile Phone which also I don't use very much. As far as I know there is not any masts near to were I live unless they are hidden. Strangely enough I do also suffer from night sweats and I do have a child who is Severely Autistic and has ADHD. So maybe that could be an answer but why has all my problems only started in the last 17 months when all the other factors have been around me a lot longer! Thank You :)
    Sleepy1969 2 Replies Flag this Response
  • LOL )))))))))))))WBR,Alex
    luckylucker 2 Replies Flag this Response
  • Wow, those electrical sensitivity articles made a lot of sense to me. Thanks for posting the links! Among the hereditary traits in my family are the ability to blow out electrical equipment (especially when we're stressed - my mother has killed 7 computers and countless cameras) and a tendency to fall asleep or completely zone out in the presence of flourescent lighting. My husband thinks I'm a nut because I can tell when any appliance is turned on in the house; the energy waves go straight to the back of my neck.Electrical sensitivity may be at the root of some of our health issues - I know for me they intensify with the amount of time I spend on the computer. Regarding the hypersomnia question, I wanted to share my own experience. In early 2005 (age 34) I was working 55 hours a week, raising two children, keeping the household running, volunteering in my kids' schools...perfectly functional. In April 2005, I fell asleep. I slept about 17 hours a day. I would feel a tremendous pressure in my head and my tongue would feel like it was thrusting out. My body would feel very heavy, and I couldn't think straight or talk without speaking very slowly and slurring my words. I would get really achey all over and felt like I was either going to throw up or pass out.If I was very determined, I could stay awake, but the symptoms would increase and I was totally useless. I once stayed awake to finish putting dinner together, and spent nearly an hour peeling one carrot. If I gave in and fell asleep, I was in and out of consciousness for three hours - it felt like a roller coaster ride. During that time, whether I was aware or unconscious, I was unable to move.It was over a year before I could get a doctor to listen to me. I worked in a hospital at the time and called in a few favors with docs who didn't even see me as a patient. They ordered a few tests for me even though my primary care doc hadn't felt they were warranted.In late 2006 I was diagnosed with narcolepsy following a Multiple Sleep Latency Test (MSLT), which is an overnight sleep test followed by five 20-minute naps scheduled 2 hours apart. My neurologist says I have been narcoleptic my entire life, which would explain those weird years during high school and college when I was the kid who could fall asleep anywhere at the drop of a hat. It also explained the 17 auto accidents I had been in; although I was "not at fault" for 16 of them, it is possible that my reaction time was impaired because I was asleep or dozing.I now take 400 mg of Provigil a day, which keeps me awake and alert. I am allowed to keep my driver's license as long as I undergo a yearly sleep test to confirm that the medicine is controlling my condition, and as long as I don't get into another accident. Provigil does not make up for lost sleep, so I have a strict 8-9 hour per night sleep schedule. I don't drive if I haven't had enough sleep or if I am having symptoms that indicate I am not fully awake. During my allergy season I experience the sleep episodes again for a few weeks. I have not taken any of the other meds you mention in your post. So far the Provigil has worked for me. If you've made it this far (sorry to be so wordy!), one point I wanted to stress is that I have had periods of time - as many as five or six years in a row - where I have been perfectly FINE. In fact, I often resembled Superwoman. Three times in 37 years I have fallen completely apart, for a few years at a time. The hypersomnia in 2005 began suddenly, like someone threw a switch. So yes, it can onset suddenly.I would suggest looking into food and chemical allergies, chronic fatigue syndrome, Lyme Disease, and fibromyalgia. I started with an Ear/Nose/Throat doc who was also an allergist, and moved on from there to a neurologist and rheumatologist.I wish you luck in your quest to restore your life. Don't take "it's just stress" as an answer!
    Anonymous 42789 Replies Flag this Response
  • :) Thank you so much for replying to my post hooray I am not the only one who feels like this. I was starting to think maybe I was imagining it. I have had the same MSL test as you but they said it was not Narcolepsy but my consultant said Primary Hypersomnia often ends up being Narcolepsy. The tablets I mentioned are the same as yours just a different brand name. They are still not working and every day I feel worse. I have my next appointment on 1st May. I make a joke of my condition to people as I get so embarrased about forgeting what I am talking about mid sentance. I am sure people think I am not listening or I am a bit thick!I often think I am going to pass out and feel like I am going to be sick especially as I have to walk alot (To an from my child's Nursery 25mins x 4 times a day) I am always late so I am always rushing :o
    Sleepy1969 2 Replies Flag this Response
  • Check out sleep apnea. Doctors do not always think to look into sleep apnea.
    sbgg41395 1 Replies Flag this Response
  • Celexa or Citalopram is notorious for causing fatigue so your doc steered you wrong on that one! I am a masters level social worker who works in mental health and believe me, it can really cause extreme fatigue. Each person reacts differently to meds, but that is one if it's well known side effects. If you are still on this you might want to go to another doctor and consider a different antidep.
    kerinska 1 Replies Flag this Response
  • I know exactly how you feel, and I bet I could guess a few more of the symptoms you are having, aswell! We need to talk, Sleepy1969! I have so much info to share with you. Is there a way we can make contact?
    Anonymous 42789 Replies Flag this Response
  • :) Hi can anyone help. I am age 38 and for the last 17 months I have been suffering with falling asleep. My GP thought I had Epilepsy and referred me to a nurologist. Who thought I had Nacarlepsy and sent me for tests which I was then told I have Primary Hypersomnia. I was already on Citralopram 20mg. This all started about 6 weeks after taking it but my GP says it cannot be the Citralopram! I momenteraly fell asleep whilst talking to someone and then again 5 months later whilst driving. So my licence has had to be sent back! I can feel this coming on I get a hot sensation rises up and my vision starts to narrow and I feel really sleepy and then I jump awake then I feel really hot and worn out and obviously have an adrenalin rush. I was put on Modafnil 100mg then went up to 200mg 3 months later they are not working again so I have gone up to 300mg which has not worked at all after taken them for 3 weeks twice a day. I want to go to sleep all the time. I never feel refreshed on waking. I sleep well. I forget what I am talking about half way through a conversation. When I am talking to someone I feel like the left side of my head wants to turn away. It is really hard to consentrate. The only way I can describe it is like being out of body or being the hard plastic shell in a Kinder egg. I visited my GP yesterday and he still thinks I might be epileptic. Any Ideas :DHi. very interesting symptomology. What you are experiencing is most likely going to be diagnosed as Altered States of Consciousness. That is until a defining symptom occures to broaden the picture of all that you have going on. You, in most states anyway, must not drive until a definative diagnosis occurs or you have gone 6 months with no further signs or symptoms. Are you having seizures? Serial EEG's would be helpful. I would be more inclined to call your symptoms absence rather than epileptic. When you describe it it is like you are laying down the specific absence seizure.I would suggest that you speak with your GP about Provigil to increase your energy. Lyrica might be helpful too.I don't think it will, but I hope this helps. ERudited John2:5
    Anonymous 42789 Replies Flag this Response
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