Discussions By Condition: Medical Stories

Doctors won't listen

Posted In: Medical Stories 4 Replies
  • Posted By: Anonymous
  • December 7, 2007
  • 04:04 PM

I am a 42yr old female with 3 children. 10 years ago I developed chronic asthma. I was put on 40mg of steroids for a period of 2-3 years along with every other asthma medication. I was seen at a hospital clinic, and every visit I was seen by a new doctor who would give me a different treatment. I soon went from being an active person who weighed 115lbs to weighing 165lbs. I could not walk up stairs because I was over weight. I was sick with head colds and chest colds constantly. I was hospitalized 4-5 times a year with asthma related illnesses. My lower back began to hurt 2 years into starting the steroids and the weight gain, and my right leg began to go numb.
When I told the doctors about this, I was told that it was my imagination. I told the doctors that I now walked with a limp, once again I was told that I was imagining the pain, they would not do a test to see why I was in pain. Also, I wanted to know why I had to stay on such high doses of steroids. I was told that I needed this to keep my lungs function. I finally complained so much about the pain in my back and leg that a MRI was ordered. Two bulges were found in the L2 and L3 part of my spine. The doctors told me that even though a bulge was found, I should not be in that much pain. I began having open sores on my arms, neck, and face. The Doctors said it was diabetes, and I had to start taking insulin. The steroids increased my sugar levels and it became almost impossible to control the diabetes. My joints were always in pain; my lower back was in agony, the doctors refused to give me anything to relieve the pain in my back or joints because they said that I was imagining the pain. I began to grow excessive hair all over my body, and I had a bad vaginal discharge. After 3 years of taking the steroids and insulin, my weight was 180lbs, at 5'2" I could barely walk.
I stopped going to see the doctors because I felt that they did not care about me. I took myself off the steroids and began taking vitamins, and I got more rest. The weight began to come off, and my sugar levels began to go back to normal. It took 7 years before I was feeling normal again. I was no longer having asthma attacks, (I was intubated 4 times in the past) and I did not have to use the inhaler as much during the course of the day.
But now my back and neck were hurting me. I thought that the stiff neck was stress, or sore muscles. I would hear a cracking noise when ever I moved my head. I ignored this because I thought it was my imagination and I did not want to go thorough the horrors of the doctors again.
When my arm and fingers began to go numb I thought it was a stroke. I went to the ER and I was told that it might be MS, or pinched nerves, or a tumor, anything but a proper diagnosis. The pain in my neck became so server I had to stop working. I could not clean my house, wash my hair or body properly, or concentrate because I was in so much pain. I began having migraines and tremors in my hand. I loss feeling in three fingers, and I have partial hearing in my ear. I went to see a specialist and was finally diagnosis with cervical spinal stenosis. I felt happy to finally get a diagnosis and an explanation for the pain I was suffering. But now I am back to the beginning with dealing with doctors. I read up on my condition and found that it usually occurs around the age of 50 and up. Because I am so young the doctors feel that I do not need surgery to correct this. I am being treated with pain pills. I now can not function, I am in chronic pain, I slowly losing the use of my right arm, my hair has begun to fall out, and I am on so much medication just to be comfortable I can't drive a car or hold a job. I am on SSI, but that does not pay the bills. I am on the verge of ending my life because the doctors can't seem to help me, I have tried eastern medical treatment and that did not work either. I am so tired of being in pain, and not able to care for my self or my family. I figure that if I end my life I won't have to listen to any more lame doctors, and I will at least be a peace.

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  • I am a 42yr old female with 3 children. 10 years ago I developed chronic asthma. I was put on 40mg of steroids for a period of 2-3 years along with every other asthma medication. I was seen at a hospital clinic, and every visit I was seen by a new doctor who would give me a different treatment. I soon went from being an active person who weighed 115lbs to weighing 165lbs. I could not walk up stairs because I was over weight. I was sick with head colds and chest colds constantly. I was hospitalized 4-5 times a year with asthma related illnesses. My lower back began to hurt 2 years into starting the steroids and the weight gain, and my right leg began to go numb.When I told the doctors about this, I was told that it was my imagination. I told the doctors that I now walked with a limp, once again I was told that I was imagining the pain, they would not do a test to see why I was in pain. Also, I wanted to know why I had to stay on such high doses of steroids. I was told that I needed this to keep my lungs function. I finally complained so much about the pain in my back and leg that a MRI was ordered. Two bulges were found in the L2 and L3 part of my spine. The doctors told me that even though a bulge was found, I should not be in that much pain. I began having open sores on my arms, neck, and face. The Doctors said it was diabetes, and I had to start taking insulin. The steroids increased my sugar levels and it became almost impossible to control the diabetes. My joints were always in pain; my lower back was in agony, the doctors refused to give me anything to relieve the pain in my back or joints because they said that I was imagining the pain. I began to grow excessive hair all over my body, and I had a bad vaginal discharge. After 3 years of taking the steroids and insulin, my weight was 180lbs, at 5'2" I could barely walk. I stopped going to see the doctors because I felt that they did not care about me. I took myself off the steroids and began taking vitamins, and I got more rest. The weight began to come off, and my sugar levels began to go back to normal. It took 7 years before I was feeling normal again. I was no longer having asthma attacks, (I was intubated 4 times in the past) and I did not have to use the inhaler as much during the course of the day. But now my back and neck were hurting me. I thought that the stiff neck was stress, or sore muscles. I would hear a cracking noise when ever I moved my head. I ignored this because I thought it was my imagination and I did not want to go thorough the horrors of the doctors again. When my arm and fingers began to go numb I thought it was a stroke. I went to the ER and I was told that it might be MS, or pinched nerves, or a tumor, anything but a proper diagnosis. The pain in my neck became so server I had to stop working. I could not clean my house, wash my hair or body properly, or concentrate because I was in so much pain. I began having migraines and tremors in my hand. I loss feeling in three fingers, and I have partial hearing in my ear. I went to see a specialist and was finally diagnosis with cervical spinal stenosis. I felt happy to finally get a diagnosis and an explanation for the pain I was suffering. But now I am back to the beginning with dealing with doctors. I read up on my condition and found that it usually occurs around the age of 50 and up. Because I am so young the doctors feel that I do not need surgery to correct this. I am being treated with pain pills. I now can not function, I am in chronic pain, I slowly losing the use of my right arm, my hair has begun to fall out, and I am on so much medication just to be comfortable I can't drive a car or hold a job. I am on SSI, but that does not pay the bills. I am on the verge of ending my life because the doctors can't seem to help me, I have tried eastern medical treatment and that did not work either. I am so tired of being in pain, and not able to care for my self or my family. I figure that if I end my life I won't have to listen to any more lame doctors, and I will at least be a peace. I am so sorry to hear of your ordeal:( . Steroids are horribly nasty, and long term steroidal use is dangerous... You mentioned you have tried "eastern medical treatment" - what exactly did you try? Acupuncture and Oriental Medicine is an excellent treatment for pain, asthma, emotional stress, and so much more. You would need to go to several treatments to get a result...4-6 is usual. Please research your options as there may be practitioners near you who will offer a sliding scale fee - I have never turned down a patient because they cannot afford to pay...there are others out there like me! If you went to a medical doc who did acupuncture, they are very poorly trained in this form of medicine and I would steer away from them IMO. I would also suggest something called cranial sacral therapy - it is a gentle massage therapy that is very helpful for cervical problems. What medications are you currently taking? Please hang in there. There is no quick fix for this, but please explore other nonsurgical, nondrug options. Best wishesDOM
    acuann 3080 Replies
    • December 11, 2007
    • 09:44 PM
    • 0
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  • Thank you for answering me. I will get all of the information you asked for and I will send it off to you ASAP. It is good to know that someone cares:)
    Anonymous 42789 Replies
    • December 16, 2007
    • 08:07 AM
    • 0
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  • Perhaps you should get an MRI brain scan and make sure you don't have a brain tumour.
    Anonymous 42789 Replies
    • December 21, 2007
    • 04:05 AM
    • 0
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  • Thanks for replying, I have had several brain scans, they all show the same thing. It is definitly spinal stenosis. The doctors that I have seen seem to believe that time will either heal me, or it will go away. In the mean time I am filled up will pills. I was considering changing doctors, but it is frustrating explaining myself all over again.
    Anonymous 42789 Replies
    • December 21, 2007
    • 06:34 AM
    • 0
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