Just wondering if there is anyone out there who has been diagnosed with Eosinophilic fasciitis.
My illness was misdiagnosed as Schleroderma 4 years ago and when I got to a specialist was advised that I had EF. I was extremely fortunate in that the specialist immediately put me on 50mg per day of prednisone which gave me relief within 10 days and in fact it reversed the condition, although it did have severe side effects. I have been off the tablets for nearly 2 and half years now and have been using the creams.
The specialist had advised me (within his limited knowledge) that the disease generally passes through a persons body within 4-6 years.It is now 4 years and I am finding that the symptoms are in fact returning. :confused:
Does anyone else have this disease and if so, I would love to hear how you have tackled this problem and whether you are free of it. My email is firstname.lastname@example.org