My name is Mathilde and I am suffering from quite a rare tumor is called chordoma, in my case sacral chordoma.
It has startet in 1993 and since then I had 9 operations to Berlin Germany.
My Doctors have not managed to take it all, and 2004 I had a proton radioherapy. Since then it has schrung a bit, but it is left something which is located on my left thigh inside the muscle.
I am suffering now maybe by compression of the nerve a paraesthesia to my left leg and foot. It becomes daily worst and I worry a lot.
Any idea what it should be done next?? I have also an incotinence and a cystitis.
I would appreciate any help, as I am very depressed at the moment