My 13 year old daughter suffers Ehlers Danaloss first it was her hip and shoulders that dislocated and led to pain. We are managing this well at present. 2 years ago she suffered a dislocated jaw , it was eventually put back in but she now suffers regular jaw muscle spasms and disclocations. She is treated with Botox injections to the jaw muscles every 3-4 months , this helps but she has a period of about a month leading up to and after the injections that the muscles spasms badly and the jaw dislocates often, during this period she suffers immensely from chronic pain. Is there any possible way we can help her regain her normal lifeReply Follow This Thread Stop Following This Thread Flag this Discussion
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