Discussions By Condition: Medical Stories

Diagnosis with Pyroderma Gangrenosum

Posted In: Medical Stories 2 Replies
  • Posted By: Anonymous
  • July 21, 2007
  • 05:34 PM

I am new here. I just got diagnosised with this condition February 2007. Pyroderma Gangrenosum they call it. Terrible condition. I am still in the healing process and this is now July 21/07. I was clawed by a cat at work in the breast which caused an infection first. They operated which then made the skin fall off. This has been very painful. The side effects from all the medication takes a toll. From the prednisone to the cyclosporine, both cause terrible swelling. I am in search of any information anyone can give me to how long the recovery time may be.
Mona

Reply Flag this Discussion

2 Replies:

  • I am new here. I just got diagnosised with this condition February 2007. Pyroderma Gangrenosum they call it. Terrible condition. I am still in the healing process and this is now July 21/07. I was clawed by a cat at work in the breast which caused an infection first. They operated which then made the skin fall off. This has been very painful. The side effects from all the medication takes a toll. From the prednisone to the cyclosporine, both cause terrible swelling. I am in search of any information anyone can give me to how long the recovery time may be. Mona Dear Mona, I hope your health has been restored. My wife has the same problem with yours since 2008, without managing it. If you inform us about your acts, doctors, treatment or any special clinic in which you was admitted we'll be thankfull. Thank you in adnanceCris
    crisdion 1 Replies Flag this Response
  • Dear Mona, I hope your health has been restored. My wife has the same problem with yours since 2008, without managing it. If you inform us about your acts, doctors, treatment or any special clinic in which you was admitted we'll be thankfull. Thank you in adnanceCris hi all pg victims ( i say that cause my poor husband is a victim)my husband has been diagnosed with pyoderma gangrenosum last october.....he does not suffer from any other ailments...his was caused by trauma, due to a cut recieved to his calf. The wound has now extended to 18cm by 21 cm , bone is showing and the remaining surface is covered in necrotic tissue....surgery is NOT a option here for removing the necrotic tissue as this is classed as trauma ( more trauma/bigger the wound). ampitation is the last resort as there is no guarantee he wouldn't get it in the stump, as this is classed as trauma.he like all you other sufferers is on oral steroids/ antibiotics/ and any other medication deemed to help) he even has a drip every 8 weeks of a drug called infliximab( to which he has to get funding for). this treatment has slowed the process down but it does not remove the necrotic tissue, we have tried everything from gels to dressings to remove this and surgical debridment is not a option as again this is trauma. until this is removed the wound will not stand a chance at healing. any suggestions i can mention to his doctor.he is on morphine tablets and has to top this up with oramorph when the pain is to much to takeplease please post any suggestions or ideas . my husbands case is very rare so all you pg sufferers out there DO NOT PANIC this thing can be healed( we met someone) ...we just have the problem of necrotic tissue.
    steggy 2 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.