Discussions By Condition: Medical Stories

Dr's appt at 3, please help make a list of questions

Posted In: Medical Stories 1 Replies
  • Posted By: katclem
  • February 5, 2008
  • 03:06 PM

Hi this is Katclem...I have a Dr's appt at 3 and am trying to make a list of questions...(I have neurological deterioration, see my post from last week). So, I am still waiting on my neurosurgeons interpretation of my L-spine MRI but have been warned that if I have arachnoiditis, he may not "see" it because he may be responsible :( I would not sue him even if he was, he did his best to help me when others probably would have paralysed me because they had misdiagnosed me. I was in a wheelchair at the time and have been able to walk since so I am very thankful to him. Anyway, this is a GP appt today. I know I have a UTI so that will be addressed. The thing is I have been seeing my symptoms as a "whole" when maybe there are a couple of things going on. I was told by Neuro that my achilles clonus is a sign of upper motor neuron lesion ie MS or brain tumor. From what I can find on internet it also can be spinal cord injury which I could have very well sustained from my fall in 2005. The progression is the issue. My pain is increasing daily, my bowel problems are getting worse...over the weekend I was muscle tested and two things came up...that the coccyx jutting forward into a nerve bundle was "scraping" nerves everytime I move and causing damage and my hypothalmus. Looking up hypothalmus, I found that if there was a lesion there it would present as urinary issues, temperature issues (which I definately have) so...should I ask for an ADH level?? Could an electrolyte imbalance cause achilles clonus? Should I just buck up and get the brain scan like the neuro wants? I have no insurance so I am trying to limit what I have done if I can. If I decide to get the coccyx removed how can I rule out arachnoiditis first because surgery would only make that worse right? What else can I ask about?? I have several congenital mid-line defects so a hypothalmus disorder would not surprise me...a tumor would present as increased ADH but so does prolonged pain ( I have nerve pain 24/7, not kidding) so how do we distinguish?? Well, I've rambled enough, any suggestions welcomed. Thanks, Katherine

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  • Electrical Sensitivity & Hypersensitivity: http://www.ei-resource.org/illness-information/related-conditions/electrical-sensitivity-&-hypersensitivity/ Bioinitiative Report: http://www.bioinitiative.org/report/index.htm Neurological Effects of Radio Frequency Electromagnetic Radiation Relating to Wireless Communication Technology - Dr. Henry LaiBlood-Brain Barrier, Cellular Morphology of the Brain, Neural Electrophysiology, Changes in Neurotransmitter Functions, Metabolic Changes in Neural Tissues, Cytogenetic Effects:http://www.emrnetwork.org/research/laibrussels.pdfNeurological Effects of Radiofrequency Electromagnetic Radiation - Dr. Henry Laihttp://www.emrnetwork.org/research/laivienna.pdfMemory and Behavior - Dr. Henry Laihttp://www.emrnetwork.org/research/laiwho.pdf Don't let them tell you that you have MS. We had a chronic Lymie in our support group who was in a wheelchair, and he really had Lyme. Join Lymenet. When to Suspect Lyme:http://www.angelfire.com/biz/romarkaraoke/whento.htmLyme Disease - A Hidden Epidemic:http://www.freewebs.com/teenswithlyme/index.htm Lymenet: http://flash.lymenet.org/ubb/ultimatebb.phpI would join this forum, but who can take it seriously with you and your "EVERYBODY HAS LYME AND ES" campaign...are you commissioned on positive lyme diagnoses? Make your own Lyme forum for crying out loud!
    Anonymous 42,789 Replies
    • February 11, 2008
    • 01:51 AM
    • 0
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