Discussions By Condition: Medical Stories

Do I really have ALS?

Posted In: Medical Stories 0 Replies
  • Posted By: carolynsusan
  • October 26, 2007
  • 03:36 AM

A brief medical history: age 60, no serious medical problems in the past, always been healthy, non meat-eater and aware of good nutrition, don't drink enough water (teacher) but I am working on it, swim for exercise. In 1995 I experienced pain in left hip and was told I needed a hip replacement, but I took herbs for one year and now I have no pain. I have poor rotation in left hip, always have. In 2000 I experienced pain in left arm and muscle weakness - MRI showed narrowing in foramen of C5, C6. Short term steroids took care of pain and I regained muscle strength. Jan 2006 experienced "frozen shoulder" on left shoulder, causing limited movement for about 6 months, but since has returned to normal. Jan 2007 began having muscle twitches in left leg and noticed mild muscle weakness in left foot. Since then my left foot and left calf muscles have become weaker. EMG 5 months ago showed nothing remarkable, except for two abnormal readings in left leg with a possible relation to lumbar vertebrae. MRI was normal. Muscle twitches are all over my body now, but no muscle weakness anywhere else. Neurologist tells me I have ALS and wants to do another EMG. I am petrified to say the least. I have been tested for Lyme disease and some other diseases that mimic ALS, but everything is normal so far. I am very worried and sometimes don't have a lot of faith in Western medicine. I understand there is no treatment for ALS. Any help would be more than appreciated.

carolynsusan

Reply Flag this Discussion
Thanks! A moderator will review your post and it will be live within the next 24 hours.