I have three questions. I have been trying to find out for about a year what this bony thing is growing just behind and below my skull behind my right ear. I have had MRIs, CT scans, you name it, all being normal. It is just on my right side. The left side is fine. I have had Bell's Palsy on the right side of my face a couple of years ago. Whatever this is has gotten worse and bigger and more painful. No one knows what it is and no doctor will touch me because they can't see it on any imaging, but every doctor I have seen has acknowledged its prescence because it is obvious to the touch. The prominence itself is not painful and is bony to the touch and it does not move, but it feels as if the pain is coming from something underneath it that it is pushing on or pressing on. I can't keep taking muscle relaxants, which do help, and pain relievers forever and ever. That will just depress my heart muscle and every other muscle as well. Whatever it is, my neck muscles spasm on that side all the time, I think due to the fact that they have to rub up against this bony thing that shouldn't be there. I have Hashimoto's Thyroiditis, an autoimmune disease, but I don't think this is related either, I don't know, and doctors don't think so. There is a sharp, constant pain that shoots from the bony prominence through the top of my right eye, almost as if the prominence is pushing on a nerve or an eye muscle that travels back to that spot behind my right ear. My eyeball actually hurts, but it feels good to press down on the top of my eyeball, for some reason. It seems to relieve the pressure. The right eye lid, which had the Bell's Palsy as I mentioned two years ago, looks normal and open. The left eye lid droops and the pupil is smaller than the right pupil. I have been tested for myasthenia gravis, but nothing showed up on that, so I'm wondering if the prominence might be doing it. That is, maybe the left side is actually the normal side and the prominence is actually pushing my right eye out of the socket somewhat to give it a more open look and also making that pupil a different size than the other. The neurologist said that I could retest in a couple of months for myasthenia gravis, which doesn't make sense to me. So, my first question is, could a lymph node back there possibly be hardened and it just is not being seen on x-ray or MRI or even what bony things in your neck area could be missed on most imaging? My second question is, can you have myasthenia gravis and test negative for it, maybe due to remission or something like that? My third question is, is there a type of doctor that would just make an incision right on top of that bony prominence without going through the neck muscles and see what is causing all of my pain?Reply Follow This Thread Stop Following This Thread Flag this Discussion
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