Discussions By Condition: Medical Stories

Facial Spasms...love them to stop!!

Posted In: Medical Stories 2 Replies
  • Posted By: Anonymous
  • December 3, 2006
  • 02:56 PM

All my life I have had facial spasms. I look like I'm extremely dissappointed, the centre of my brow draws up and my eyeslids spasm too. When I was young this was very much worse, to the point that some days I simply couldn't see because I couldn't wrench my eyes open. My nostrils used to flare hard (which I finally solved by holding my nose shut for a few months whenever I flared it...I was becoming a social outcast). My major problem now is that my eyes squint super-hard when I'm in the slightest bit of sunlight. So hard that the blood vessels in my eyelids burst if I'm out for more than a couple of hours without my sunnies.
No doctor has ever taken me seriously enough to actually bother to diagnose this or tell me how to control it.
What could cause this? And how can I get my blinking doctor to take me seriously?!

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2 Replies:

  • hi,you might do some searches relating to HFS or hemi-facial spams and MVD (micro vascular decompression).that's what I had (HFS) and the mvd completely cured it.
    Anonymous 42789 Replies
    • September 7, 2007
    • 08:13 PM
    • 0
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  • All my life I have had facial spasms. I look like I'm extremely dissappointed, the centre of my brow draws up and my eyeslids spasm too. When I was young this was very much worse, to the point that some days I simply couldn't see because I couldn't wrench my eyes open. My nostrils used to flare hard (which I finally solved by holding my nose shut for a few months whenever I flared it...I was becoming a social outcast). My major problem now is that my eyes squint super-hard when I'm in the slightest bit of sunlight. So hard that the blood vessels in my eyelids burst if I'm out for more than a couple of hours without my sunnies.No doctor has ever taken me seriously enough to actually bother to diagnose this or tell me how to control it.What could cause this? And how can I get my blinking doctor to take me seriously?!**The same EXACT thing has been happening to me with facial spasms except mine were in my eyebrows they would go up and down and sometimes go up and stay up...talk about embarrassing. Please get tested for Antiphospholipid Syndrome. It can cause jerky movements. My doctor found this in my bloodwork and I started taking 3 aspirin a day. 3 weeks later i am 90% better it is seriously a miracle. I had dystonia and chorea (jerky facial movements). Trust me tell your doctor to test you...!!
    Anonymous 42789 Replies
    • November 23, 2010
    • 01:45 AM
    • 0
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