Discussions By Condition: Medical Stories

Cryoglobulinemia, or fibromyalgia?

Posted In: Medical Stories 1 Replies
  • Posted By: cijohnny
  • February 3, 2013
  • 04:01 AM

I have been on a clinical trial non interferron treatment for hep c and was also dx'd with cryoglobulinemia. I have been undetected as far as hep c for about 12 weeks, but continue to have joint pain, sciatic pain, numbness lower legs, especially the right and what fells like a rock in the ball of my left foot, and lots of short lived blasts of pain in my feet/toes that I'm guessing are neuropathic. My hands continue to be blancy, slightly swollen, itchy and shiny-all more in the eve.My sed rate is 48. My GP ordered a spinal consult, mri and eng (a bone spur showed up on my lumbar xrays) and my Rhuematologist ordered more blood work, including a cryocrit and ana, but she's pointing towards fibromyalgia. I'm sure the tests will shed some light, but she said that my sed rate may stay in that range forever, as well as my elevated cryo.I also had a pos RF before starting hcv treatment. Has anyone heard of these tests remaining elevated? I just don't think that my symptoms resemble fibro, except poor balance, which is a real problem for me lately. Anyone heard of balance problems with cryo? Any insight will be appreciated.

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  • i was diagnosed with cryoglobulinemia 4 yrs ago.i do have fibromyalgia.i don'thave hep c.been tested for it.was on a chemo drug and prednisone after i was diagnosed with the cryo,got very sick after 7 mos.,ended up in the hosp. for a wk.the chemo drug wiped outmy immune system,had to get blood transfusions as i was severly anemic.i recovered from that mess.i no longer take prednisone or the chemo drug.youmentioned balance issues.i developed meniere's disease many yrs ago.caused by fluid in the ears.now losing my hearing and have tinnitus.i've learned to overcome the noise in my ear.it bothers me more i've kidney disease! have to watchmy salt,make most everything homemade.no added salt,stay away from junk foods.kris99
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