This is not about me but about my 15 year old son. He has been diagnosed has having Spondyloepiphyseal dysplasia, however after a lot of researching I am starting to doubt this is actually his problem. He suffers joint problems from the hips down to his feet and has just recently had an operation to correct his right foot, also included stretching the calf muscle and now has 1 leg longer than the other. He has no symptoms such as dwarfism which seems to be a common issue. He is tall, has a waddle which could possibly due to the difference of leg length. has flat feet but nothing like a clubfoot and he seems to be the only person in New Zealand to have this condition. At 15 he should be active and able to keep up with his mates. We are starting to feel quite alone in this and as the statistics say 1 in 10,000 will have this there must be others, right? Can anyone offer any similar story please?:confused:Reply Follow This Thread Stop Following This Thread Flag this Discussion
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