Discussions By Condition: Medical Stories

constantly dizzy, can't live my life

Posted In: Medical Stories 3 Replies
  • Posted By: Anonymous
  • December 8, 2009
  • 06:37 PM

About three months ago, I started feeling dizzy off and on, especially when I worked out, or just at random times. I was also having some facial/sinus pain. I visited my doctor, who did blood tests for diabetes, thyroid problems, white blood cell count, and several other tests; as well as a CT scan of my sinuses. Everything was completely normal. She referred me to an ear, nose & throat specialist, but I couldn't get in for a few weeks. About a week later, I woke up extremely dizzy. The dizziness would not go away and has not since. I had an MRI, of my head, which showed nothing wrong. When I finally visited the ENT, he could find nothing wrong with my inner ear, etc. I am currently under the care of a neurologist. I have a lyme test pending, and she is treating me for a migraine variant. There is no way to diagnose it through testing, just to see if the medication works or not, which some meds work for some people, some don't. So she has started me on Nortriptylin to see what happens. In the meantime, I cannot live my life. it has now been a month and half since the dizziness has been constant. I cannot drive, read for long periods of time, go to work or school, exercise, etc. I get motion sickness in the car (which never happened before). I am not sleeping well and having vivid dreams. I am often very tired and weak feeling. My hair is falling out. Some days I feel OK, though the dizziness is always there, and can do things like vacuuming or work on schoolwork. Other days I cannot get out of bed.
Does anyone have any ideas or suggestions?
I am an other wise healthy 20 year old female, no history of similar problems. I am of average height and weight, and was very active and busy before this happened.

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  • About three months ago, I started feeling dizzy off and on, especially when I worked out, or just at random times. I was also having some facial/sinus pain. I visited my doctor, who did blood tests for diabetes, thyroid problems, white blood cell count, and several other tests; as well as a CT scan of my sinuses. Everything was completely normal. She referred me to an ear, nose & throat specialist, but I couldn't get in for a few weeks. About a week later, I woke up extremely dizzy. The dizziness would not go away and has not since. I had an MRI, of my head, which showed nothing wrong. When I finally visited the ENT, he could find nothing wrong with my inner ear, etc. I am currently under the care of a neurologist. I have a lyme test pending, and she is treating me for a migraine variant. There is no way to diagnose it through testing, just to see if the medication works or not, which some meds work for some people, some don't. So she has started me on Nortriptylin to see what happens. In the meantime, I cannot live my life. it has now been a month and half since the dizziness has been constant. I cannot drive, read for long periods of time, go to work or school, exercise, etc. I get motion sickness in the car (which never happened before). I am not sleeping well and having vivid dreams. I am often very tired and weak feeling. My hair is falling out. Some days I feel OK, though the dizziness is always there, and can do things like vacuuming or work on schoolwork. Other days I cannot get out of bed. Does anyone have any ideas or suggestions? I am an other wise healthy 20 year old female, no history of similar problems. I am of average height and weight, and was very active and busy before this happened.I feel everything you are feeling, and am also very discouraged, I have had test after test, including a series of test where they blast hot and cold water in my ears, sit me up and down rapidly, side to side, have me follow these red dots, etc.. and the only thing they could come up with is nothing???? I have had problems with dizzy spells for about a year, but just a couple months ago, I had surgery for carpotunnel, and the day after my surgery, the dizziness was intensified so much that I can not stand, or walk without something, or someone to hold onto. It has affected my job performance quite extensivly. My symptoms do not include just rapid movements, or just side to side, I just have to become ambulatory and it starts, I can not drive my car anymore, or walk alone etc. I have had a few things I was diagnosed with that may be the culprit but cant get any answers, 1 of them was that I have 3 valves to my heart that are mildly leaky, but until I got my report myself, I was told only 1 valve, I have a Maxilary Cyst in my right sinus cavity, I also have fibromyalgia, osteoarthritis, and Epstein Barr syndrome so not sure which one to blame, if any of these DX's. Any Ideas?
    Anonymous 42789 Replies Flag this Response
  • I feel everything you are feeling, and am also very discouraged, I have had test after test, including a series of test where they blast hot and cold water in my ears, sit me up and down rapidly, side to side, have me follow these red dots, etc.. and the only thing they could come up with is nothing???? I have had problems with dizzy spells for about a year, but just a couple months ago, I had surgery for carpotunnel, and the day after my surgery, the dizziness was intensified so much that I can not stand, or walk without something, or someone to hold onto. It has affected my job performance quite extensivly. My symptoms do not include just rapid movements, or just side to side, I just have to become ambulatory and it starts, I can not drive my car anymore, or walk alone etc. I have had a few things I was diagnosed with that may be the culprit but cant get any answers, 1 of them was that I have 3 valves to my heart that are mildly leaky, but until I got my report myself, I was told only 1 valve, I have a Maxilary Cyst in my right sinus cavity, I also have fibromyalgia, osteoarthritis, and Epstein Barr syndrome so not sure which one to blame, if any of these DX's. Any Ideas? Unregistered,I dont know as you didnt give enough info for me to say this is probably likely but dysautonomia can happen after a viral infection such as EBS as it can damage things and cause POTS (postural orthostatic tachycardia syndrome).. which in turn causes dizziness and other symptoms. I think POTS can happen after surgery too? One third with fibro have CFS, CFS and fibro are overlapping disorders.. and POTS is common in CFS patients. I suggest you get tested for POTS eg tilt table test.
    taniaaust1 2267 Replies Flag this Response
  • About three months ago, I started feeling dizzy off and on, especially when I worked out, or just at random times. I was also having some facial/sinus pain. I visited my doctor, who did blood tests for diabetes, thyroid problems, white blood cell count, and several other tests; as well as a CT scan of my sinuses. Everything was completely normal. She referred me to an ear, nose & throat specialist, but I couldn't get in for a few weeks. About a week later, I woke up extremely dizzy. The dizziness would not go away and has not since. I had an MRI, of my head, which showed nothing wrong. When I finally visited the ENT, he could find nothing wrong with my inner ear, etc. I am currently under the care of a neurologist. I have a lyme test pending, and she is treating me for a migraine variant. There is no way to diagnose it through testing, just to see if the medication works or not, which some meds work for some people, some don't. So she has started me on Nortriptylin to see what happens. In the meantime, I cannot live my life. it has now been a month and half since the dizziness has been constant. I cannot drive, read for long periods of time, go to work or school, exercise, etc. I get motion sickness in the car (which never happened before). I am not sleeping well and having vivid dreams. I am often very tired and weak feeling. My hair is falling out. Some days I feel OK, though the dizziness is always there, and can do things like vacuuming or work on schoolwork. Other days I cannot get out of bed. Does anyone have any ideas or suggestions? I am an other wise healthy 20 year old female, no history of similar problems. I am of average height and weight, and was very active and busy before this happened. This sounds like it could be methylb12 deficiency. http://forums.wrongdiagnosis.com/showthread.php?p=234925#post234925 to discuss it.Check out the symptoms list at http://forums.wrongdiagnosis.com/showthread.php?t=62327.
    Freddd 3576 Replies Flag this Response
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