Discussions By Condition: Medical Stories

Eosinophilic fasciitis

Posted In: Medical Stories 2 Replies
  • Posted By: kazchik
  • August 19, 2007
  • 09:42 AM

Just wondering if there is anyone out there who has been diagnosed with Eosinophilic fasciitis.

My illness was misdiagnosed as Schleroderma 4 years ago and when I got to a specialist was advised that I had EF. I was extremely fortunate in that the specialist immediately put me on 50mg per day of prednisone which gave me relief within 10 days and in fact it reversed the condition, although it did have severe side effects. I have been off the tablets for nearly 2 and half years now and have been using the creams.

The specialist had advised me (within his limited knowledge) that the disease generally passes through a persons body within 4-6 years.It is now 4 years and I am finding that the symptoms are in fact returning. :confused:

Does anyone else have this disease and if so, I would love to hear how you have tackled this problem and whether you are free of it. My email is kazchik@gmail.com


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2 Replies:

  • Diagnosed about 1.5 years ago. Finding that EF does not explain all (not even close) was diagnosed by biopsy (Thigh) but am finding that now unsteady on feet, Troulbe sawllowing increase in restless leg syndrome. Concentration decreasing ie had to go back and make multiple corrections to this post Getting scared. Thoughts?
    Anonymous 42,789 Replies
    • October 13, 2007
    • 02:32 AM
    • 0
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  • Hello,I know this reply is almost 2 years late, but I just recently came across your post. I was diagnosed with EF about 1 year ago and also don't seem to exhibit the classic symptoms. Treatment seems to have halted the progression. Recently, I too have begun to experience restless legs. What are your symptoms that lead to a diagnosis of EF? How have you been feeling since you posed?BestBrian
    Anonymous 42,789 Replies Flag this Response
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