Discussions By Condition: Medical Stories

Failure to Diagnose/Cirrhosis

Posted In: Medical Stories 6 Replies
  • Posted By: suelee
  • November 13, 2007
  • 06:04 PM

Three years ago I had a liver biopsy due to contracting hep c from a blood transfusion when I was 2, the results stated Stage 2, grade 1. I had decided to delay interferon treatment due to this diagnosis, and because I am 1A, which is 14 months of treatment and hard to get rid of.

Well, a few weeks ago I find out I'm Cirrhosis, Stage 4, Grade 3, can't get any worse than that.

I did some research to find that the first biopsy was done incorrectly. I am a single mother of two boys. Without me they have no one. Has this happened to anyone else? I plan on seeing an attorney about this. I should have been told that the first biopsy was fragmented and that I needed to get another. Was it an insurance issue? Why did the doctor's allow this to happen, I am *****d.

Also, the biopsy specimen was not large enough to even make an accurate diagnosis. In the research I've done anytime a liver fragments it is a sign of fibrosis or cirrhosis. Does anyone have any suggestions? Has anyone contacted an attorney due to a wrong diagnosis? Any feedback would be appreciated. Thanks. Sue

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6 Replies:

  • I am very sorry- I share your pain.My Dad just got a Cirrhosis diagnosis- and they can't even find the virus.What medicine defines as symptoms are just very very late stages. The real symptoms go on unnoticed. Today, every symptom is simply emotion- every symptoms is just a personality trait; what a lie.I am sure you are angry- and you need to act quickly. There are ways to treat you- it will include large amounts of Antioxidants, safe but higher doses of Vitamin C, Milk Thistle, and Immortelle.You will need at least one Traditional Oriental Medicine Expert who works on Hepatic disease.You will need to look into Bioset and have 3 treatments as soon as possible.I am not joking about the Milk Thistle- Sylmarin is the active ingredient, and you need this ASAP.A Chinese Herbalist will need to Adjust your doses of herbs.Best-Mar.
    Eatafruit78 960 Replies
    • November 13, 2007
    • 06:34 PM
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  • I am sorry for you situation. You are partially right. Yes, a biopsy must have adequate numbers of portal triads to be able to pick up significant activity and fibrosis. How long it takes to go from Stage2 to Stage 4 depends on many things. I've seen cases where it only took a couple of years to become cirrhosis even though activity and stage initially appeared low. Maybe if the viral load had been checked, it may have been an indication to start with the interferon. Interferon doesn't always work anyway. The fact that the liver biopsy was fragmented suggests that there was cirrhosis already. Most of the cirrhosis cases I get do not come as nice neat cores. They break into many pieces. I bet that if the slide was reviewed, it was already cirrhosis at the time. I hope that things work out, and that you can see your children grow up. You can try Eatafruit's magical potion below (Edit: content removed). Cirrhosis is an irreversible change. What you need to do is get to a medical center that will consider you for transplant.
    A pathologist 12 Replies
    • November 13, 2007
    • 08:12 PM
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  • I am sorry for you situation. You are partially right. Yes, a biopsy must have adequate numbers of portal triads to be able to pick up significant activity and fibrosis. How long it takes to go from Stage2 to Stage 4 depends on many things. I've seen cases where it only took a couple of years to become cirrhosis even though activity and stage initially appeared low. Maybe if the viral load had been checked, it may have been an indication to start with the interferon. Interferon doesn't always work anyway. The fact that the liver biopsy was fragmented suggests that there was cirrhosis already. Most of the cirrhosis cases I get do not come as nice neat cores. They break into many pieces. I bet that if the slide was reviewed, it was already cirrhosis at the time. I hope that things work out, and that you can see your children grow up. You can try Eatafruit's magical potion below. Cirrhosis is an irreversible change. What you need to do is get to a medical center that will consider you for transplant.Excuse me? I only study peer reviewed research papers, and double blind experiments. Btw, I am a woman. Shame on you. Even regular doctors these days now what Sylmarin is. I did not tell her that there is something magical, but that there are ways in which she can contribute some more to her overall wellness.I did not recommend the poster to discard the rest of the treatment options.All in good faith,Maribel.
    Eatafruit78 960 Replies
    • November 13, 2007
    • 08:33 PM
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  • Excuse me? I only study peer reviewed research papers, and double blind experiments. Btw, I am a woman. Shame on you. Even regular doctors these days now what Sylmarin is. I did not tell her that there is something magical, but that there are ways in which she can contribute some more to her overall wellness. I did not recommend the poster to discard the rest of the treatment options. All in good faith,Maribel. Sorry I was a ***k, but I do not believe in giving people false expectations. Silymarin (the proper spelling) has never been shown to be effective against chronic liver disease in any legitimate clinical study. Silymarin has only shown some soft promise in animal studies in lessening the effects in acute liver damage by toxins. Some soft evidence also suggest it may slow the progression of fibrosis. No study has ever shown effectiveness against viral etiology. I amnot sure what the overall effect of Milk Thistle or Silymarin is. They haven't even worked out the flavins or active ingredient, nor do they know the bioavailability or pharmacology.
    A pathologist 12 Replies
    • November 21, 2007
    • 08:57 PM
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  • Sorry I was a ***k, but I do not believe in giving people false expectations. Silymarin (the proper spelling) has never been shown to be effective against chronic liver disease in any legitimate clinical study. Silymarin has only shown some soft promise in animal studies in lessening the effects in acute liver damage by toxins. Some soft evidence also suggest it may slow the progression of fibrosis. No study has ever shown effectiveness against viral etiology. I amnot sure what the overall effect of Milk Thistle or Silymarin is. They haven't even worked out the flavins or active ingredient, nor do they know the bioavailability or pharmacology.It's cool. The important thing is for people to know that there is a lot out there to investigate as far as complimentary treatments. Not everything works for everybody- but there is always room for improvement.NAET and Bioset works for many.Best.
    Eatafruit78 960 Replies
    • November 22, 2007
    • 05:32 AM
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  • Combining the L formula and the VIVI formula from Systemic Formulas of Ogden, UT, may actually change the terrain inside the liver so that the virus no longer finds the liver a friendly place to be. When the terrain changes the bug may actually leave. Sounds a bit radical but I have seen good results with these formulas on patients. Silymarin is good but IME the formulas from Systemic are better. Post back if interested in getting help finding a natural health pro near you that may be able to help. You may want to also consider finding a practitioner near you that uses BIM (computerized BioImpedance Measurement) and may give you other options to see what may be or what else may be going on.
    Anonymous 42789 Replies
    • November 23, 2007
    • 11:06 PM
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