Discussions By Condition: Medical Stories

Exhausted, but chugging along

Posted In: Medical Stories 1 Replies
  • Posted By: chellecarlisle
  • March 13, 2011
  • 00:45 AM

I was a little too lazy to explain all over, so this is actually my first blog post too.
Despite years of dancing with the devil that is probably Lupus, I have no definitive diagnosis. I have spent the past week with atypical hives from penicillan that did not respond to prednisone in until it was upped to 60mgs a day for a week following the shot in the office. I've been fighting what appears to be trigeminal neuralgia with a combination of 1800mgs of neurontin per day and 100mg topamax, which also helps with the daily migraines. My asthma is controled with symbocort, singulair and a rescue inhaler that I can't remember how to spell xopenex? lol. I also have sleep apnea, so I use a CPAP with 3L of oxygen. I'm 35.

I'm normally pretty chipper about putting the pill in the little boxes and going on with my life, but I'm struggling to get out of bed without shaking like a leaf and I can't think straight. I'm not sure a label will make anything better, but maybe it's time to try again.

Before this rash I had these REALLY painful nodules on either side of the base of my neck. It still kind of hurts, but the knots went away about the time the rash broke out.:confused:

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  • Additionally, somehow in my mental fog I neglected to mention that I am also Celiac with dermatitis herpatiformis. That took a while to differentiate from the recurring shingles that I had battled from age 21. My vision in my right eye seems to come and go, as well. I am 5'7" and about 185lbs so while I'm overweight, simple weightloss isn't probably the easy fix. It is what it is! Improvise, Adapt & Overcome!;)
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