Discussions By Condition: Medical Stories

DR told me I have Raynaud's Syndrome

Posted In: Medical Stories 3 Replies
  • Posted By: sissysissy
  • January 21, 2010
  • 07:34 PM

Well this is now the 5th life time condition since I turned forty. I am 51 now.
Hi I am new here.
I first got RSD in right ankle, Then fibromyalgia mostly in legs, IC, thyroid and now Secondary Raynard's. I also have exzema, roseacia, something wrong with throat that makes me clear it all the time and that makes the muscles sore. many many allergies.
My toes have been like feeling numb and prickly for a while. Then one and my second toe was like hurting real bad and looked like it had a big blood blister very red and and all other toes swollen. I went to doctor and she rushed me to hospital thinking I had a blocked arterie. It was not thank God, but they told me I have this condition called Secondary Raynaud's. They call it secondary because of the RSD already in foot. I have to keep my toes and fingers and nose and ears really warm.

Do any of you have this condition? I cant figure out why I am getting all these conditions.

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3 Replies:

  • Hi Sissy,I'm so sorry to hear that you're having so many painful problems.Raynaud's is an autoimmune disease. I was diagnosed with it 11 years ago. It can be very painful at times, or just plain annoying. I'm glad to hear that you are taking the steps in making sure that your extremities are being kept warm.Fibro can be a real pain to. I also have that, as well as...well waay too many autoimmune diseases. My doctor has told me over the years that when you have one autoimmune disease, it's kinda like a domino effect. I hope this helps:)
    Jacky83 1 Replies
    • January 22, 2010
    • 01:40 PM
    • 0
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  • Hi Sissy,I'm so sorry to hear that you're having so many painful problems.Raynaud's is an autoimmune disease. I was diagnosed with it 11 years ago. It can be very painful at times, or just plain annoying. I'm glad to hear that you are taking the steps in making sure that your extremities are being kept warm.Fibro can be a real pain to. I also have that, as well as...well waay too many autoimmune diseases. My doctor has told me over the years that when you have one autoimmune disease, it's kinda like a domino effect. I hope this helps:)Thank you. It did help. I just wonder what is next. How do we make our autoimmune system better?
    sissysissy 1 Replies
    • January 22, 2010
    • 04:38 PM
    • 0
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  • I was diagnosed with this ailment quite a few years ago. It can be extremely painful as you know. I don't know what it takes to keep my feet warm, but I find it next to impossible.The only thing that helps at all are those little packets called 'toe warmers'. They last for about 6 hrs.I can tell when I'm heading for discomfort. The bottom of my feet or toes feel as though my sock might be a bit wet. That's the only way I can describe the onset of which I'm likely going to experience. The progression is rapid after that sensation. If I can't get in where it's warm, I can lose sensation in my feet. This can be dangerous.I fail to understand just why my feet are so very sensitive with this ailment. I can have very good quality woolen socks, fur in the boots, etc...but my feet can become cold rather quickly. Again, the only thing that truly helps at all are the 'toe warmers'. If my feet do get cold to the point where I lose sensation, once they start to warm, the pain is unbearable. The only other alternative is to not go out when it's cold outdoors. In no way do I want to become a hermit just because of a season change.
    Anonymous 42789 Replies
    • November 27, 2010
    • 02:46 PM
    • 0
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