I was told I 'probably have Crohn's disease' in July this year after bloody diarreah, abdominal pain and a CT scan.
I started having pain in my hips, The diarreah stopped
After 2 weeks in the hospital I contracted Clostridium Difficile.
I became really seriously ill. I was having stabbing pains in my stomach and also the pain in my hips spread to my knees, ankles, soles of feet and neck.
After another 3 weeks in the hospital I had a normal MRI scan and a normal barium xray.
The pain and stiffness in my feet and hips was moderate to severe, my feet were ice cold, and I had stabbing pains in my lower abdomen.
The doctor sent me home on predisnolone(steroids), cocodamol (for pain), sulfasalazine (used for Crohn's and arthritis), Omeprazole(stomach lining) and AdCal(Calcium).
This is 6 weeks later now. The 'arthritic' sympoms I was having are much better- I am walking without crutches. I cant walk far without feeling exhausted. I used to be fine on 6 hours a night sleep, now I have about 16 hours and still fell shattered. I still have stabbing pains in my lower left abdomen, but no diarreah. Am very constipated, experience great pain when going to the loo and often the toilet bowl is red with blood. The dulcoease and lactulose I'm taking for this dont seem to have helped really.
On Monday I saw my consultant for the first time since discharge. He said I looked really unwell and seemed surprised. He has now changed his diagnosis to Post Viral Fatigue Syndrome. I asked him about my CT scan and he said it's with the radiologist.
I am very confused. I looked at post viral fatigue syndrome on the internet. The only symptom I have is tiredness. I thought I might be anaemic, but my B12 levels are extremely high (>1500) despite the fact that I'm pretty much vegan, and my folate is high ( 5.7). I makes me wonder if they got the blood results mixed up.
Can Post Viral Fatigue cause stabbing pains in the lower left abdomen? And what made me ill in the first place, before i got the c. diff infection?
Any advice would be most welcome, I am grateful to be a bit better, but starting to feel quite angry and down about all this.