Discussions By Condition: Medical Stories

Doctors cannot figure this out

Posted In: Medical Stories 6 Replies
  • Posted By: Carole46
  • November 29, 2006
  • 10:26 PM

I have had bad headaches going on 2 years now...i have had all kinds of tests done and taking different meds, all my tests come back ok..when i get up in the mornings i am so dizzy and sick to my stomach and cant function for at least 2 hours..(almost like morning sickness) but its not..my blood pressure has been spiking and am being treated for that, but so far the meds arent doing the trick..can anyone help me?

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  • What sort of test have you had done? I am not one to scar people, but when I hear stories of people suffering headaches for considerable time and sent home with meds or pain killers I only think of one of my teachers from years ago. He had headaches for four years, and didn't go for a second opinion till it was too late and diagnosed with brian cancer.If you haven't had an MRI go for one! NOT a catscan; they arent very good. Headaches can have many causes, but long term and unresponsive to meds is not something to be ignored by doctors.If you have had a MRI and it is clear, get back with more details, even if they don't seem relevant they may be. It could be as simple as something you are eating.Agape,searchingsam
    Anonymous 42789 Replies
    • November 29, 2006
    • 10:38 PM
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  • What sort of test have you had done? I am not one to scar people, but when I hear stories of people suffering headaches for considerable time and sent home with meds or pain killers I only think of one of my teachers from years ago. He had headaches for four years, and didn't go for a second opinion till it was too late and diagnosed with brian cancer.If you haven't had an MRI go for one! NOT a catscan; they arent very good. Headaches can have many causes, but long term and unresponsive to meds is not something to be ignored by doctors.If you have had a MRI and it is clear, get back with more details, even if they don't seem relevant they may be. It could be as simple as something you are eating.Agape,searchingsamI just had an MRI done last week..results arent back yet..they have me on different meds for headaches and bp..it has been high for no reason..i have mild tingling in fingers and toes,very sick in the mornings.they cant figure out anything yet..i have had blood work done, ct scans, MRI's, colon tests, u name it i have had it..my doctor said i am the healthiest sick person he has seen..thanks for writing me back..
    Carole46 2 Replies
    • November 29, 2006
    • 11:41 PM
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  • Hi again, Carole46.If the MRI shows nothing, you best go and see an osteopath who can examine ever inch of your spin for any misalignment and so forth. With tingling in toes and fingers it may be nerves being pinched or suppressed; and people can suffer for years before finding out it was something out in the spine, especially those really tricky ones at the base of the neck that can and do cause horendous headaches and abnormal sensations in the limbs.MRI's can also be done on the spine but first things first, your MRI to rule out any thing that may be going on in the brain and its structure.Competent medical attention can be pretty hard to get where I live, but dont have to wait long for MRI results to come through. Waiting is so stressful.all the best. Keep us posted.searchingsam
    Anonymous 42789 Replies
    • November 29, 2006
    • 11:55 PM
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  • Hello,It sounds like you have joined the world of chronic pain. That word scare's Doctors and if nothing jumps out at them it must be a mental disorder. I have had Doctors at the VA hospital pull this on me and dozens of other Veterans. Each and everyone of us had to go out of the VA system to top notch Doctors to find out what is cause of our pain. I myself have shurmanns disese, spondiloses, fibromalga, and physical damage to my spine.(please forgive my spelling) The funny part is they couldn't figure any of this out at the VA. Now that we know whats wrong with me and nothing has changed because the word chronic pain is still applies. I know you have a real problem because I myself have had the same problems you have stated.My advice for what it's worth is do what you can to go to one of the Mayo hospitals. They have Doctors that do nothing but figure out and diagnose problems that other Doctors can't. Also there isn't a Doctor out there that would blow off a Mayo diagnoses. They have you scheduled for 3 to 5 days there and they use the best equiment and see a number of Doctors. I know the trip and the hospital cost money, but it puts everthing together and your not sitting there wondering whats wrong with yourself which is so depressing.I have one more piece of advice, Try to get into a chronic pain group. It really helps alot. When this happened to me I felt so alone. Nobody can understand what this is like unless they have been through it. I took all the problems with the Doctors personally. After I was in group I realized that my story was the same as many many people. People in the group help take care of each other, offer advice from experiance which helps. I hope every thing works out for you. If you have any questions email me I would be happy to help.Broken Sailor
    Broken Sailor 1 Replies
    • November 30, 2006
    • 02:37 PM
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  • thank you very much for the info..you are right, no ones what pain and ***l one goes thru..sometimes i think it is just me, but i know better..but when the tests all come back negative everytime ,people start looking at you funny..you know? i have my appt. with my neurologist the 6th of dec..so we will see what he says from there..i am sure it will be the same old ***t..but there has to be 1 doctor out there that can help me out and figure out whats wrong.. thank again and i will keep u posted.
    Carole46 2 Replies
    • November 30, 2006
    • 03:53 PM
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  • hi my son was having sore heads from the age of 18mths where he would phisicaly hold his head and cry. i took him to see the doctor on many occasions and the all said the same nothing to worry about!!finally i bugged them enough and they sent him for an mri which showed that he had a malformation of his brain (arnold chiari malformation type 1) he was then booked in for brain surgery he was 3 years old he had been having headaches for a year and a half before we were took seriously.ask for an mri and fight untill you get one.traceyx
    Anonymous 42789 Replies
    • December 2, 2006
    • 02:29 PM
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