Discussions By Condition: Medical Stories

Does anyone out there have Reiter's Syndrome/Reactive Arthritis?

Posted In: Medical Stories 5 Replies
  • Posted By: Comatose74fi
  • December 18, 2009
  • 11:47 PM

Hi,

I am writing on behalf of my husband, who has been diagnosed with Chronic Reiter's a few years ago. The unual thing with his case is that he has probably been sick since the age of 7 (plus minus a few years) and we've been told that Reiter's usually is caused by the clamydia bacteria transmitted during sexual intercourse, alternatively caused by a stomach infection such as Salmonella, Shigella or similar bacterias. It took him almost 20 years to get diagnosed, no need to say that he's a very sick man today. He's got all the three typical symptoms of Reiter's triad: eyes, joints, prostate. I am interested to hear if anyone of you here have some info to share on this condition. Has anyone had it and been cured? Is there anyone with the chronic version, and if so, what have you been told to do? Is there any therapies, medicines, diets that works? Anything would be helpful, even just to share stories. It seems that the chronic condition is pretty rare, and such an early onset as age 7 also is unusual. Hardly any doctor we've seen has any knowledge or understanding of this disease. It breaks my heart because I am seeing my husband slowly turning into an invalid, and he's not even 40 years old yet :(

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  • Hi,I am writing on behalf of my husband, who has been diagnosed with Chronic Reiter's a few years ago. The unual thing with his case is that he has probably been sick since the age of 7 (plus minus a few years) and we've been told that Reiter's usually is caused by the clamydia bacteria transmitted during sexual intercourse, alternatively caused by a stomach infection such as Salmonella, Shigella or similar bacterias. It took him almost 20 years to get diagnosed, no need to say that he's a very sick man today. He's got all the three typical symptoms of Reiter's triad: eyes, joints, prostate. I am interested to hear if anyone of you here have some info to share on this condition. Has anyone had it and been cured? Is there anyone with the chronic version, and if so, what have you been told to do? Is there any therapies, medicines, diets that works? Anything would be helpful, even just to share stories. It seems that the chronic condition is pretty rare, and such an early onset as age 7 also is unusual. Hardly any doctor we've seen has any knowledge or understanding of this disease. It breaks my heart because I am seeing my husband slowly turning into an invalid, and he's not even 40 years old yet :(hi, i got the reiter`s disease chronical.....if you want to read about my course of disease and how i feel today, go to my website and get your information. cheer up!! ralfwww.MorbusReiter.de
    Anonymous 42789 Replies
    • January 2, 2011
    • 04:56 PM
    • 0
    Flag this Response
  • Hi,I am writing on behalf of my husband, who has been diagnosed with Chronic Reiter's a few years ago. The unual thing with his case is that he has probably been sick since the age of 7 (plus minus a few years) and we've been told that Reiter's usually is caused by the clamydia bacteria transmitted during sexual intercourse, alternatively caused by a stomach infection such as Salmonella, Shigella or similar bacterias. It took him almost 20 years to get diagnosed, no need to say that he's a very sick man today. He's got all the three typical symptoms of Reiter's triad: eyes, joints, prostate. I am interested to hear if anyone of you here have some info to share on this condition. Has anyone had it and been cured? Is there anyone with the chronic version, and if so, what have you been told to do? Is there any therapies, medicines, diets that works? Anything would be helpful, even just to share stories. It seems that the chronic condition is pretty rare, and such an early onset as age 7 also is unusual. Hardly any doctor we've seen has any knowledge or understanding of this disease. It breaks my heart because I am seeing my husband slowly turning into an invalid, and he's not even 40 years old yet :(Yes, I'm mikei have severe cronic reiters almost 4 years nowit was caused by salmonella contaminationthree weeks into battling salmonella, my right eyed hemmoraged into instant arthritisspine,heart lining, eyes, intestines, and morei guess there is no cure some of the other signs of reiters is ridges grow out on your fingernails i notice them sometime after i get a flare up of sympomsafter all this time i am noticing the pattern of every 20 weeks or so i get a flare up and have to end up in the hospital with major organ failureso yes it is bad and very unfairbetween the flare ups everyday is very painfuli have the worst of the worst symptoms of reiters I know ofi think the only ones who had it worse are already deadfrom mike
    Anonymous 42789 Replies
    • January 23, 2011
    • 05:12 AM
    • 0
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  • Hi. I have Reiter's Syndrome (Reactive arthritis). I'm in the middle of a flair right now which was caused by my kids bringing home a virus from school. I have small boil like lesions all over my body (head, face, legs, arms, etc) which really hurt. My eyes are oozing, red, and blurry so I'm currently treating them with steroid drops combined with antibiotics within the solution. The joints that effect me are my SI joints. The only cure I have found to be was Doxycycline. I only take it when I have flair ups. The flairs are ***l...I'm only three days in....
    Anonymous 42789 Replies
    • February 26, 2011
    • 03:01 AM
    • 0
    Flag this Response
  • Hi,I am writing on behalf of my husband, who has been diagnosed with Chronic Reiter's a few years ago. The unual thing with his case is that he has probably been sick since the age of 7 (plus minus a few years) and we've been told that Reiter's usually is caused by the clamydia bacteria transmitted during sexual intercourse, alternatively caused by a stomach infection such as Salmonella, Shigella or similar bacterias. It took him almost 20 years to get diagnosed, no need to say that he's a very sick man today. He's got all the three typical symptoms of Reiter's triad: eyes, joints, prostate. I am interested to hear if anyone of you here have some info to share on this condition. Has anyone had it and been cured? Is there anyone with the chronic version, and if so, what have you been told to do? Is there any therapies, medicines, diets that works? Anything would be helpful, even just to share stories. It seems that the chronic condition is pretty rare, and such an early onset as age 7 also is unusual. Hardly any doctor we've seen has any knowledge or understanding of this disease. It breaks my heart because I am seeing my husband slowly turning into an invalid, and he's not even 40 years old yet :(Is he HLA-B27 positive? Is he Rh-Negative or from an Rh-Negative Family? Has he been tested for AS? Have you tried a gluten/starch free diet? All of these conditions are related to my research. Please Google " Rh Negative Autoimmune" to find my site. I am not sure if I can post the link, but you can contact me through my site. Jessica
    thefarrellfam 46 Replies
    • February 26, 2011
    • 08:56 AM
    • 0
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  • Age 7 (never heard of) almost always 20 and above. Not that it cant happen. Doctors know very little and almost no research or studies. It is currently treated as reactive arthritis. To me this is crap. Most have a gene that was activated HLAB27. I got it at age 30 I'm 55 now. Last 2 years has been the worst. (year 2014 was 100 percent pain)been through all common meds. At start NSAIDS worked well (maybe 5 years) then not so much. after 10 years got worse, tried chemo pill (methrotraxate) did nothing. last 5 years been the worst. several years straight (6 weeks to 6 months goes in submission-my **s) Last 6 months been on ENBREL. This worked well(first time in years). I can tell I am becoming immune to enbrel. Hoping to get another 6 months. Then? probably have to switch to different brand of the same thing like HUMIRA.Other issue, so many different symptoms not listed!sores (not where they say) but anywhere on body. arms legs stomach, extreme stiffness inneck,sweating,knees,chest,rib
    Anonymous 1 Replies Flag this Response
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